My latest post was about Elle Magazine’s Gross Portrayal of Migraine. I awoke to find headlines trending and quickly typed my response. As the days grew, so did the controversy.
To all of those publications following and advertising the “Migraine Pose” let me tell you what a real migraine suffer looks like.
Last week I started my week with a migraine. I start everyday with a migraine so this was normal. On Tuesday, all I wanted to do was go to my daughter’s softball game. As a chronic sufferer I knew I needed to save my spoons (every ounce of energy I am given in a day). I laid in my bed for hour after hour in screaming pain. I laid in the dark, the quiet and alone. I sat missing my therapy and emotional dog after loosing her this summer. Let me further explain how an emotional dog has saved my sanity while fighting this debilitating disease.
That night I crawled, yes crawled, to my bathroom to brush my teeth and somehow get clothes on. I sat clutching the counter minutes before warm ups while my legs buckled underneath me and I was unable to go.
She hit her first home run that night!
Later in the week, I was throwing up too much to leave my house for a neurologist appointment for treatment. Your article states, “Anyone need Advil?” Advil, in fact, has never worked for me. I required so much over the counter medication in high school that it eroded my stomach lining and I began a cycle of medication overuse headache which often occur. “Medication overuse is the most common reason why episodic migraine turns chronic.”* I no longer use anything not prescribed.
The next day I had my appointments and had many many injections in order for me to possibly spend a day outside of my bedroom.
Here’s my #migrainepose #headachepose
At the end of the week, I threw a birthday party for my oldest child and was pretty sure I would be unable to attend. I didn’t go to the store until that morning and stopped twice while clutching my cart because the pain froze me in the aisles. I wasn’t stopping to pose.
Is it ironic that my week was defined by migraine? Was it a good story because it’s Migraine Awareness Month? The answer is NO. I live everyday, every week, every year of my life like this.
At first I was angry that a publication would be so irresponsible and that models would turn their backs on a disease they know first or second hand. Then I read the comments and was shocked at the in sensitivity and mostly lack of knowledge.
I saw someone respond with saying “Honestly guys life is not that serious I have had chronic migraines once a week every month…..” THIS got me infuriated! Even people who suffer from migraine still have so much to learn!
Here are some facts:
- Chronic Migraine is defined as 15 or more migraine days a month.
- Migraine is the 3rd most prevalent illness in the world.*
- More than 90% of sufferers are unable to work or function normally during their migraine.*
- In 2015, the medical cost of treating chronic migraine was more than $5.4 billion, however, these sufferers spent over $41 billion on treating their entire range of conditions.*
- Migraine affects about 28 million women in the U.S.*
- Migraine is most common between the ages of 25 and 55.*
- Isn’t this the demographic of Elle magazine?
*Thank you Migraine Research Foundation for your facts!
Call to action:
What can you do?
Sign the petition begun by my migraine pal Sarah at OM.
You can also contact them via twitter, instagram and emails. Check out Migraine Diva for more information
If someone hears a response from ANYONE I’d love to hear and see! Please pass it along to me.
Until then, please post your #migrainepose or #truemigrainepose on social media.
Show everyone what a real migraine face looks like and make it trending to bring awareness and real truth. With such a knockdown I’m hoping it will come back with publications telling stories of people like me, facts from creditable organizations like Migraine Research Foundation and headline teaching, uplifting and giving towards the migraine and headache community.
May Elle Magazine empower woman instead of stigmatizing them through their “migraine pose” turned “headache pose”