Axon Optics and Shades for Migraine

FullSizeRenderJune 21st is World Migraine Solidarity Day! It’s a great social media campaign that is meant to raise awareness for Migraine and what better way to express it than in SUNGLASSES?!

With that said, let’s talk about my favorite indoor and outdoor glasses!!!!!  I am an affiliate of Axon Optics because I truly wear their glasses and love to spread the word of how they help.  If you order their glasses I will receive a small compensation for my recommendation.  Thank you!

“Axon Optics has utilized the latest research exploring the pain pathway associated with migraine and photophobia to develop the SpectraShield FL-41 migraine glasses lens. These lenses may help to reduce exposure to certain types of artificial light, particularly blue light and green light, which may exacerbate light sensitivity in those who suffer from migraines.   Both indoor migraine glasses and outdoor migraine sunglasses are an option.” Axon Optics

 

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Wearing my indoor glasses on a partly cloudy dinner date on the patio

 

Personally, I use the indoor glasses almost everyday.  I have both the indoor and outdoor and love them both.  I recommend going to the website and looking what may be best for you.

The reason I love the indoor glasses is the tint.  I am a teacher and mom so I spend a lot of time in fluorescent lights.  I teach in them, go grocery shopping in them and make dinner in my own home with them.  On cloudy days, I wear my indoor glasses outdoors because the glare still hurts my eyes yet regular sunglasses are too dark to wear.  I can not recommend enough Axon Optics Migraine Glasses!!!!

Check me out on: Instagram, facebook, and twitter

I’ll be wearing my Axon Optics for the Shades for Migraine campaign and more.  Remember to participate in the Shades for Migraine campaign and tag me in your sunglasses #shadesformigraine

If you’d like to purchase a pair of Axon Optics, they are generously offering My Migraine Life readers a discount for Migraine Awareness Month!  They are a company that truly cares about migraine sufferers and not just selling a product.  Their customer service is amazing, their return policy is comforting and the founders are people invested in helping!

Use code mymigrainelife to receive 15% off your order

You have nothing to loose but light sensitivity pain!

World Migraine Solidarity Day

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Time to launch the first annual World Migraine Solidarity Day campaign!

The Association of Migraine Disorders (AMD) have initiated the Shades for Migraine campaign and website.  This campaign is intended to be an annual event.   

“So….on Wednesday, June 21, let the world know about it!  Let the millions of sufferers know that you care… that you know they aren’t faking an illness… that you know much more needs to be done to find a cure and give them relief… that you want to help give migraine disease the prominence it deserves.” https://www.shadesformigraine.org/

Participating is simple…

Post a photo of yourself (and friends/co-workers) wearing your Shades for Migraine on social media using the hashtag #ShadesForMigraine.”

1.   Post a photo of yourself wearing sunglasses

2.   Hashtag the photo with #shadesformigraine

3.   Challenge at least 2 other people to do the same

4.   Don’t forget to wear your shades ALL DAY long on June 21st, the longest day of the year.

5.   Tag @mymigrainelife so I can support and see those shades!

 

They just need to be visible…hanging around your neck, hanging from your shirt or propped on your head are options if you can’t wear them on your face the entire day. Wear them indoors and in places where people usually don’t wear sunglasses.  Be silly. Wear goofy ones if you dare. Let them make a statement…  Start a conversation…

 

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Migraine Awareness Band Giveaway!!!

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This week I will be doing a *giveaway* of 2 Migraine Awareness bands.  The official color of Migraine and Headache Awareness Month is purple.  These bands are a perfect complement to anything you are wearing and promote conversation and ways to spread awareness.

The contest runs 6/2/2017 (12am) through 6/10/2017 (12am)

You MUST:

Comment on this post and

Like My Migraine Life facebook page

(please do this through rafflecopter link below)

Additional entries:

Follow twitter page

Tweet about the giveaway

Follow on Instagram

*Please share*

 

 Enter Here: Rafflecopter giveaway

themigrainecuase band

No purchase necessary.  US residents only.  This promotion is in no way sponsored, endorsed or administered by, or associated with Facebook, twitter or instagram. You understand that you are providing your information to the owner of My migraine Life and her social media and not to them.

Migraine and Headache Awareness Month 2017

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Migraine and Headache Awareness month begins today!  I will fully admit that I may be a bit behind on posting due to a cycle of migraine that just will not go away!  I will be participating and challenging myself each day to do some kind of advocacy for migraine and headache awareness.

Day one is simple:

I’m asking you to share this post and invite others to follow:

My Migraine Life

Facebook

Twitter

Instagram

 I think you will be shocked to see who suffers from migraine and headache disorders.  I can’t tell you how many people I have run into that say, “I don’t suffer like you, but I do get headaches or migraines in my own way……”  We all suffer differently but can learn so much from each other.  By others following they can learn from my experiences and I can learn from theirs.  Supporters (parents, friends, co workers, bosses, neighbors) will learn how to help a loved one and understand the depths of migraine and headache disorders. 

Knowledge is power and following will give you added power to fight!

This month My Migraine Life will be giving you opportunities to:

·         WIN a giveaway

·         Fundraise for migraine and headache disorders

·         Learn new information

·         Find and receive ways of support

·         Make some social media “noise”

Some events allow you to spend your money on fundraisers or products that help sufferers.  Some events don’t require money and only ask for your participation.  Some events are to teach you while others are to support you.  There is a variety of ways to make Migraine and Headache Awareness Month a success.

 

So first things first…….follow and share on all social media to get as many involved as possible.  Together we can make a difference! 

Thank you!!!!!

 

 

 

Chronic pain is too much for too long and too often

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The last 3 weeks I have been in a migraine cycle from hell. Hell is the only place to describe it. I suffer from chronic migraine and even this rattled me. Here’s the thing I’d like to tell you about chronic pain, it’s too much for too long and too often!

You never get used to pain. I have found ways to mentally deal with it better, to alternatively treat it more naturally and ways to adapt my life but the reality is it hurts….a lot. With my migraines, I get insane pain (on all sides) that resonate throughout my entire body like a lightning bolt that never goes away. I throw up constantly (well, my body tries but at this point my stomach clenches so hard to keep any food in me that it’s basically violent painful heaves each time I sit up.) I have auras that consist of black dots, lines, zigzags, white light flashes and tunnel vision. I clench my teeth/jaw, fists, toes and thrash my body to the point I bruise. Light and sounds puts me at risk of passing out. The list of pains goes on and on and on while the minutes, hours, days and nights pass by.

When I was in labor, my nurse was able to tell me “Your contraction is at its worse, it’s getting better and going now.” The biggest battle besides the pain is not knowing how long the migraine will last. With this last cycle, I had points that I did not see the light at the end of the tunnel. The fear of living at a level 8/9 for the rest of my life was and is my reality. After an unending migraine, I don’t remember ever feeling better, can’t do anything to find relief and no one can tell me it’s going to be better soon because they don’t know that.

In comes the anxiety and depression that most chronic migraine sufferers experience. Anxiety about doing something to make it worse, about how long it will last, about missing out on life and about what will be missed in the future. Depression about being locked in a dark room alone for hours and feeling so alone. Alone. Alone to fight my pain because no one else can help. Feeling worthless and sad that this is my life and the way it will always be. Sadness from the things I can’t do and won’t ever do. The feeling of pain being the only feeling that I feel because nothing else can enter my mind is exhausting and unfair.

In fact, everything is exhausting and unfair. Even once the pain lowered, I was exhausted. Exhausted from fighting the pain and little sleep after days and days in bed. Looking at social media was too trivial. I can’t stand seeing moms complain about their kids when my children are my inspiration for everything and give me a reason to fight! Those moms are so ungrateful. In fact, the only reason I got out of bed was to go see my daughter for one hour at her school for an end of the year reception. I had spent the entire morning heaving from pain and used every bit of my energy to be there. One hour. One hour is where I spent all my energy in one day just to make my daughter smile and to make me feel human while other women are complaining that their kids are being kids….ugh, exhausting! (*Note:  I’m planning on writing a series on how my children are shielded from these episodes….**spoiler alert** lots of help and preparation!)

Once I emerge from a cycle, I always find it difficult to enter back into the real world. The world outside of my pain, outside of my room, outside of my head. I look in the mirror and don’t even recognize myself. My face is broken out and I look so weak and pale. My list of to dos is a mile long and the cognitive damage and physical weakness make it difficult to multitask like I normally do. I have trouble with just one task and focus on that alone. The anxiety stays with me because I never know when my migraine will return. I walk on egg shells and give myself credit for doing even the smallest things.

Chronic pain is too much for too long and too often. Before this 3 week cycle, I had made it 4 days at a level 5 pain level. This was good, but 4 days since my last major migraine? It’s not like I got food poisoning and thought, “Wow, glad that’s over, I’m never eating there again.” I’m going through this dramatic traumatizing event and thinking, when will it come back? Not if, when. Will it be tomorrow once I eat a normal meal again, will it be when I leave the house, will it be when my children scream and my stress raises, will it be when I try to get my list done and push myself too hard, will it be in a few days with my menstrual cycle, will it be when the weather changes AGAIN, or will it be for no reason? It will always come back….and soon.

I questioned if I should write this post. I like to be optimistic and show my readers hope. But the reality is, I suffer. I suffer a lot. Hopefully I help many with writing MyMigraineLife but there is no cure and I live with that every day. This is not a post to make you feel bad but to remind you that you are not alone. That maybe someone has it worse and to show gratitude for everything you can do today. To remind you that you never know what someone is battling with and to be gentle and kind. And to remind you that someday it will get better. My better does not mean I’m ok, it just means I’m out of my dark room today and I’m writing! That’s better! I still have a long way to go and am very aware that tomorrow it could be much worse. All I can hope is that it gets better…..

EnviroKlenz review, products for chemical sensitivity and allergies

As a follow-up to Migraine and Allergies I have changed a few things in my house to lessen our allergens.

·         For the summer, we will keep the windows closed and use the air conditioning

·         We take our shoes off when entering the house and wash hands immediately

·         When coming in from playing outside, my son showers and changes his clothes before bed and nap

·         All beds are covered with allergen pillow cases and bed sheets

·         We installed a new HVAC air cartridge

I was given the HVAC air cartridge as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

 

EnviroKlenz Natural Cleaning Products

The first thing that struck me about EnviroKlenz, was the variety of products I can use in my home.  They are geared for chemically sensitive like myself, along with those with allergies and suffer from respiratory problems like my son.  I have a lot of problems with many cleaning agents that trigger my migraines through smell and harsh chemicals and generally look for natural cleaners and eco-friendly cleaning products. I don’t like my children and dog smelling fumes so EnviroKlenz sounded like what I need for my house.

Being very sensitive to odor, a mom and pet owner I was interested in their odor neutralizer and eliminator.  The neutralizer is a green cleaning product that can be used for cleaning and removing vomit odor, spills and odors from carpets and solid surfaces, liquid spills in cars, pet mess, pet urine and more. 

I was also drawn in by the laundry enhancers. EnviroKlenz works along with normal detergent to enhance its ability to remove tough odors but contains no masking agents or fragrances.

The product I chose to review was the HVAC air cartridge. I was most excited about how the air cartridge removes VOCs and odors from my home. 

What are VOCs?

“Volatile organic chemicals (VOC) encompass a wide range of compounds. These chemicals range from slightly hazardous organic solvents up to highly toxic and corrosive acids. They can be found in most industrial and household settings, and can pose a serious hazard for a prolonged period of time in an indoor environment. In addition to organic compounds, there are also a wide range of additional toxic volatile compounds which are commonly found in the home.”

EnviroKlenz HVAC filter destroys noxious chemicals and odors.  It is a non toxic air cleaning product.  Their HVAC filter neutralizes odors and VOCs preventing them from returning into indoor air space.  Their products are made from metal oxides which are considered safe compounds found in safe consumer and food products.

I feel at ease knowing my HVAC air cartridge is providing me with clean air.  At home, I want my children to be their safest and healthiest being I control their environment and what’s in it.  With EnviroKlenz I have taken one step closer to doing so.

I recommend EnviroKlenz for anyone looking for odor elimination products, air purifier for allergies and eco-friendly home products. 

 What do you do to lessen the allergens in you home?

Check out their products here:  EnviroKlenz

*This post contains affiliate links which mean that if you purchase a product from clicking here I will be given a small compensation.  Thank You!  Enjoy!

EnviroKlenz Non Toxic Cleaning Products

Disney World. My migraine

 

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This picture is intentionally blurry.  I may have been smiling but this is a small sample of the blur I was looking through that day.

 

There is no way I expected to make it three days without getting a migraine.  My day at Magic Kingdom had been perfect and low pain which meant for sure I was getting one the next day.  Sure enough, I woke up sick.  I immediately took my rescue meds, drank water and rolled around my bed in pain and anger.  I was really angry and not willing to miss the day that I had planned for my family. 

So when it was time to go, I loaded myself out of bed and got on the boat to Disney Springs.  With the experience I have, I had prepared our bag and stroller the night before and all my husband needed to do was get them dressed and lead us all to the dock.  At Disney Springs we got breakfast.  I sat outside of the busy crowded, loud, disorienting restaurant to save a table and hang my head in pain.  Everything around me was in slow motion and my body clenched.  I was barely able to stomach a sandwich and caffeine to hopefully speed up my meds. 

We next proceeded to the boutique in which my beautiful daughter would be turned into Cinderella.  As I approached, I  instantly felt fear of this magical place.  Picture a room filled with lights from every direction with air packed with hairspray, sounds of women talking in pitches I can only imagine a dog could hear and parent’s pushing you to get out of the way of their photo op.  Basically a Migraine’s hell.   I can still smell it just writing about it. 

As my son and husband were leaving to go to the Lego store,  my husband asked me if I was going to make it.  Let me tell you about the motivation of a stay at home mom watching her daughter turn into a princess.  My daughter had told me the day before that she wished on her “wishing star” that she could turn  into a princess.  I may not get money for what I do but watching my sweet girl’s wish come true is my salary. 

As I was very aware of the seats around me and garbage cans (I tend to throw up with my migraines) I decided to stay and immerse myself in the experience.  Let me tell you, if I had been one bit of a higher pain level I would have had to tap out.  Don’t think I’m telling you I can do anything if I’m motivated enough, but this was an exceptional occasion.  I should have been in bed and am not sure how I did it, to tell you the truth. 

Anyways, I decided to ask our “fairy Godmother” about some special occasions she has seen there.  She began to tell a story about an engagement but the story that moved me was this…...

A little girl Skyped with her father while he was deployed in Afghanistan so he could see her transformation.  I listened with tears in my eyes.  Tears of pain, tears of heartache for so many and tears of gratitude. 

I stood there with a smile on my face yet close to passing out and I thought of how thankful I was.  Yes, I was pained in every inch of my body yet I was thankful.  I was thankful to that dad, his daughter, her mother, and to everyone who sacrifices for our country.  I was thankful that I knew my husband and baby boy were safe next door.  I was so thankful to all of the men and women who put their lives on the line so I could stand there and watch my child’s wish come true.  It was a very profound moment to remind myself that my pain may have been all consuming but I’m not the only one suffering.  I think it’s a moment I will never forget!!!

So with this all said, let me say THANK YOU to all of the men and women in our armed forces.  Not only thank you to you, but thank you to your family and friends who also sacrifice while you protect us.  Thank you to generations past, present and future.  The job you do is something that is not acknowledged enough.  You allow the American dream and little girl’s wishes to come true.  Thank You!