Miles for Migraine Walk in Cleveland 2018

There is less than a week left before Miles for Migraine comes to Cleveland.  This fundraiser is an amazing opportunity to bring awareness to Migraine and headache disorders along with raising funds to help improve the lives of those who sufferer and their families.

Interested in donating?  Go here

miles for migraine swag

Available to walk April 21, 2018?  Join us at South Mastick Park at 9:00am. Register here

THANK YOU

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10 Best Things to do in NYC in 3 days

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We visited New York City in the beginning of April and it was cold and windy!  Although it was grey and wet, we managed to make the most of our trip in 3 days. I highly suggest the following 10 things……

1. Sarabeth’s

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We started our day at Sarabeth’s.  This was  recommended to us by a local New Yorker and it did not disappoint.  There are a few locations around the city and we dined in Tribeca.  I initially loved it because my name is Sarah (with an h) and my sister’s name is Beth.  It sounded like a good fit.

The ambiance was adorable, the coffee was exactly what I needed and the lemon ricotta pancakes were out of this world!!!!!  The portions were large and so delicious. We had leftovers that we passed onto a homeless man sleeping on the sidewalk.  As visitors, we didn’t need leftovers and sharing our meal felt really good!

Yum!  We left feeling good and passed along that feeling….

We picked this location so we could walk past the 9/11 memorial, stock exchange and head to Battery Park where we boarded to see the Statue of Liberty and Ellis Island.  It was an easy walk with so much to see.

2. 9/11 Memorial

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This was an area I knew would be powerful.  Being in my 30s, I haven’t had many “I know exactly where I was when….” moments.  September 11, 2001 is one of them.  We all have our stories about that day but speaking with someone who was there and standing in front of the exact locations was obviously very different.

We spoke with a man outside of the survivor tree.  He was there to speak about how this resilient little tree has made it through some of New York’s devastating events.  The story evolved into his day working in the second tower on 9/11.  Time didn’t allow us to go to the museum but making a personal connection with this man and his stories about the 1993 World Trade Center bombing, 9/11 attacks, and the hurricanes was a history lesson I really felt.

3. Statue of Liberty

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Lady Liberty was someone I was looking forward to meeting.  My young children and nieces all know and askd about the Statue of Liberty.  She’s social studies 101 to all of us and I was excited to see her in person.

As we boarded the boat, it started pouring cold rain.  The grey sky doesn’t show the sheets of rain that were flowing as we walked around.  We had tickets for the grounds only.  We splashed in puddles as we took wet pictures and laughed as our umbrellas turned inside out.

If we have the opportunity to go back, I’d book tickets to the crown well in advance.  We planned our trip with short notice and would have liked to see inside.

4. Ellis Island

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After a wet time at the Statue of Liberty, we entered Ellis Island.   You could easily spend all day here reading all the information around the building.   It mapped out the fabric of our melting pot of country and really was something to see.

At this point I had a migraine, was tired, wet and ready to head back to our hotel.

5. St Patrick’s Cathedral

When we travel, we almost always find a church to visit.  “Every year, more than five million people of every different nationality and faith enter this Cathedral.”

We walked in off a bustling street to this gorgeous and harmonious cathedral.  Usually when we walk through a church it is really quiet and still.  This church happened to be filled with a high school choir singing and they blessed us all with their songs!  It was magical! As we walked around admiring the endless stained glass and details, the church felt alive, warm and welcoming.

6. Top of the Rock

Wind in my hair, I don’t care.  (For more crazy hair and New York pictures, check out my Instagram)

The day we went to the Top of the Rock at Rockefeller Center there were 50 mile an hour winds.  We headed up 70 floors and I literally almost fell over. *Tip: The guard told me to drop to the ground when he saw me carried by the wind.

Thankfully it didn’t rain on us that day.  I would not have loved being up there in rain, but even on a windy cloudy day, this view was impressive!

7. Rockefeller Plaza

I’ve seen Rockefeller Plaza on t.v. so many times, we had to see it.  The ice skating rink is right smack in the middle of all of these buildings.  That’s New York City.  You walk through all these building then all of a sudden a special gem is nestled among them. (I felt the same way about St. Patrick’s Cathedral.)

We went the Monday after Easter and there were beautiful flowers and twirling characters promising Spring while we walked among them in our Winter coats.

8. Times Square

 

We went to Times Square during both the day and night.  It gave a different vibe each time.  Seeing the New Year’s Eve ball was cool.  Once again, this was a place I’ve seen on t.v. for many years.  Imagining the street with wall to wall people as it is on New Year’s Eve made me a bit claustrophobic but on a Tuesday in April it provided entertaining people watching, lots of billboard watching, shopping and lunch.

9. Chelsea Market

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I originally wanted to go to Chelsea Market to see the High Line.  The High Line is an old railroad track turned attraction which boasts amazing wildlife and city views.  Unfortunately, it was too early in the year for wildlife and was a bit cold for an evening stroll.

Chelsea Market, yet again, was something to experience.  I’ll admit that I’m not a huge shopper.  Despite that, we enjoyed wandering the shops of this unique market.  We spent time in a cute book store, enjoyed the local artists creations and designs while wandering past countless food options.

10. Artichoke Pizza

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Although Chelsea Market had endless choices for food, we always end up at pizza.

I had heard about Artichoke Pizza and it was close to Chelsea Market so we stopped in and got a cute corner table.  They played great music, had a cool laid back vibe and most importantly had phenomenal pizza.  The slices were huge, filling and so good!  We had to try New York pizza and I’m so glad we tried Artichoke!

 

Overall, 3 days can’t even touch the amount of things to do in NYC.  We ate, we walked, we toured and we enjoyed!  We got rained on, blown over and saw a bit of sunshine.  I found New Yorkers to be pleasant and didn’t feel unsafe as I had been warned by so many.

It was a place with endless options, lots of energy and history.  I can see why people exclaim “I Love New York” because I loved New York.

*Tip: Be ready for weather.

 

 

Miles for Migraine Race in Cleveland 2018

Please donate and join the team! Every dollar counts! It’s so important to do your part 🙂

My Migraine Life

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On Sunday, April 21st, 2018 I am lacing up my sneakers and participating in the first annual Miles for Migraine Walk/Run Cleveland, OH. This event benefits a cause that effects so many and has a mission that is particularly close to my heart and my family.

Miles for Migraine is a non-profit organization whose mission is to improve the lives of people impacted by migraine, and their families through social awareness, community and supporting research efforts for a cure. Migraine is not “just a headache”. Migraine is the second leading cause of “Years lived with Disability”.  In the United States, more than 37 million people have migraine. Everyone either knows someone who has migraine or struggles with migraine themselves.

This year I’m so excited to announce that Miles for Migraine is coming to Cleveland!  In the past, I have raised money and participated virtually.  Here’s how we…

View original post 90 more words

Headache Hat and raising money for Migraine and Headache Disorders

 

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Holding hands with my support animal and icing with Headache Hat.  2 of my favorite ways to battle Migraine.

 

This year I am participating in the Miles for Migraine walk.  I have done it virtually in the past and will physically be there this year in Cleveland and Cincinnati!  While not everyone can participate by being at the race, anyone can donate virtually.

Please consider helping me raising money for  improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine.

Donate Now

I’d like to give a SPECIAL THANKS to my favorite Migraine product and friend The Headache Hat.

With all of the products I have reviewed and used, the Headache Hat is by far the best!!!  I am not an affiliate of this product yet tell everyone about it!  My recommendation is purely for my love of this ice cube head band.  I have several in my freezer, both standard and halo.  I use one every night and often change it out in the middle of the night requiring more.  I am not sure how I ever lived without the Headache Hat!  I used to pile on bags of wet ice or lay on stiff ice packs leaving me immobile and uncomfortable.  I now can ice and move around my house if needed.

The Headache Hat is so special because:

  1. The individual ice cubes give an exact pressure point pressure and freeze. It is  individualized for each differing Migraine and headache pain.
  2. It is dry and stays in place.  No more waking up soaking wet and laying completely still without movement.  I can sleep with it and often make breakfast or lunches while moving around the kitchen.  I also wear in in the car!
  3. It comes in standard and Halo sizes.  The Halo size is loved by children for fevers, bumped heads and more.
  4. It’s not just for Migraine sufferers.  I recommend every house having one (or many like me!)
  5. The creator of the Headache Hat is concerned about making a difference and helping those of us suffering.  She is also a headache and Migraine sufferer.  She works really hard, while having a family of her own, and is changing the world for sufferers one hat at a time.
    • She has recently been seen on Kelly & Ben winning the Good Housekeeping seal contest and HSN selling out!

Not only does she sell an amazing product, advocate and help so many, but she has been so generous in donating to MY MIGRAINE LIFE team for Miles for Migraine.

Thank you HEADACACHE HAT!!!  You have changed my life and will continue to change the lives of so many more.  Your generosity is more than appreciated!  Your hard work and product  is felt deeply in my heart and daily on my head!

Want to make a difference?  Please donate

Able to walk or run in Cleveland April 21, 2018?  Please join my team

 

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This is the face of Migraine.  No make up, puffy face, pained.  While my children both had the flu and I had a Migraine, this is the way we watched our Disney movies that day.

 

 

 

National Puppy Day 2018

Happy National Puppy Day!  Every year I post a picture of my dog.  She is my nurse, my therapy, my medicine and my first child.  As I was locked in my room with a 3 day Migraine from hell, guess who slept beside me?  Guess who kept me company in the middle of the night while the pain was raging?  My dog.  She’ll always be my puppy!  My almost 13 year old puppy!

 

Here’s more on her endless love and support:

How we doctor my dog and she doctors me

My dog with Migraine. Therapy, service, comfort, support and treatment. Pets can help heal

National puppy day 2017

Rockwell Pets Pro review of natural dog shampoo

National dog day

Miles for Migraine Race in Cleveland 2018

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On Sunday, April 21st, 2018 I am lacing up my sneakers and participating in the first annual Miles for Migraine Walk/Run Cleveland, OH. This event benefits a cause that effects so many and has a mission that is particularly close to my heart and my family.

Miles for Migraine is a non-profit organization whose mission is to improve the lives of people impacted by migraine, and their families through social awareness, community and supporting research efforts for a cure. Migraine is not “just a headache”. Migraine is the second leading cause of “Years lived with Disability”.  In the United States, more than 37 million people have migraine. Everyone either knows someone who has migraine or struggles with migraine themselves.

This year I’m so excited to announce that Miles for Migraine is coming to Cleveland!  In the past, I have raised money and participated virtually.  Here’s how we did last year.  This year my goal is $400 in honor of beginning my 4th year writing My Migraine Life (In June) and taking steps toward a better Migraine Life for myself and millions of others. This is Cleveland’s  inaugural race!  I’m so excited to be there in person and walk my miles along side so many migraine supporters.

Please consider joining the My Migraine Life team or donating and participating virtually.  Getting to my goal will bring us all closer to an improved Migraine Life.

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Why is Healthcare so Unaffordable?

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This week I was notified that my copay for an already expensive medication was raised.  I was supposed to receive the treatment and was not properly notified of the change so my much needed appointment was postponed for 2 weeks. I spent the day on the phone with my specialty pharmacy.  I  was sobbing as I gave her my credit card information.  The woman on the phone’s voice actually started shaking too because she felt so bad that I required a medication that has such an obviously outrageous cost. The price of ONE medication is more than I make in a YEAR!  I basically work 3 full time jobs.  I’m a full time mom, a teacher and a blogger/freelance writer.  All of these take long strenuous hours and get paid very little for the time and passion I put behind them.

My last conversation with my neurologist was her saying “If you don’t take more medication you aren’t going to get better.”  I wanted to say to her, “If I took all the medication you want me on, my Migraine may go away but the side effects would make me a different person and I’d need to sell my house to afford the 5 other meds I require.”

The costs of medications are insane and the question remains for not only me, but everyone: WHY IS IT NOT AFFORDABLE TO EVERYONE?

Missing my appointment caused me to cry all day!  The crying spiraled into a migraine cycle that I now am existing in and quite possibly can suffer with for the next 2 weeks.  With a neurological disease, everyone is so different.  Medication should be affordable to all with options to receive treatment that works for each individual.  I can’t tell you the amount of money that I’ve spent on meds I’ve filled and ended up throwing away.

When there is no cure, how are any of us supposed to figure out how to feel better if we can’t afford it?  We can’t work enough hours to pay for it and the lack of proper medication makes us miss work or be unable to work because of it.  The result of missing my appointment has and will continue to make me miss days, if not weeks, of my life suffering A LOT.  I’m talking about a level of pain that I hope many people will never understand. This requires me to take more medication (which in reality doesn’t fix it), which also costs a lot, struggling through side effects and other issues.

HOW CAN WE GET BETTER IF WE CAN’T OBTAIN OR AFFORD PROPER TREATEMENT FOR EACH INDIVIDUAL PERSON?

Yet again, I spent all my free time this week on the phone!  Check out how this isn’t the first time….I spend my free time talking to insurance, pharmacies and doctor’s offices

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*Note: I typically don’t speak about the specific medication I am on because I don’t want it to be confused by advice.  Everyone’s results, side effects and costs are all different.  We all need to do what we think is right for our journey.