Axon Optics and Shades for Migraine

FullSizeRenderJune 21st is World Migraine Solidarity Day! It’s a great social media campaign that is meant to raise awareness for Migraine and what better way to express it than in SUNGLASSES?!

With that said, let’s talk about my favorite indoor and outdoor glasses!!!!!  I am an affiliate of Axon Optics because I truly wear their glasses and love to spread the word of how they help.  If you order their glasses I will receive a small compensation for my recommendation.  Thank you!

“Axon Optics has utilized the latest research exploring the pain pathway associated with migraine and photophobia to develop the SpectraShield FL-41 migraine glasses lens. These lenses may help to reduce exposure to certain types of artificial light, particularly blue light and green light, which may exacerbate light sensitivity in those who suffer from migraines.   Both indoor migraine glasses and outdoor migraine sunglasses are an option.” Axon Optics

 

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Wearing my indoor glasses on a partly cloudy dinner date on the patio

 

Personally, I use the indoor glasses almost everyday.  I have both the indoor and outdoor and love them both.  I recommend going to the website and looking what may be best for you.

The reason I love the indoor glasses is the tint.  I am a teacher and mom so I spend a lot of time in fluorescent lights.  I teach in them, go grocery shopping in them and make dinner in my own home with them.  On cloudy days, I wear my indoor glasses outdoors because the glare still hurts my eyes yet regular sunglasses are too dark to wear.  I can not recommend enough Axon Optics Migraine Glasses!!!!

Check me out on: Instagram, facebook, and twitter

I’ll be wearing my Axon Optics for the Shades for Migraine campaign and more.  Remember to participate in the Shades for Migraine campaign and tag me in your sunglasses #shadesformigraine

If you’d like to purchase a pair of Axon Optics, they are generously offering My Migraine Life readers a discount for Migraine Awareness Month!  They are a company that truly cares about migraine sufferers and not just selling a product.  Their customer service is amazing, their return policy is comforting and the founders are people invested in helping!

Use code mymigrainelife to receive 15% off your order

You have nothing to loose but light sensitivity pain!

World Migraine Solidarity Day

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Time to launch the first annual World Migraine Solidarity Day campaign!

The Association of Migraine Disorders (AMD) have initiated the Shades for Migraine campaign and website.  This campaign is intended to be an annual event.   

“So….on Wednesday, June 21, let the world know about it!  Let the millions of sufferers know that you care… that you know they aren’t faking an illness… that you know much more needs to be done to find a cure and give them relief… that you want to help give migraine disease the prominence it deserves.” https://www.shadesformigraine.org/

Participating is simple…

Post a photo of yourself (and friends/co-workers) wearing your Shades for Migraine on social media using the hashtag #ShadesForMigraine.”

1.   Post a photo of yourself wearing sunglasses

2.   Hashtag the photo with #shadesformigraine

3.   Challenge at least 2 other people to do the same

4.   Don’t forget to wear your shades ALL DAY long on June 21st, the longest day of the year.

5.   Tag @mymigrainelife so I can support and see those shades!

 

They just need to be visible…hanging around your neck, hanging from your shirt or propped on your head are options if you can’t wear them on your face the entire day. Wear them indoors and in places where people usually don’t wear sunglasses.  Be silly. Wear goofy ones if you dare. Let them make a statement…  Start a conversation…

 

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ChronicAlly Box for Migraine Awareness Month

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Here’s your opportunity to treat yourself to a box made just for migraine sufferers!

I am an affiliate of ChronicAlly Box which means if you purchase a box I will receive a small compensation for my recommendation.  Thank you!  I am pleased to tell you about this fabulous box made just for Migraine Awareness Month!

 

What is ChronicAlly Box?

“The FIRST ever Chronic Illness Woman & Girl’s Health & Beauty Subscription Box. We’re so glad that you’re here! Have a look around and pick out your favorite subscription! If you’re here buying a gift for a chronically chic loved one, be sure to check out our Gift Bar! Sign up for our mailing list to receive an email including a code to get 10% off for life!”

Purchase Here

“To celebrate & keep the Migraine Awareness going, ChronicAlly Box will be curating a LIMITED EDITION Migraine Awareness Box for July’s Delivery! We will be taking Migraine Box orders now until June 20th!”

“Purchase off of The Gift Bar, or if you already have a subscription, email us at info@chronicallybox.com, and specify that you want your July CAB to be this LIMITED EDITION Migraine ChronicAlly Box!”

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I reviewed a box for ChronicAlly and really loved it!!!  I’ve now purchased a Migraine Awareness Box and can’t wait to receive it in July.

 

Mile for Migraine charity walk/run 2017

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This year, I started a virtual team for Miles for Migraine. “Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun run events, typically 5k and 10k races to raise money for migraine research, and also hosts youth camps for kids and teens impacted by migraine or other headache disorders.”

I love this race because we all can participate virtually.  I have asked for virtual participation through “Runnin for Research”  to help raise money for American Headache Migraine Association in the past but this year I’m actually asking for donations and participation for Miles for Migraine for the first time!

My goal is to raise $300 in honor of my blog being 3 years old this summer!

Please go to my pledge page and make a donation if you are able.  All or part of your donation may be tax deductible as a charitable contribution.

The fundraiser will go through the month of June in honor of Migraine Awareness Month.  If you’d like to see me reach a goal, please specify and I will do my best to honor it.  If you’d like to make a miles goal, please take a picture of yourself making those miles for My Migraine Life and I will happily post it and give encouragement as always.

The great part is, no race day, no big commitment, just motivation.  If you don’t have the money to donate, please participate by walking a mile or moving one day and tag me in your success.

I want to thank any of you in advance for your donation and participation.  The smallest amount makes the biggest difference. THANK YOU!

Donate

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*Once you’ve donated and/or made a commitment to walk a mile, don’t forget you have a chance for something FREE!!!!  Enter my giveaway for a Migraine Awareness Band that ends 6/10/2017  Enter NOW!!!

 

Migraine Awareness Band Giveaway!!!

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This week I will be doing a *giveaway* of 2 Migraine Awareness bands.  The official color of Migraine and Headache Awareness Month is purple.  These bands are a perfect complement to anything you are wearing and promote conversation and ways to spread awareness.

The contest runs 6/2/2017 (12am) through 6/10/2017 (12am)

You MUST:

Comment on this post and

Like My Migraine Life facebook page

(please do this through rafflecopter link below)

Additional entries:

Follow twitter page

Tweet about the giveaway

Follow on Instagram

*Please share*

 

 Enter Here: Rafflecopter giveaway

themigrainecuase band

No purchase necessary.  US residents only.  This promotion is in no way sponsored, endorsed or administered by, or associated with Facebook, twitter or instagram. You understand that you are providing your information to the owner of My migraine Life and her social media and not to them.

Migraine and Headache Awareness Month 2017

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Migraine and Headache Awareness month begins today!  I will fully admit that I may be a bit behind on posting due to a cycle of migraine that just will not go away!  I will be participating and challenging myself each day to do some kind of advocacy for migraine and headache awareness.

Day one is simple:

I’m asking you to share this post and invite others to follow:

My Migraine Life

Facebook

Twitter

Instagram

 I think you will be shocked to see who suffers from migraine and headache disorders.  I can’t tell you how many people I have run into that say, “I don’t suffer like you, but I do get headaches or migraines in my own way……”  We all suffer differently but can learn so much from each other.  By others following they can learn from my experiences and I can learn from theirs.  Supporters (parents, friends, co workers, bosses, neighbors) will learn how to help a loved one and understand the depths of migraine and headache disorders. 

Knowledge is power and following will give you added power to fight!

This month My Migraine Life will be giving you opportunities to:

·         WIN a giveaway

·         Fundraise for migraine and headache disorders

·         Learn new information

·         Find and receive ways of support

·         Make some social media “noise”

Some events allow you to spend your money on fundraisers or products that help sufferers.  Some events don’t require money and only ask for your participation.  Some events are to teach you while others are to support you.  There is a variety of ways to make Migraine and Headache Awareness Month a success.

 

So first things first…….follow and share on all social media to get as many involved as possible.  Together we can make a difference! 

Thank you!!!!!

 

 

 

Chronic pain is too much for too long and too often

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The last 3 weeks I have been in a migraine cycle from hell. Hell is the only place to describe it. I suffer from chronic migraine and even this rattled me. Here’s the thing I’d like to tell you about chronic pain, it’s too much for too long and too often!

You never get used to pain. I have found ways to mentally deal with it better, to alternatively treat it more naturally and ways to adapt my life but the reality is it hurts….a lot. With my migraines, I get insane pain (on all sides) that resonate throughout my entire body like a lightning bolt that never goes away. I throw up constantly (well, my body tries but at this point my stomach clenches so hard to keep any food in me that it’s basically violent painful heaves each time I sit up.) I have auras that consist of black dots, lines, zigzags, white light flashes and tunnel vision. I clench my teeth/jaw, fists, toes and thrash my body to the point I bruise. Light and sounds puts me at risk of passing out. The list of pains goes on and on and on while the minutes, hours, days and nights pass by.

When I was in labor, my nurse was able to tell me “Your contraction is at its worse, it’s getting better and going now.” The biggest battle besides the pain is not knowing how long the migraine will last. With this last cycle, I had points that I did not see the light at the end of the tunnel. The fear of living at a level 8/9 for the rest of my life was and is my reality. After an unending migraine, I don’t remember ever feeling better, can’t do anything to find relief and no one can tell me it’s going to be better soon because they don’t know that.

In comes the anxiety and depression that most chronic migraine sufferers experience. Anxiety about doing something to make it worse, about how long it will last, about missing out on life and about what will be missed in the future. Depression about being locked in a dark room alone for hours and feeling so alone. Alone. Alone to fight my pain because no one else can help. Feeling worthless and sad that this is my life and the way it will always be. Sadness from the things I can’t do and won’t ever do. The feeling of pain being the only feeling that I feel because nothing else can enter my mind is exhausting and unfair.

In fact, everything is exhausting and unfair. Even once the pain lowered, I was exhausted. Exhausted from fighting the pain and little sleep after days and days in bed. Looking at social media was too trivial. I can’t stand seeing moms complain about their kids when my children are my inspiration for everything and give me a reason to fight! Those moms are so ungrateful. In fact, the only reason I got out of bed was to go see my daughter for one hour at her school for an end of the year reception. I had spent the entire morning heaving from pain and used every bit of my energy to be there. One hour. One hour is where I spent all my energy in one day just to make my daughter smile and to make me feel human while other women are complaining that their kids are being kids….ugh, exhausting! (*Note:  I’m planning on writing a series on how my children are shielded from these episodes….**spoiler alert** lots of help and preparation!)

Once I emerge from a cycle, I always find it difficult to enter back into the real world. The world outside of my pain, outside of my room, outside of my head. I look in the mirror and don’t even recognize myself. My face is broken out and I look so weak and pale. My list of to dos is a mile long and the cognitive damage and physical weakness make it difficult to multitask like I normally do. I have trouble with just one task and focus on that alone. The anxiety stays with me because I never know when my migraine will return. I walk on egg shells and give myself credit for doing even the smallest things.

Chronic pain is too much for too long and too often. Before this 3 week cycle, I had made it 4 days at a level 5 pain level. This was good, but 4 days since my last major migraine? It’s not like I got food poisoning and thought, “Wow, glad that’s over, I’m never eating there again.” I’m going through this dramatic traumatizing event and thinking, when will it come back? Not if, when. Will it be tomorrow once I eat a normal meal again, will it be when I leave the house, will it be when my children scream and my stress raises, will it be when I try to get my list done and push myself too hard, will it be in a few days with my menstrual cycle, will it be when the weather changes AGAIN, or will it be for no reason? It will always come back….and soon.

I questioned if I should write this post. I like to be optimistic and show my readers hope. But the reality is, I suffer. I suffer a lot. Hopefully I help many with writing MyMigraineLife but there is no cure and I live with that every day. This is not a post to make you feel bad but to remind you that you are not alone. That maybe someone has it worse and to show gratitude for everything you can do today. To remind you that you never know what someone is battling with and to be gentle and kind. And to remind you that someday it will get better. My better does not mean I’m ok, it just means I’m out of my dark room today and I’m writing! That’s better! I still have a long way to go and am very aware that tomorrow it could be much worse. All I can hope is that it gets better…..