Shades for Migraine World Solidarity Day, June 21st

FullSizeRender.jpg

 

Tomorrow is Migraine Solidarity Day, June 21st.

“Shades For Migraine is a campaign to promote migraine awareness and create a viral buzz for a disease that affects over 1 billion people worldwide….

To participate, people will wear their sunglasses where they normally wouldn’t on Migraine Solidarity Day, June 21, even indoors when possible!  They prove it by posting photos on social media with the hashtag  #ShadesForMigraine. “

My Migraine Life is a proud participating blog and I hope you participate this year!

Watch for advocates outside the Today Show!

Here are some examples:

On left: I am wearing my Axon Optics indoor glasses.  I was working in the office with a skylight and needed protection from the computer glare and sunlight.  Check out my affiliate link to learn more

On right: I am wearing my Theraspecs indoor glasses and headed to a wedding.

For me, anytime is a good time to wear my #shadesformigraine

Any one can participate.  Last year, my best and favorite support jumped in on the fun.  She is missed every second of My Migraine Life.  Her support was priceless!

IMG_0112 (1)

 

 

Advertisements

Why I’ve joined up with Miles for Migraine and Increased My Advocacy

I recently got a flashback of one of  my first posts ever.  It was super exciting to see how far I’ve come and how I’m meeting my goals from  4 years ago.  This post explains how I want to help children and be part of a charity that raises funds for migraine and lowers stigma.

I’m proud to say I’ve found it and I AM saying “Wow, look how far we’ve come.”  If you see me post about Miles for Migraine it’s because I feel strongly that it is making a financial and community difference.

After the 2 races we  participated in, Team My Migraine Life raised $2,192.91.

I was asked to give my patient perspective at both races.  I also donated 9 inches of my hair between this time!  We  raised funds, raised awareness and lowered stigma for migraine.  My children were at both events to hear me speak and are not only learning about their mom at each event but how it affects so many others!  We will be the ones to make change and we will be the ones to pave the way for a less painful stigmatized future.  I’m so proud!

Check out a post I wrote in the first week ever of blogging…..

Miles for Migraine Cincinnati Results 2018 race/walk

cinciposter2018

 

This weekend, I was part of Miles for Migraine race in Cincinnati.  It was a beautiful and warm day filled with love, support and a group of people fighting stigma and raising money for Migraine and headache disorders.

 

 

The race raised $3,550

Team My Migraine Life raised $567.37.  Thank you to all those who donated.

We were the top team!!! I’m so proud of us 🙂

The day began with fighting a 3 day migraine that I had traveled with but had huge inspiration to make it to the event.  When I got there, I was surrounded with some migraine advocate powerhouses.
IMG_3575

Michelle Tracy, Migraine Warrior, represented the INVisible project with her smiling face and sharing her inspiring personal stories. She also spoke to the group about being a patient advocate and how we can all be one ourselves.

Not only is Michelle an amazing and strong advocate but she was brave enough to sing the National Anthem to begin our race.  She has a strong voice as a patient and as a singer!

Katie Golden, GoldenGraine, brought sparkle to all of our days.  She is the senior contributing writer to the INVisble Project and a fierce advocate.  I can’t possibly list all of the things she is doing for the migraine and pain community but check her out and follow along.  She was kind enough to run the race with my daughter and then touch up her sparkles…..because there is no such thing as too much glitter!

IMG_3555 I once again gave my patient perspective.  I was shaky and read my speech because I could not guarantee that I could string my words together and make sense.  I felt so proud that I stood up to the pain and was able to put a face on what migraine disease really looks like.

We also heard from Dr. Andrew Hershey, the chair and director of the division of neurology at Cincinnati Children’s. He is a professor of pediatrics and neurology.

IMG_3563
After that, we walked.  At the Miles for Migraine events you are welcome to run and be a fierce competitor, walk and enjoy your team or stay at the tents to mingle or relax.  It’s all about building community, moving how you can and raising funds so we all can live a healthier life.

IMG_3564.jpg

The best part of the day was being with the ones that I love.  Spending a morning for a good cause with good people is always a great way start to the day.  I woke up in pain, shaky, sick and not sure if I could make it.  Thanks to effective medication, endorphins and a bit of luck, I was able to enjoy the day.  I walked with some of our best friends, my husband and our mini me’s.  It was a day that we  plan on turning into a tradition.

IMG_7810-COLLAGE

Wondering about the Brain Hat? The Brain Hat Society is for people with migraine, their caregivers, friends and family while recognizing  their heroic efforts.  If you raise $50 you can be a member.  Purple is for migraine sufferers and pink is for the caregivers and loved ones.

IMG_3571.jpg

Thank you to all that supported and continue to fight.  We are fighting not just for ourselves but for future generations.

IMG_3582Also, a BIG thank you to the sponsors and these hard working ladies!  Shirley Kessel is the Miles for Migraine president while Katie MacDonald oversees operations.  They work tirelessly on bringing these events to more cities and raising funds to benefit so many.

Check to see if Miles for Migraine is coming to your city and how you can participate virtually!

 

 

 

 

 

The Start to Migraine Awareness Month and Miles for Migraine walk/run in Cincinnati

Happy June!  Today marks the first day of Migraine Awareness Month!!!

I know a lot of you are thinking, “But how can I help?”  This month I will be sharing information and advocacy opportunities from a variety of migraine organizations that I am involved with and follow. I can’t wait for you to get involved also.

The simplest way to participate is sharing information, following on all social media and virtually “making some noise.”  Share with your followers how you suffer, important information and help break down the stigma.

To start the month out, I’d like to ask for your donation and participation with an organization that you’ve heard me talk about…..Miles for Migraine.

Miles for Migraine vision is ” to create some “big noise” in the migraine community and raise awareness that migraine and headache disorders are more than “a headache”. We are making great strides by growing our signature event, the Miles for Migraine 2-Mile walk, 5K/10K run; and by expanding our newer programs –  a day camp for adolescents who have  chronic migraine, and our adult seminar series”

cinciposter2018

On June 10, the Cincinnati walk/run will be at Otto Armleder Memorial Park

How can you participate?

There are a few ways to support:

  1.  Join My Migraine Life Team.  If you live close enough to walk/run, please join my team!  I’d love to see you there.  Go here and join team C0F0B55B-F24F-4204-9928-E32EFED679D8.JPG
  2. If you’d like to donate and support my fundraising efforts but won’t be able to make the walk, go here and donate A9A554EE-1C69-463A-9846-ACD72F425E9D
  3. If you are unable to walk/run but want to participate.
    1. If you are local and want to participate but are unable to walk/run we’d love for you to come anyways!  Join my team and come to meet all the wonderful advocates and migraine supporters.  There will be a quiet tent to rest and you are not obligated to walk.  Your donation and presence is much appreciated!  We are all doing what we can do and any effort are spoons well spent. 30A7FB9F-D0E4-41D7-A0E1-9DA39E84FE15.JPG
    2. If you don’t live locally but would like to support.  Please donate to my page and participate virtually.  You can walk and raise money without being at an event.  Join the team and ask others to help raise funds.
    3. Ask a friend, co worker or loved one to help you raise money.  You’ll be surprised at how many are affected by migraine and are happy to help make a difference.
  4. If you want to donate but don’t have the funds.  I totally get it.  Between the price of medications and therapies and difficulty with keeping a job, it can be even harder to donate.  Remember that $10 makes a difference.  Each dollar goes a long way and any donation takes us a step closer to helping many!
  5. If none of these are an option, please share this post.  Sharing is caring and if you can’t support maybe a friend can.  It’s all about not being alone and spreading a message.  Everyone can share!

Please consider donating to My Migraine Life team and my personal fundraiser page.  Follow along on all social media and share, share, share this month.  Teaching your audience/social media followers how strong you are to be fighting migraine for yourself or for others will go really far.

cropped-cropped-copy-of-white-and-pink-strikeout-cosmetics-beauty-logo-12.png

BLOG

FACEBOOK

INSTAGRAM

TWITTER

cropped-copy-of-white-and-pink-strikeout-cosmetics-beauty-logo.jpg

 

 

Is it OK to Get a Medal When You Don’t Win but Feel Like a Winner?

Another year, another Miles for Migraine walk completed.  Last year I participated virtually and received a medal for my participation.  This year, I was at the race and again received a medal.  I wasn’t a winner in either race (although I was the top fundraiser and team My Migraine Life was also so I consider that a win!!!).

It begs the question, are participation trophies ok?  Here is my answer 

What do you think?

Cleveland Migraine Walk/Run Results and Accomplishments 2018 with Miles for Migraine

 

This weekend was Miles for Migraine inaugural walk/run in Cleveland.  It was a great success due to all of the generous donations!!!  Thank you for all of the support!

The donations

CBE0E76C-E5F5-49B5-B84F-DA5C32C61F72

At time of post…

Total donations: $3,831

My Migraine Life team: $1,519

Due to everyone’s support, my team was the top fundraisers and I was  acknowledged as the top person to raise money for this event.  Once again….THANK YOU!!!

Announcements, doctor and patient perspectives

 

 

Before the race, Katie MacDonald, our coordinator, gave a speech reminding us all why we were there.

Dr. Reed followed her opening announcements by expressing how she is motivated as a neurologist and fellow runner.  She was instrumental in bringing Miles for Migraine to Cleveland and sets the example of how a doctor can make a difference inside the office and takes running strides towards making a difference outside of it.  I have seen first hand what she can do as a doctor.  She was my neurologist for close to 10 years and her office saw me through a wedding, 2 children, many difficult years of stressful work and beyond.  It was a special day to be honored next to someone who has fought along side me all those years.

Then I gave my patient perspective.  I was asked to speak because of the influence I have had with My Migraine Life.  I started writing my blog less than 4 years ago and could not have dreamed where it would take me.  It feels so good to be helping people all over the world through my blog while helping people in my community and making connections in person.  It felt great to thank all those who have inspired me and made my quality of life possible.  Without them helping me, I could not help others.

What makes you go the extra mile? The walk that turned into a run for some. #MoretoMigraine

 

 

A board was set up to say why “you go the extra mile.”  The response turned into beautiful family pictures and amazing encouragement.

We were all set to walk the race and the younger members of our group decided to run.  Thank you to my sister and mom who then unexpectedly ran also.  I hung out with my friends and their stroller and took a lovely walk through the chilly yet scenic woods.

My Migraine Life team!!!

IMG_2890

Regardless if we walked or ran, we were all winners!  My Migraine life team was a true example of how I am surrounded by love and support.  My boss and her family (husband who fights post head trauma migraine), my childhood friend (who manages sports induced and trigger oriented migraine) and her adorable family, my mom (migraine fighter for herself and me), sister, nieces, and brother in law (who don’t have migraine but certainly have stepped up to help me in every aspect of my life), my husband (who has never wavered in his fight for me) and my babies (the reason I won’t allow defeat).

I’m  not sure, but I think we also had the biggest and cutest team also!!!!

Thank you again to all of those who supported Miles for Migraine.  Thank you to my fellow walkers/runners.  Without you, I wouldn’t be able to work, live, survive or smile without you.  You are all great lights in my life!

To those of you who donated and shared on social media….thank you!  A lot of you I don’t see often.  I know you wonder, pray, and support me from afar as I do you.  I could feel the love pouring in whether you were there or not.  It was a cold day in Cleveland but the sun shone on the event with warmth and light due to you all!

Miles for Migraine Race in Cleveland 2018

IMG_2379

On Sunday, April 21st, 2018 I am lacing up my sneakers and participating in the first annual Miles for Migraine Walk/Run Cleveland, OH. This event benefits a cause that effects so many and has a mission that is particularly close to my heart and my family.

Miles for Migraine is a non-profit organization whose mission is to improve the lives of people impacted by migraine, and their families through social awareness, community and supporting research efforts for a cure. Migraine is not “just a headache”. Migraine is the second leading cause of “Years lived with Disability”.  In the United States, more than 37 million people have migraine. Everyone either knows someone who has migraine or struggles with migraine themselves.

This year I’m so excited to announce that Miles for Migraine is coming to Cleveland!  In the past, I have raised money and participated virtually.  Here’s how we did last year.  This year my goal is $400 in honor of beginning my 4th year writing My Migraine Life (In June) and taking steps toward a better Migraine Life for myself and millions of others. This is Cleveland’s  inaugural race!  I’m so excited to be there in person and walk my miles along side so many migraine supporters.

Please consider joining the My Migraine Life team or donating and participating virtually.  Getting to my goal will bring us all closer to an improved Migraine Life.

Share

and

Join Today!!!