Miles for Migraine Cincinnati Results 2018 race/walk

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This weekend, I was part of Miles for Migraine race in Cincinnati.  It was a beautiful and warm day filled with love, support and a group of people fighting stigma and raising money for Migraine and headache disorders.

 

 

The race raised $3,550

Team My Migraine Life raised $567.37.  Thank you to all those who donated.

We were the top team!!! I’m so proud of us 🙂

The day began with fighting a 3 day migraine that I had traveled with but had huge inspiration to make it to the event.  When I got there, I was surrounded with some migraine advocate powerhouses.
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Michelle Tracy, Migraine Warrior, represented the INVisible project with her smiling face and sharing her inspiring personal stories. She also spoke to the group about being a patient advocate and how we can all be one ourselves.

Not only is Michelle an amazing and strong advocate but she was brave enough to sing the National Anthem to begin our race.  She has a strong voice as a patient and as a singer!

Katie Golden, GoldenGraine, brought sparkle to all of our days.  She is the senior contributing writer to the INVisble Project and a fierce advocate.  I can’t possibly list all of the things she is doing for the migraine and pain community but check her out and follow along.  She was kind enough to run the race with my daughter and then touch up her sparkles…..because there is no such thing as too much glitter!

IMG_3555 I once again gave my patient perspective.  I was shaky and read my speech because I could not guarantee that I could string my words together and make sense.  I felt so proud that I stood up to the pain and was able to put a face on what migraine disease really looks like.

We also heard from Dr. Andrew Hershey, the chair and director of the division of neurology at Cincinnati Children’s. He is a professor of pediatrics and neurology.

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After that, we walked.  At the Miles for Migraine events you are welcome to run and be a fierce competitor, walk and enjoy your team or stay at the tents to mingle or relax.  It’s all about building community, moving how you can and raising funds so we all can live a healthier life.

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The best part of the day was being with the ones that I love.  Spending a morning for a good cause with good people is always a great way start to the day.  I woke up in pain, shaky, sick and not sure if I could make it.  Thanks to effective medication, endorphins and a bit of luck, I was able to enjoy the day.  I walked with some of our best friends, my husband and our mini me’s.  It was a day that we  plan on turning into a tradition.

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Wondering about the Brain Hat? The Brain Hat Society is for people with migraine, their caregivers, friends and family while recognizing  their heroic efforts.  If you raise $50 you can be a member.  Purple is for migraine sufferers and pink is for the caregivers and loved ones.

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Thank you to all that supported and continue to fight.  We are fighting not just for ourselves but for future generations.

IMG_3582Also, a BIG thank you to the sponsors and these hard working ladies!  Shirley Kessel is the Miles for Migraine president while Katie MacDonald oversees operations.  They work tirelessly on bringing these events to more cities and raising funds to benefit so many.

Check to see if Miles for Migraine is coming to your city and how you can participate virtually!

 

 

 

 

 

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The Start to Migraine Awareness Month and Miles for Migraine walk/run in Cincinnati

Happy June!  Today marks the first day of Migraine Awareness Month!!!

I know a lot of you are thinking, “But how can I help?”  This month I will be sharing information and advocacy opportunities from a variety of migraine organizations that I am involved with and follow. I can’t wait for you to get involved also.

The simplest way to participate is sharing information, following on all social media and virtually “making some noise.”  Share with your followers how you suffer, important information and help break down the stigma.

To start the month out, I’d like to ask for your donation and participation with an organization that you’ve heard me talk about…..Miles for Migraine.

Miles for Migraine vision is ” to create some “big noise” in the migraine community and raise awareness that migraine and headache disorders are more than “a headache”. We are making great strides by growing our signature event, the Miles for Migraine 2-Mile walk, 5K/10K run; and by expanding our newer programs –  a day camp for adolescents who have  chronic migraine, and our adult seminar series”

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On June 10, the Cincinnati walk/run will be at Otto Armleder Memorial Park

How can you participate?

There are a few ways to support:

  1.  Join My Migraine Life Team.  If you live close enough to walk/run, please join my team!  I’d love to see you there.  Go here and join team C0F0B55B-F24F-4204-9928-E32EFED679D8.JPG
  2. If you’d like to donate and support my fundraising efforts but won’t be able to make the walk, go here and donate A9A554EE-1C69-463A-9846-ACD72F425E9D
  3. If you are unable to walk/run but want to participate.
    1. If you are local and want to participate but are unable to walk/run we’d love for you to come anyways!  Join my team and come to meet all the wonderful advocates and migraine supporters.  There will be a quiet tent to rest and you are not obligated to walk.  Your donation and presence is much appreciated!  We are all doing what we can do and any effort are spoons well spent. 30A7FB9F-D0E4-41D7-A0E1-9DA39E84FE15.JPG
    2. If you don’t live locally but would like to support.  Please donate to my page and participate virtually.  You can walk and raise money without being at an event.  Join the team and ask others to help raise funds.
    3. Ask a friend, co worker or loved one to help you raise money.  You’ll be surprised at how many are affected by migraine and are happy to help make a difference.
  4. If you want to donate but don’t have the funds.  I totally get it.  Between the price of medications and therapies and difficulty with keeping a job, it can be even harder to donate.  Remember that $10 makes a difference.  Each dollar goes a long way and any donation takes us a step closer to helping many!
  5. If none of these are an option, please share this post.  Sharing is caring and if you can’t support maybe a friend can.  It’s all about not being alone and spreading a message.  Everyone can share!

Please consider donating to My Migraine Life team and my personal fundraiser page.  Follow along on all social media and share, share, share this month.  Teaching your audience/social media followers how strong you are to be fighting migraine for yourself or for others will go really far.

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Miles for Migraine race/walk Cincinnati 2018 with My Migraine Life

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Please join us on June 10, 2018 for the inaugural Cincinnati Walk/Run

Date/Time: Sunday June 10, 2018 8:30 AM
Location: Otto Armleder Memorial Park
Distance: 2 Mile Walk / 5K Run / 10k Run

 

“Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun walk/run events, typically 2 mile walk and 5k and 10k race to raise money for migraine research. We also host youth camps for kids and teens impacted by migraine or other headache disorders.”

This years Cleveland’s race was such a success and I hope to make Cincinnati’s inaugural walk/run the same.  Here’s some highlights:

To sign up to the Cincinnati walk/run please follow these directions:

Follow this link

If you are donating:  click on  “donate to participant” on left side bar

  • Look up name: Sarah Rathsack and donate to my page 🙂

If you are registering: “view teams” on left side bar

  • Join team My Migraine Life

If you donate or register, in general, I will not get credit for my referral.  Miles for Migraine tracks their top fundraisers and referrals.  Please donate to my page or join team My Migraine Life to give our great community a voice and show how  united My Migraine Lifers can be.  Whether it’s for you, a family member, a friend or co workers.  You are fighting and walking to make a difference.  Your support is so appreciated!!!!!!

 

*Please notify me if you have donated or joined our team!  I would like to thank you personally and know that your donation has gone to my page and team.  I really am grateful for your consideration!!!

A9A554EE-1C69-463A-9846-ACD72F425E9DThank You

 

Why is Healthcare so Unaffordable?

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This week I was notified that my copay for an already expensive medication was raised.  I was supposed to receive the treatment and was not properly notified of the change so my much needed appointment was postponed for 2 weeks. I spent the day on the phone with my specialty pharmacy.  I  was sobbing as I gave her my credit card information.  The woman on the phone’s voice actually started shaking too because she felt so bad that I required a medication that has such an obviously outrageous cost. The price of ONE medication is more than I make in a YEAR!  I basically work 3 full time jobs.  I’m a full time mom, a teacher and a blogger/freelance writer.  All of these take long strenuous hours and get paid very little for the time and passion I put behind them.

My last conversation with my neurologist was her saying “If you don’t take more medication you aren’t going to get better.”  I wanted to say to her, “If I took all the medication you want me on, my Migraine may go away but the side effects would make me a different person and I’d need to sell my house to afford the 5 other meds I require.”

The costs of medications are insane and the question remains for not only me, but everyone: WHY IS IT NOT AFFORDABLE TO EVERYONE?

Missing my appointment caused me to cry all day!  The crying spiraled into a migraine cycle that I now am existing in and quite possibly can suffer with for the next 2 weeks.  With a neurological disease, everyone is so different.  Medication should be affordable to all with options to receive treatment that works for each individual.  I can’t tell you the amount of money that I’ve spent on meds I’ve filled and ended up throwing away.

When there is no cure, how are any of us supposed to figure out how to feel better if we can’t afford it?  We can’t work enough hours to pay for it and the lack of proper medication makes us miss work or be unable to work because of it.  The result of missing my appointment has and will continue to make me miss days, if not weeks, of my life suffering A LOT.  I’m talking about a level of pain that I hope many people will never understand. This requires me to take more medication (which in reality doesn’t fix it), which also costs a lot, struggling through side effects and other issues.

HOW CAN WE GET BETTER IF WE CAN’T OBTAIN OR AFFORD PROPER TREATEMENT FOR EACH INDIVIDUAL PERSON?

Yet again, I spent all my free time this week on the phone!  Check out how this isn’t the first time….I spend my free time talking to insurance, pharmacies and doctor’s offices

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*Note: I typically don’t speak about the specific medication I am on because I don’t want it to be confused by advice.  Everyone’s results, side effects and costs are all different.  We all need to do what we think is right for our journey.

Local research for Chronic Migraine now enrolling-qualify and receive payment that varies by study

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A new trial is being done to help medical research for migraines.

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Chronic migraine headaches can interfere with work, family, and leisure. Medications may not manage the pain, nausea, dizziness and other symptoms associated with migraines. This trial may help people suffering from chronic migraines maintain their lifestyle better. Please share this study with your community and help medical research for migraines.

Please complete the online questionnaire to see if you are eligible for the trial

Learn more about this trial on the sponsor website.

If you are not familiar with clinical trials, here are some FAQs:

Clinical trials are research studies to determine whether investigational drugs or treatments are safe and effective for humans.  All new investigational medications and devices must undergo several clinical trials, often involving thousands of people.

Why participate in a clinical trial?

You will have access to new investigational treatment that wouldn’t be available to the general public only upon approval.  You will also review study-related medical care and attention from clinical trial staff at research facilities.  Clinical trials offer hope for many people and an opportunity to help researchers find better treatment for others in the future.

“My Relationship to CureClick” (full-disclosure link): http://curec.lk/1Gb4toG

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Time for another GIVEAWAY!

It’s time again for another GIVEAWAY!  In honor of Migraine Awareness Month I am giving away a beanie cap cover for the Headache Hat ice pack.  I, personally, have 3 Headache Hats so I never will be without one when I need it (which is pretty much daily!)    Now the maker of The Headache Hat has provided a beanie cap to wear over the ice pack in order to run errands, drive, or be out while discretely wearing the Headache Hat.  If you don’t own a Headache Hat and would like to buy one, you can go here and use MYML code at checkout for a discount!  If you know someone who loves the Headache Hat like I do and think they’d like to win, please pass it along to them.  It’s a short giveaway since the month is ending soon, so enter NOW!  The giveaway will run from 6/26/15 12:00am through 6/30/15 12:00am.  You can have an entry for each of the following: following on twitter, like My Migraine Life’s facebook page, and/or comment on this post saying where you plan to wear the hat.

Click on the link below for your chance to win!!!!!!!!!!!!!!!!!!!!!!!!!!!

a Rafflecopter giveaway

Make sure to clicked on the link & click that you visited in order to be enrolled. . Good luck & thanks for following 

All in Cleveland, All in Migraine, All in Hope

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While watching the Cavs last night I had no choice but to compare Cleveland sports to my migraines.  I did this not because watching them gives me a headache and nauseous, although it has, but because it gives me hope.  When the TV flashed, “last time Cavs won a championship…NEVER” my heart pounded and head filled with thoughts of possibilities.  With the theme of Migraine Awareness Month being hope, I had no choice but to make a comparison.  Watching losing teams year after year can be defeating just like losing year after year of having Chronic Migraines.  I continue to change my line up and think positively but more often than not a season slips through my fingers.  This year we had hope.  I find it ironic that I started my blog a year ago and my fight changed.  When LeBron came back, things changed.  LeBron embarrassed me, angered me, and frustrated me in the past.  All of these feelings I have felt with my disease.  It’s like, just when we had something going, it left and practically laughed in my face.  I’ve been there, done that more times than I’d like to remember with my pain.  But then he came back and I was optimistic, excited, and encouraged.  Once again, all the things I have felt with blogging, new medications, surgery, and more.  So the finals came and we got injured.  They said we couldn’t do it.  Then another hit and we were down another man.  Our team battled.  Just like any good athlete and true sufferer knows, you fight.  With these changes came strength from the bench that was unexpected.  I have amazed myself at the times I thought I was completely down and found another source of strength to get me through.  In the game last night, I had hope.  Hope that the “never” would turn into the “now.”  The thought of winning a championship that had never been won gave me hope that maybe my battle wouldn’t always be a loss.  History would be or could be changed.  Things would be exciting and new and different.  The hope of something different for Cleveland gave me hope for something different in myself.  I know it sounds crazy, but seeing something many thought impossible become possible is inspiring.  Until the last second of the game, those boys fought.  They were down but they were not out and never gave up.  Even though we lost, they taught us a good lesson.  There is hope, the impossible is possible or at least something that can be within grasp and to never give up.  They may not have won, but not every victory is a championship.  Hope is looking forward.  #AllinClev #AllinMigraine #AllinHope