Spreading Migraine Awareness through Children

My Migraine Life

Please watch this Utube video.

I am so proud of this girl for spreading awareness for Migraines and absolutely heartbroken that she needs to.  You see, I am that little girl.  A different time, a different generation, different pills but the pain is the same.  I had my first migraine attack when I was 5 and I am that 10% that suffered before age 12.  I remain feeling alone while millions of us suffer and so many take care of us.  I have fought the stigma all of my life feeling misunderstood and missing out on more events than I care to recall.  I wake up every day in pain and go to bed in pain.  I can’t remember a time that this wasn’t so.  When Lindsay held up the card that said “some will outgrow it”  I did a silent prayer that she would be one who did so…

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Straight Outta Spoons and Chronic Illness

straight out of spoonsThis weekend was my birthday!  What an amazing time it was!  My best friend sent me this tank and it’s a perfect way to describe me after the celebration.

After traveling, staying out late and having (gasp!) a few celebration drinks I was Straight Outta Spoons!  I just wish I could go through an event without being totally depleted.

With this said, I’ll use my spoons on family, fun and celebrations any day!  It’s the days that I use up my spoons for doing mundane things that gets me really frustrated.

Not familiar with the Spoon Theory?

Here’s how it applies to my life and explanation on how it may applied to yours.

Thank you for all the presents, texts, calls and social media messages.  I’m so lucky to have you all in my life and looking forward to another year filled with joy and discovery.

Last year’s birthday and migraine motivation

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This week is my birthday! As I looked back at where I was last year, I was struggling but happy. I’m about the same but can say I’ve seen growth. I strengthened my time management this year and really focused on doing things that make me happier and healthier.

I started a new job that inspires me to feel better, gives me a new sense of purpose and the people there make me smile and laugh.  Being a teacher and changing lives is very motivating and the families I work with are incredible!

My Migraine Life has done a lot of great things and I’m very proud of my blog being so unique and well received. I had never read a blog when I began this journey and I’m proud that I created this community and am helping so many in my own way.

Please endorse My Migraine Life for Wego Health Awards. It’s a nice thank you for all my hard work!  Just go to the link and scroll to the thumbs up!

Endorse

I still have a lot of “bad days” and feel better knowing that on my less painful days I’m helping and teaching so many.  I’m using my good days for the good and that is the best I can do.  On those bad days…..I’ll “just keep swimming!”

Last year’s birthday post!

Starting school, making friends and my hopes for my children’s future

As the school year begins, I have been thinking about my childhood a lot.  I actually have a friend who I have had since I was 5 and a neighbor that became family when I was in 4th grade.  Since then, I have gathered a great group that have made me who I am today.  My “oldest” friends are the ones who know a little piece of me that no one else knows does. They have been there since the beginning.

As the school year begins I think about how my children are starting their “beginning.”  When they go to school they hopefully will find forever friends like I did.  All too soon they will be listening to those friends more than they listen to me and that is terrifying.  Other influences will guide them through school, sports, nights out, big dances, academics and everywhere in between.

These are the people that they will laugh, cry, and grow with.  They will think that the world has ended with a break up and think that missing a party will ruin their lives forever.  They will lie to me, hide things from me, and grow in a blink of an eye.  I just pray that we have raised them well and that their choices in friends have had the same.

They are growing up in a world that is filled with so many more challenges than I ever had to face.  I think we are the first generation to say, it was easier when we grew up.  Social media didn’t run our lives.  Our bullies said it to our faces.  As cruel as it was, it wasn’t the massive amounts of people who can hide behind a screen to say words that crush someone’s soul.

Our football players fought with their fists.  Now they fight with guns.  I wasn’t fearful for my safety.  Columbine shook our lives with the unheard of massacre of many.  Now it’s a part of life that you can’t fly, go to school, the movies, work or a playground without being on high alert.

We didn’t sit at home searching the internet.  We were out riding our bikes and playing endless hours of baseball.  My neighbors watched me and an army of adults were in contact with my parents.  I was held accountable for my actions by everyone.

If I got in trouble at school, I would be sure to hear about it when I came home.  Being a teacher, my student’s parents would blame me for their child’s actions.  They had  little follow through with accountability thus raising an entitled generation with little remorse.

I trusted the teachers and coaches that I spent countless hours with to strengthen and make me a better person.  Are teachers even allowed to do that anymore, or do they just hand them standardized tests?

The only person taking pictures of me was taken by my mom to be put into a family album, not spread on the internet for the world to see.  I grew up with privacy and felt safe.  I have happy, happy memories of my adolescence but remember it not being easy.

My children’s lives will not just be uneasy, it will hands down to hard.  And as a mom I’m so worried about it all.  Right now their tiny hands fit in mine when we cross the street and I pick their play dates.

Some day they will be embarrassed of me and go places that I’m not sure exactly what that they are  doing.  At that point I will rely on the way that we have raised them and their  forever friends that they have chosen.

My babies will always be my babies and they will be thrown into a grown up world well before they will be ready.   As my daughter stands before me in her princess dress I can practically see it as a homecoming dress. I can only hope she wants a beautiful ball gown that makes her glow from the inside out instead of a skimpy dress that she feels appropriate in this overly sexualized world.

As my son runs around in his super hero shirt, I pray he will be safe and this world won’t need saving.  He thinks he can fly and has super strength.   He already has made everyone’s lives better that knows him.  I just hope his ambition and spirit never fades.

I see their innocent smiles and I just want to freeze these moments in time so I never have to see them cry.  I just want to hold them and keep them with me forever.  But I know I can’t do this.  I want and need them to find those forever friends to be something that I can’t.

I need my daughter to understand that although boys are great, every girl needs really good friends.  Men try their best to figure us out, but friends don’t need to.  They just get it!

Their friends will get them through things that really matter when they really matter.  I want them to accumulate all of the wonderful memories that I had and continue to have with my friends that I love so much.

I don’t feel old enough to say that I have friendships almost 30 years but I do.  I’m not sad about my age.  I am proud that I have achieved so much and created so many important relationships during this time.  I’m so happy that I am secure, confident, loved and stable in so many ways.

I no longer have people in my life that are unimportant and as a girl it takes a long time to be happy with yourself and I am.    Life can be so hard yet so wonderful.  I can just pray that my children find people to get through the hard parts of life that I can’t be there for and make the wonderful memories all that sweeter.

May they grow to be happy and healthy.  May they find forever friends who guide them to make good choices and as they guide others.  May they laugh and value people for who they are inside.  May they teach others while they learn so many lessons.   And please God, may they be safe!  As they leave my nest of safety I trust you will watch over them and that the good people of this world will do the same.

Living with pain haze, brain fog, mommy brain and Migraine

What story do you have about “pain haze” “migraine hangover” or “mommy brain”? I know I’m not the only one!

My Migraine Life

IMG_5495 (2) Sometimes, things just look a bit hazy

Call it mommy brain. Call it pain haze. When I have a migraine I’m a bit fuzzy to say the least.

I got a migraine after the 4th of July (which was not a surprise, I get a migraine at every holiday) that lasted a few days and was severe. I spent the remainder of my week recovering. So when I woke up again with another migraine I was totally frustrated.

My husband had left for a trip before I woke up and I went directly into survival mode. I took my meds, iced and drank coffee before my kids got up. By the time they got up, I was able to put on a happy face and told myself I was going to make it through the day and to keep on fighting. I talk to myself and my migraines a lot!

So…

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Miles for Migraine virtual walk and race dates

Race this weekend and more!
San Francisco-July 29
Washington, DC-October 7
Philadelphia-October 15
Virtual Race-Anytime!

My Migraine Life

miles for migraine swag

In June I did a virtual challenge to raise money for Miles for Migraine.  “Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun walk/run events, typically 2 mile walk and 5k and 10k race to raise money for migraine research. We also host youth camps for kids and teens impacted by migraine or other headache disorders.”

I made the goal of raising $300 for the 3 years I’ve been blogging and I’m happy to announce we met that goal and exceeded it!  Thank you to those who donated!  Migraine is terribly underfunded and every dollar goes a long way towards fellowship programs for training new doctors as well as research. THANK YOU! THANK YOU!

For those of you that missed the fundraiser and would like…

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Migraine Awareness ChronicAlly box to relieve, relax and enjoy!

This month I got my Limited Edition Migraine Awareness ChronicAlly box.*  During the month of June, Migraine Awareness month, the box was offered to support Migraine Research Foundation.  I had treated myself to a 3 month subscription for June, July, and August.  My birthday is in August so “Happy Birthday to me!”  It’s been fun to receive a package made for comfort, support and with love.

migraine chronically.jpgThe box had something to use in a variety ways for My Migraine Life.

It included:

A sleep mask to block out the light.

An organic essential oil and electrolyte spray for pain and migraine relief

Headache and migraine relief roller for pressure points

Shower fizzie with lavender, eucalyptus and peppermint

Meditation unscented soy candle

I love it!  I’ll use the products to sleep, take a bath & shower, on the go and at home.  They are great “allies” for my headache and migraine needs! Check out all ChronicAlly has to offer here*

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Don’t forget to endorse My Migraine Life for Wego Awards.  Please scroll down to the thumbs up and endorse for Best in Show: blog, Instagram, Facebook, and twitter.  Tweet and share on Facebook to let others know.  I appreciate you taking the time to say “Thank you!” and “Keep up the good work!”  It means a lot to be recognized for my hard work for the Migraine and Chronic Illness community.

 

*This post contains an affiliate link