Disney World. The bad

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Every good side has a bad side. I was happily surprised that I saw little bad while I visited Disney World.  The bad thing that I did see was ungrateful people.

My experience with meditation didn’t go well but something I find easy and beneficial to do every day is to show gratitude.  It comes easily being I have a disease that keeps me in a cold dark room and even the littlest bit of relief allows me to be grateful.

I also was a special education teacher for children with severe needs.   I can tell you that when you’ve worked with a child that is severely Autistic or is multiply handicapped you see the world in a different way.

So here’s the bad about Disney World….ungrateful adults.  I have always been able to work with difficult children because of the reminder that they don’t know any better.  I don’t give adults that benefit of the doubt.

As I was standing waiting for my family after a bathroom break (I told you we were hydrating!) I saw a most ungrateful man. He literally stopped in front of me and screamed at his daughter (or could have been his granddaughter, I couldn’t tell) about her band aid falling off her hand.

First of all, band aids fall off a moving hand.  Secondly, shame on him for yelling and embarrassing his daughter about such an insignificant thing.  As she hung her head I could feel the anger rise in me.

I texted my best friend and told her I considered tripping the man (hopefully scrapping his hand) and handing his daughter an extra band aid to put in her pocket.  I don’t go anywhere without band aids.  Kids fall and when they fall they need a band aid.  Even when there isn’t blood, sometimes a band aid just makes them feel better.

You know what doesn’t make them feel better, getting yelled at in a group of people.  How ungrateful!  He was worried about this tiny detail of his day and I am sitting there thinking of the Make a Wish family that had just walked by me.  I bet that family wasn’t worried about a band aid.  I bet their worries were real and powerful and that they would give anything to have their biggest problem be a band aid.  That family was smiling and laughing and  not worrying about such a small thing because they know BIG problems.  I wish that family could talk to that man and tell him about real anger.  Not anger at their child but anger at what they were suffering from.

Another time I saw the bad side of Disney was when we were on a ride. At one point the ride stopped and they made a statement about the ride stopping and that it would start again in a moment.  I heard a woman behind me groan and start loudly complaining about how she couldn’t believe it was ruining her ride.

It’s a funny thing about perspective.  My first thought wasn’t to complain it was to hope.  I sat there hoping that the boy I saw in a wheel chair with a feeding tube was being carefully wheeled onto the ride.  While this woman was complaining I was hoping that this sweet child would be able to experience the beauty and wonder of the ride that I was getting to enjoy.   While this woman was complaining with her working legs and loud mouth I would be interested to hear what that dad I saw pushing him would think.  I’m glad he couldn’t hear her and hope they got to enjoy!

Are these people bad people, of course not. I only heard and saw a small moment of their day.  No one is perfect and I ‘m sure they were dealing with their own issues.  Everyone has problems and everyone expresses them differently.  But from my perspective the bad thing about Disney is the ungrateful people.

I can’t go anywhere without negative people surrounding me and some days it bothers me more than others.  On a day that I felt OK and was literally looking to the sky being grateful for everything this world had provided me.  Then, I heard such nonsense of “band aid gate” and “let’s pause for a moment and complain.”

Let’s all show gratitude!

Part 3 of Disney World is coming.  You know it had to come…..the MIGRAINE!  This one has a great lesson.

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Disney World tragedy and lessons I learned

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This morning I awoke to read that a toddler had been dragged into the water by an alligator from a  Disney World hotel.  I am so sickened by this.  I am so sickened by so much in the news, in fact, that reading has been a daily painful experience.  This world is a scary, sick and unpredictable place.  Hold your loved ones close!  I pray for so many today for so many reasons.

When I went to Disney World last year, I had a profound experience having the good, the bad and a migraine.  Please read my 3 piece series on Disney World and all that I learned and came away with.

Disney World

Disney world: the good

Disney world: the bad

Disney World: my migraine

 

 

Wait, it’s November?

This is our family thankful tree. Each day was add someone we are thankful for.

I was really sick before, during and after Halloween (of course.) Then I spent the week getting myself back into the vertical world.  I woke up today and realized it’s November!  Last week we had beautiful weather and played outside and it didn’t feel like Fall until today.  Frost on the ground, pain all over, mental emotions a mess….yep, sounds like Fall turning to Winter.  So here we are and I haven’t written a post about being thankful.  I have seen people post what they are thankful for everyday, but that’s realistic this year.  So instead I’m going to ask for your help.  Tell me what you are thankful for and I will accumulate a list.  I will repost this list throughout the year to remind myself and you that even in the lowest times, being thankful may help.  So here is my post from last year.  I mentioned many people in my life that I am grateful for but please add to the list whatever makes you thankful.    I will also be adding to the list and trying to focus on things I am thankful for DESPITE migraines.  So many things are taken away because of my migraines and I want to somehow be thankful for things even though I suffer.  If you do not wish to have your “thankfuls” on the list, please let me know.  Otherwise, I’ll accumulate them and post once Thanksgiving is over.  Please share with your friends to participate.  So many people deal with their own demons and adding to the list may help them focus on something positive today.  Post on My Migraine Life facebook page, twitter or instagram.  I look forward to hearing what you are thankful for!

     Last year’s post

Nature brings hope. How exercise, walking, hiking and moving help Migraine

my hope in nature

my hope in nature

A place that gives me hope in nature is the woods.  We have an amazing park system around where we live and I love to take an afternoon hike.   It’s a place I love and am filled with hope.  If you ever come to Cleveland, visit the Metro Parks, you won’t be disappointed.  The last time I was in a migraine cycle I was down for about 3 days.  When I’m down, it’s a tough decision to lay around and suffer or push myself to get out and raise my endorphins.  I was at a level 6 or 7 which was better but still pretty bad. I decided to go to the parks with my family.  The temperature was pleasant and the best thing was the woods provided shade and a cool breeze that I breathed as deeply as possible.  My children, husband and dog always give me hope, but seeing them in nature calms me.  The picture above is one that I took simply while we were walking.  My husband to my left, my dog to my right and my beautiful babies in front of me.  It gave me such hope that things would be ok.  I was so grateful to be out of my bedroom and seeing the beauty in nature.  I was in so much pain that day, but my kids had no idea.  It reminds me that although I live in chronic pain, I hope to look back on my life and see the beauty.  This picture and the memories of that simple Saturday afternoon will not be remembered as pain, it will be remembered as hope.  I often look back at pictures and can tell you the pain level I was in that day.  But the events I remember as so much more.  Sometimes I have no choice but to miss life but when I can live it, I appreciate it all!

“The Migraine and Headache Awareness Month Blog Challenge is organized by the American Headache and Migraine Association.”

A small thing that brings hope with Migraine is you!

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I typically talk about the big things that give me hope. My children, husband, family, and friends just to name a few. But we all know it’s the little things that count too. The little things that give me hope are the people who are advocating for Migraines and Headache Disorders. When I first started blogging, I thought, “What if someone else is writing a blog about their migraines?” I thought it would somehow be a competition. I was completely wrong. The thing that I immediately learned about this community is that we are all fighting for the same cause and want similar things. To be better. Therefore, the more voices the better! With 37 million people suffering (and I can only guess that as a low estimate) more voices need to be heard. These voices are fighting congress, fighting school districts, fighting doctors, all while fighting a personal battle. It is really inspiring to see how one voice can bring so many together to hopefully bring big change. The funding is wildly lacking for research and there are people trying to make a difference. There are doctors trying to really educate while so many need up to date information. These people are moms, daughters, friends, cousins, sisters, warriors, and so much more. I think it’s easy to jump on a bandwagon that has been on a roll, but to build that bandwagon, get on and drive is a hard thing. So my little piece of hope is each person fighting Migraines and Headache Disorders and fighting for change. Thank you to all of you. You bring hope with a disease that can feel hopeless. You fight for me when I’m unable to fight for myself and I hope to fight and bring hope for you also. Sometimes small things can bring big HOPE.

Don’t forget if you’d like to win a free Migraine Buddy App ($2.99) for iOS go here and comment on the post to be entered. A winner will be chosen on Sunday.

“The Migraine and Headache Awareness Month Blog Challenge is organized by the American Headache and Migraine Association.”

Giveaway!!!!

I’m having my first giveaway and am excited to share with you!  The great people at Migraine Buddy have given me a code for a  Migraine Buddy app ($2.99)  to give away to one lucky iOS winner.  Don’t know what Migraine Buddy is?  Here’s my review.  I use the Migraine Buddy iOS version daily.  I learn about my migraine triggers, symptoms, reliefs and so much more.

To enter: Leave a comment below about what you hope to learn from Migraine Buddy (iOS).  Additional entries can be obtained by liking My Migraine Life Facebook page and following @mymigrainelife through Twitter

Giveaway time: begins 6/2/2015 12:00am (EST) ends 6/7/2015 12:00am (EST)

The winner will be chosen through rafflecopter

#migraine and #headache awareness month

Today’s MHAM Blogging Challenge is: Who Helps You Hope?: Which person in your life has helped you most to hold on to hope, despite your Migraines or Headaches and how?

I don’t have a single person who allows me to hold onto hope.  I have an entire army.  I am so grateful for them.  Read here about who and how

“The Migraine and Headache Awareness Month Blog Challenge is organized by the American Headache and Migraine Association.”

a Rafflecopter giveaway

Throwback Thursday “My dog, my nurse, my love”

Happy birthday Lucia

       Happy 10th birthday Lucia!

With the rumble of storms and plethora of things going on in my life I have been in a cycle of migraines that has me reeling.  Day after day after day of severe pain really messes with a girl’s mind.  But today the pain has broken and only a hangover remains.  I live to love another day and smile!!!  The sanity that I always have laying next to me is my dog.  Many of you know my great love for my Golden Retriever but yesterday was her 10th birthday and she laid next to me as always.  My kids were at my parent’s playing with their cousins (having no clue that I was at home in writhing pain.  Ahhh to be young and shielded).  I was able to join them for the cupcakes they made for her (actually for themselves but the gesture was nice) and sing to my oldest baby.  So for #Throwback Thursday, I’m dedicating this one to Lucia.  Happy Birthday my Golden ray of sunshine in the midst of my figurative and literal storm.

My dog, My nurse, My love!

*share a picture of your fur baby if they take care of you too!