Make Your Vote Count Towards Migraine

Only a few days left…..

I have been nominated  for WEGO Health Awards. “The WEGO Health Awards program was created to recognize and honor those making a difference in the online health community. It provides the opportunity for community members to thank and support the Patient Leaders and patient-centric initiatives they admire.”

I need your help to endorse my nominations.  I’ve been nominated for

 

Please go to this link and click the orange thumbs up “endorse My Migraine Life” below my picture. You can endorse each category.

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I work so hard year round to advocate and increase migraine awareness.  Your endorsement is your way of participating and inspiring my efforts.

Don’t forget to share your endorsement on social media to encourage your followers to do the same.

Thank you!

 

 

 

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WEGO Health Awards Nominee for Advocating and Influencing the Migraine Community. Endorse Now

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I am excited to announce that I have been nominated for the 2018 WEGO Health Awards!!!!!!! I have been nominated for “best kept secret” “best in show Instagram” “best in show community” and “best in show facebook” WOW!!!!!!!!

WEGO Health is a mission-driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics.
The WEGO Health Awards were created to celebrate those who tirelessly support the mission of WEGO Health: to empower the patient voice. With 16 award categories, the WEGO Health Awards are the only awards across all conditions and platforms, that recognize the over 100 thousand inspiring Patient Leaders who raise awareness, share information, and support their communities – but often without recognition.
It is a huge honor to be part of such a great group of nominees!  Thank you SO much for your nominations!  Now, I need your help…..
I’m looking to my incredibly supportive network to help endorse me for these  awards. It is easy to endorse and only take seconds of your time!

Click here to be taken to my WEGO Health Awards profile where you can click “Endorse” under my nominee photo (thumbs up!)

ENDORSE HERE!!!!!!!!

If I have ever supported you, made you laugh, or inspired you to keep fighting – please consider endorsing me for this award.

Elle Magazine’s Gross Portrayal of Migraine

This morning I woke up with a migraine.  I wake up with a migraine EVERY morning.  I went to bed last night with a migraine because I go to bed EVERY night with migraine.  I stumbled downstairs to get my coffee on this rainy morning hoping that my pain would lessen and shakes would dissipate so I could drive my kids to swim lessons.  After swim lessons, I face over 30 shots at my neurologists office just so I can wake up tomorrow to be able to go to the grocery store.   It’s not a glamorous life.

When I opened my social media, I saw this…….”All the pretty people on Instagram are doing the migraine pose.”  They have since changed it to “headache pose” in their title but the content still exists.

https://www.elle.com/beauty/a21947206/what-is-migraine-pose-instagram/

During Migraine Awareness Month, THIS is the reason we all need to advocate.  I scrolled through the article and was shocked to see the popular models Gigi and Bella Hadid and Kylie and Kendall Jenner.  Why am I surprised?

  1.  Over my last vacation I read Believe Me by Yolanda Hadid.  Yolanda is the mother of Gigi and Bella and wrote a book about her arduous journey with Lyme disease.  Bella and her brother also discovered that they also have Lyme.  The book was honestly written about the life of an invisible illness sufferer and the long, winding, painful, expensive, loss filled road.  I plan on writing a review of the book and all of the impactful things that I related to as a migraine sufferer.
    1. Now, here stands her 2 daughters who fight by her side for Lyme Disease totally degrading and glamouring MY invisible illness.  All the pretty people are doing it…..””Migraine Pose,” coined by makeup artist Nam Vo, involves posing with one or two hands pulling your face up by your temples as if you had a, well, migraine.”  Where’s the “Lyme pose”?  Migraine is not beautiful, it’s a neurological disease!
  2. Kendall and Kylie Jenner are not known for their responsible modeling choices.  They seems to be ok with offending people to make a dollar but their own sister Kloe has often been heard to speak of her migraine.  Once again, even family is insensitive to the extreme nature of this debilitating disease.

During Migraine Awareness Month (#MHAM) so many of us are striving to make the face of migraine seen.  Elle magazine is NOT showing the face of migraine.  When I get a migraine above level 7, I throw up violently, loose speech and cognition, loose ability to walk and often crawl to the bathroom.  I can’t read, drive, be in light, have sound in my presence, experience muscle spasms, have sensitivity to touch and pass out from the head pain.  THAT is what migraine looks like.  Not a pretty model “showing off her manicure.”

I saw that migraine is trending in ALL the wrong reasons!

Here are a few examples of my migraine pose….(In reality my level 10s will never be photographed because they put me in grave danger.)

Did you ever notice how pets sense pain?  Humans blatantly disregard each other while no explanations need to be made to a dog.  I’m not showing off my manicure or pulling my face taught towards the light to look beautiful.  I’m surviving.  I’m using my best friend and therapy as a way to fight the pain.

But for some reason THIS isn’t trending.  I wonder why?  Pain isn’t pretty and shouldn’t be portrayed as a glamorous way to live.

Comment below with your migraine pose and share this.  THIS is what should be tending! SHARE that migraine is not beautiful.

Miles for Migraine Cincinnati Results 2018 race/walk

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This weekend, I was part of Miles for Migraine race in Cincinnati.  It was a beautiful and warm day filled with love, support and a group of people fighting stigma and raising money for Migraine and headache disorders.

 

 

The race raised $3,550

Team My Migraine Life raised $567.37.  Thank you to all those who donated.

We were the top team!!! I’m so proud of us 🙂

The day began with fighting a 3 day migraine that I had traveled with but had huge inspiration to make it to the event.  When I got there, I was surrounded with some migraine advocate powerhouses.
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Michelle Tracy, Migraine Warrior, represented the INVisible project with her smiling face and sharing her inspiring personal stories. She also spoke to the group about being a patient advocate and how we can all be one ourselves.

Not only is Michelle an amazing and strong advocate but she was brave enough to sing the National Anthem to begin our race.  She has a strong voice as a patient and as a singer!

Katie Golden, GoldenGraine, brought sparkle to all of our days.  She is the senior contributing writer to the INVisble Project and a fierce advocate.  I can’t possibly list all of the things she is doing for the migraine and pain community but check her out and follow along.  She was kind enough to run the race with my daughter and then touch up her sparkles…..because there is no such thing as too much glitter!

IMG_3555 I once again gave my patient perspective.  I was shaky and read my speech because I could not guarantee that I could string my words together and make sense.  I felt so proud that I stood up to the pain and was able to put a face on what migraine disease really looks like.

We also heard from Dr. Andrew Hershey, the chair and director of the division of neurology at Cincinnati Children’s. He is a professor of pediatrics and neurology.

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After that, we walked.  At the Miles for Migraine events you are welcome to run and be a fierce competitor, walk and enjoy your team or stay at the tents to mingle or relax.  It’s all about building community, moving how you can and raising funds so we all can live a healthier life.

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The best part of the day was being with the ones that I love.  Spending a morning for a good cause with good people is always a great way start to the day.  I woke up in pain, shaky, sick and not sure if I could make it.  Thanks to effective medication, endorphins and a bit of luck, I was able to enjoy the day.  I walked with some of our best friends, my husband and our mini me’s.  It was a day that we  plan on turning into a tradition.

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Wondering about the Brain Hat? The Brain Hat Society is for people with migraine, their caregivers, friends and family while recognizing  their heroic efforts.  If you raise $50 you can be a member.  Purple is for migraine sufferers and pink is for the caregivers and loved ones.

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Thank you to all that supported and continue to fight.  We are fighting not just for ourselves but for future generations.

IMG_3582Also, a BIG thank you to the sponsors and these hard working ladies!  Shirley Kessel is the Miles for Migraine president while Katie MacDonald oversees operations.  They work tirelessly on bringing these events to more cities and raising funds to benefit so many.

Check to see if Miles for Migraine is coming to your city and how you can participate virtually!

 

 

 

 

 

Miles for Migraine race/walk Cincinnati 2018 with My Migraine Life

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Please join us on June 10, 2018 for the inaugural Cincinnati Walk/Run

Date/Time: Sunday June 10, 2018 8:30 AM
Location: Otto Armleder Memorial Park
Distance: 2 Mile Walk / 5K Run / 10k Run

 

“Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun walk/run events, typically 2 mile walk and 5k and 10k race to raise money for migraine research. We also host youth camps for kids and teens impacted by migraine or other headache disorders.”

This years Cleveland’s race was such a success and I hope to make Cincinnati’s inaugural walk/run the same.  Here’s some highlights:

To sign up to the Cincinnati walk/run please follow these directions:

Follow this link

If you are donating:  click on  “donate to participant” on left side bar

  • Look up name: Sarah Rathsack and donate to my page 🙂

If you are registering: “view teams” on left side bar

  • Join team My Migraine Life

If you donate or register, in general, I will not get credit for my referral.  Miles for Migraine tracks their top fundraisers and referrals.  Please donate to my page or join team My Migraine Life to give our great community a voice and show how  united My Migraine Lifers can be.  Whether it’s for you, a family member, a friend or co workers.  You are fighting and walking to make a difference.  Your support is so appreciated!!!!!!

 

*Please notify me if you have donated or joined our team!  I would like to thank you personally and know that your donation has gone to my page and team.  I really am grateful for your consideration!!!

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Is it OK to Get a Medal When You Don’t Win but Feel Like a Winner?

Another year, another Miles for Migraine walk completed.  Last year I participated virtually and received a medal for my participation.  This year, I was at the race and again received a medal.  I wasn’t a winner in either race (although I was the top fundraiser and team My Migraine Life was also so I consider that a win!!!).

It begs the question, are participation trophies ok?  Here is my answer 

What do you think?

Patient Perspective on My Migraine Life

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I was asked to tell my patient perspective  on having migraine at the Miles for Migraine inaugural walk/run in Cleveland.  In the speech, I named my support system “My Migraine Lifers.” I feel honored to be a voice for all of us who live our Migraine Lives and all of those who fight by our sides.

Thank you Katie.  And thank you Miles for Migraine for putting on this event.  It feels so good to be among such migraine fighters.  Migraines are typically fought in the dark and in the quiet. Today we are stepping out and putting a face on what we often fight behind closed doors and I’m so excited to be here.

I think it’s amazing how all of our stories are so different, yet we have some things in common:

I’ve thrown up 3 times on my way to work with a migraine and had my boss tell me he “had a headache too.”

I know I’m not the only one who fights this stigma.

I’ve lost friendships and missed events both big and small.

I know I’m not the only one who hopes for better understanding.

I’ve spent endless money on medications, products, therapies and anything that promised the smallest amount of relief.

I know I’m not the only one looking for lifestyle changes and better treatment options.

I’ve been judged and by no one more than myself.  The guilt, sadness, anxiety, “what ifs” add up for us all.

But This is why we are here today. To break down the stigma, to help others and to say thank you to all those who support us.

I’ve had Migraines since I was 5.  I don’t have many stages of my life that I don’t recall how they affected me.  Both of my grandmothers and my mom suffered from Migraine.  We had an idea of what it may be but had no idea of the difficult journey that lay ahead.

After years of searching for why I felt so awful, Dr. Reed was the first doctor to make me feel like I wasn’t crazy.  She didn’t promise a cure, because there isn’t one.  But she promised to help and join my fight and her whole office did.

After all of these years, I have learned to be thankful every day.  I have gained gratitude and there is nothing I am more grateful for than “My Migraine Lifers.”

I write a blog named “My Migraine Life.”  I tell my stories, share information and bring together a community of My Migraine Lifers.  With more than 36 Million people suffering from Migraine, everyone knows someone in their life who suffers.

My life feels like it is dictated by my migraines but I live a happy, blessed life because of all of these people.

It’s the group I have gathered over all of these years and the ones who suffer and fight right beside me.  It’s my babies, my husband, my parents, my sister and nieces, my friends, my coworkers, my doctors and the migraine community.  They are here with me today and if you look around they are here with you.

My advocacy hasn’t decreased my migraines or made them better.  I would love to tell you something different.  But what it has done, is brought a clearer picture of how if effects my life, how it affects others and how we can work together to be happier and healthier.

We all struggle, we all need understanding, and we all need support.

Thank you all for being here today on this really cold morning.

It’s not just about me or my fellow migraine warriors.

It’s about ALL of us.

I appreciate you all for taking steps in YOUR Migraine Life and supporting Miles for Migraine.

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With Dr. Reed, a neurologist who fought by my side for many years.  She was instrumental in getting Miles for Migraine to Cleveland and was asked to speak as a doctor’s perspective.