Medication doesn’t work every time in the same way

The thing about migraines is that there is no cure and there is no medicine that works for everyone.  The even crazier thing is, there is not a medicine that works every time even if you are lucky enough to find something that works for you.  It’s constantly a guess and check and experiment game.

When it comes to matters of the brain, it’s hard to keep on top of it.  My entire life I have been on dozens of medicines and sometimes they work, sometimes they don’t.  Or they work then all of a sudden my body changes and it doesn’t.  The game is never ending and I’ve been on the losing end most of the time.

Here’s the most frustrating part…..sometimes everything stops working.  I got home from vacation expecting a migraine from coming from the Caribbean to settle back into a polar vortex.  So I tried to be prepared.  I saw my neurologist the day before we left and got refills on my prescriptions so I could battle when I got home.

The day I got home I filled them and spent $670 dollars.  I almost fainted on the spot!  So I now have had a migraine for 8 days ranging from a 5-9 pain scale at all moments and everything has stopped working!!!!

I have taken everything I can without causing rebound headaches or overdosing and nothing has given me a second of relief. 670 dollars and nothing works! I’m doing everything naturally that I know of also and everything has stopped working.  I threw my son’s birthday party by staggering around with my Headache Hat and sunglasses on while we set up. The party was amazing and my son will never have any idea that his mom woke up with her right eye swollen shut from the pressure and pain.  I hope one day my kids will look back and not see me as weak but see how strong I am to fight.  By about day 4 or 5 the mental fight with my migraine began.

The sadness of missing out on life, the loneliness of laying in bed, the anxiousness of not knowing when it will increase or if it will ever decrease, the longing to do simple painless things, the nonstop pain of doing pretty much everything, and mostly the exhaustion.  I’m really good at faking it in front of other people, but the second I’m alone all I can do is collapse.  What do I do with my free time?  I curl up in a cold dark room.  So what do I do?  What do you do when everything stops working?

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9 thoughts on “Medication doesn’t work every time in the same way

  1. Hi Sarah! I mostly curl up in a ball, lie quietly in a dark room & wait for meds and sleep (I hope) to bring relief. And then I wait.
    One day, when your kids are older, they’ll think back & be amazed by your incredible strength & love and that you were able to be there for them as much as you were. (That level of strength & loyalty only can come from a mother!)
    I too have to fight the sadness. I suppose we all do to some extent. But missing birthdays & Thanksgivings & weddings & funerals & work & family activities & friends, and life, … does take its toll. I feel isolated and lonely and anxious and exhausted and I long for a better time when it’ll improve, if only a little.
    I do believe it’ll get better, if only for a short time, but I’d love to get a bit of a break from it. In the meantime, I try to quietly grin and bear it. I’ll say an extra prayer for you today, that you get relief from the relentless pain and that tomorrow will be a better day. Linda

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    • Thank you for your kind words and encouragement. I hate that others suffer as I do but am comforted that I’m not alone or crazy like I thought I was for so long. I will also pray for you and the others who suffer like we do

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  2. It is the toughest thing that it is still so badly understood. Migraine, describes a condition that behaves differently in so many people, with different triggers, symptoms and therefore best treatments. Even in one person our migraine behaviour can change and our response to medication can change, leaving us exposed to everything we fear. I hope you get a new strategy to fight it sorted quickly.

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    • Thank you! What you said is true. It’s like a cat & mouse chase. Right when I think I’m feeling better my body & it’s reaponses change. I just keep trying new things & hope to be better. I encourage others to do the same

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  4. Reblogged this on My Migraine Life and commented:

    I’m having a really rough week! I traved this weekend, last weekend & will be again next weekend. Along with this, the weather has been really tough & once again I have PMS. I have never been able to control this combination. I am really down this week. Cycles are so hard to break and I’m feeling down. It reminded me of this post…..I just keep reminding myself, I’ve gotten through it before, I’ll do it again.

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