Straight Outta Spoons and Chronic Illness

straight out of spoonsThis weekend was my birthday!  What an amazing time it was!  My best friend sent me this tank and it’s a perfect way to describe me after the celebration.

After traveling, staying out late and having (gasp!) a few celebration drinks I was Straight Outta Spoons!  I just wish I could go through an event without being totally depleted.

With this said, I’ll use my spoons on family, fun and celebrations any day!  It’s the days that I use up my spoons for doing mundane things that gets me really frustrated.

Not familiar with the Spoon Theory?

Here’s how it applies to my life and explanation on how it may applied to yours.

Thank you for all the presents, texts, calls and social media messages.  I’m so lucky to have you all in my life and looking forward to another year filled with joy and discovery.

Wego Health Award for My Migraine Life

I’m so honored to be nominated for Wego Health awards!!!!!!!!

I have been nominated for best in show for blog, Instagram and facebook and twitter.

“WEGO Health is a mission-driven company dedicated to transforming health care by harnessing the experience, skills and insights of patient leaders.  The WEGO Health Awards were created to embody the mission of WEGO Health: to empower Patient Leaders. We connect with countless patient advocates, influencers, and experts who are helping others and transforming healthcare–often without recognition.  The WEGO Health Awards offers a way to introduce new Patient Leaders to the online community, and to allow network members the opportunity to recognize and say “thank you” to the leaders they look up to.”  Check them out at Wego Health

Now I need your help.

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Please go to: https://awards.wegohealth.com/nominees/4071

Simply go to the link and click the orange thumbs up to endorse My Migraine Life.  Use the pull down menu to endorse each award I am nominated for.

If you would like, you can tweet and support on facebook once you’ve done so to encourage other to do the same.

If you are reading this, chances are you have been touched by My Migraine Life in some way.  Please vote to show your support and give thanks for my advocacy work helping others.

THANK YOU!

 

World Migraine Solidarity Day

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Time to launch the first annual World Migraine Solidarity Day campaign!

The Association of Migraine Disorders (AMD) have initiated the Shades for Migraine campaign and website.  This campaign is intended to be an annual event.   

“So….on Wednesday, June 21, let the world know about it!  Let the millions of sufferers know that you care… that you know they aren’t faking an illness… that you know much more needs to be done to find a cure and give them relief… that you want to help give migraine disease the prominence it deserves.” https://www.shadesformigraine.org/

Participating is simple…

Post a photo of yourself (and friends/co-workers) wearing your Shades for Migraine on social media using the hashtag #ShadesForMigraine.”

1.   Post a photo of yourself wearing sunglasses

2.   Hashtag the photo with #shadesformigraine

3.   Challenge at least 2 other people to do the same

4.   Don’t forget to wear your shades ALL DAY long on June 21st, the longest day of the year.

5.   Tag @mymigrainelife so I can support and see those shades!

 

They just need to be visible…hanging around your neck, hanging from your shirt or propped on your head are options if you can’t wear them on your face the entire day. Wear them indoors and in places where people usually don’t wear sunglasses.  Be silly. Wear goofy ones if you dare. Let them make a statement…  Start a conversation…

 

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ChronicAlly Box for Migraine Awareness Month

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Here’s your opportunity to treat yourself to a box made just for migraine sufferers!

I am an affiliate of ChronicAlly Box which means if you purchase a box I will receive a small compensation for my recommendation.  Thank you!  I am pleased to tell you about this fabulous box made just for Migraine Awareness Month!

 

What is ChronicAlly Box?

“The FIRST ever Chronic Illness Woman & Girl’s Health & Beauty Subscription Box. We’re so glad that you’re here! Have a look around and pick out your favorite subscription! If you’re here buying a gift for a chronically chic loved one, be sure to check out our Gift Bar! Sign up for our mailing list to receive an email including a code to get 10% off for life!”

Purchase Here

“To celebrate & keep the Migraine Awareness going, ChronicAlly Box will be curating a LIMITED EDITION Migraine Awareness Box for July’s Delivery! We will be taking Migraine Box orders now until June 20th!”

“Purchase off of The Gift Bar, or if you already have a subscription, email us at info@chronicallybox.com, and specify that you want your July CAB to be this LIMITED EDITION Migraine ChronicAlly Box!”

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I reviewed a box for ChronicAlly and really loved it!!!  I’ve now purchased a Migraine Awareness Box and can’t wait to receive it in July.

 

Migraine and Headache Awareness Month 2017

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Migraine and Headache Awareness month begins today!  I will fully admit that I may be a bit behind on posting due to a cycle of migraine that just will not go away!  I will be participating and challenging myself each day to do some kind of advocacy for migraine and headache awareness.

Day one is simple:

I’m asking you to share this post and invite others to follow:

My Migraine Life

Facebook

Twitter

Instagram

 I think you will be shocked to see who suffers from migraine and headache disorders.  I can’t tell you how many people I have run into that say, “I don’t suffer like you, but I do get headaches or migraines in my own way……”  We all suffer differently but can learn so much from each other.  By others following they can learn from my experiences and I can learn from theirs.  Supporters (parents, friends, co workers, bosses, neighbors) will learn how to help a loved one and understand the depths of migraine and headache disorders. 

Knowledge is power and following will give you added power to fight!

This month My Migraine Life will be giving you opportunities to:

·         WIN a giveaway

·         Fundraise for migraine and headache disorders

·         Learn new information

·         Find and receive ways of support

·         Make some social media “noise”

Some events allow you to spend your money on fundraisers or products that help sufferers.  Some events don’t require money and only ask for your participation.  Some events are to teach you while others are to support you.  There is a variety of ways to make Migraine and Headache Awareness Month a success.

 

So first things first…….follow and share on all social media to get as many involved as possible.  Together we can make a difference! 

Thank you!!!!!

 

 

 

Migraine and Allergies


Several years ago, I had sinus surgery.  I have suffered from sinus issues and infections my whole life (just like Migraines).  After many sinus infections, this year I decided to look for more answers on why I’m still suffering so much from allergies.

The first doctor I went to I had seen as a child with the same issues.  He dismissed me after speaking at length because I was “too knowledgeable” about my migraines and triggers stating that allergy testing wouldn’t teach me anything.

I wasn’t surprised, so I moved on to an immunologist that a friend and fellow migraine sufferer had suggested. He stated that allergy sufferers are 33% more likely to suffer from frequent migraines and he was incredibly interested in helping.  I was pricked with lots of allergens and waited in his office wanting to scratch my arm off.

Once the results came in I received a lot of feedback that I found helpful.

1.       Food allergy- I found out that I was allergic to corn.  For those of you that don’t know, corn is in EVERYTHING processed.  I asked “how allergic” I was and how careful I needed to be.  As always, it depends and he suggested to experiment with foods and how I felt.   This was an “ah ha moment” for me being I feel sick 95% of the time I eat.  I have never known why but corn is a good clue.

2.       Indoor allergies- I found out I’m allergic to dust and mold.  I like to think I keep a clean house but with a Golden Retriever, 2 small children and a busy life, a dust free home is not possible (is it for anyone?). 

3.       Nasal allergies- This year I have suffered from endless sinus infections.  My doctor told me that I had not been receiving the correct treatment.  I had been going to a “Minute Clinic” when I had a sinus infection and couldn’t stand it anymore.  The medication that was given was, according to my doctor, was not strong enough or for a long enough time to rid the sinusitis.  Therefore, my sinus infections just kept cycling because they were never really gone.

Going forward the things I am implementing are:

1.       Reading food labels more carefully.  Looking at them, it seems corn is in everything so I’m trying to eliminate foods that have it as the first 5 ingredients listed.

2.       I got allergy pillow cases, mattress cover and installed a new air filter in my house.

3.       I took the medication to rid me of my sinusitis and now have preventative medication to take at night to hopefully help with the migraines I am waking with each morning.

4.       I now have an appointment for my son to be allergy tested for his chronic breathing and upper respiratory issues.  He is currently on preventative medication and breathing treatments.

5.       After playing outside, we are showering my son and changing his clothes before nap and playing in the house.  We were told that the allergens stick to his hair therefore leaving the allergens around the house.  We have always washed hands upon entering, don’t wear shoes in the house, vacuum a lot and dust.

Follow up:

1.       I will now be going to my immunologist for my sinus infections.

2.       I will be learning more from my son’s allergy testing and be able to accommodate both better once the results are back.

3.       I will be posting a review of my new air filter

Do you suffer from allergies and migraines?  What are you allergic to and how do you treat them?  The more ideas to live preventatively the better!

How to travel with a chronic illness

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After my Lessons your children learn or miss on vacation post, I was asked how I can travel with a chronic illness.  Not easily, is my answer.

As always, I prepare….

I saw 3 doctors the week before I left.  I was on a 20 day antibiotic, taking sinus meds, was treated by an acupuncturist, got a massage, made trips to the pharmacy and had a follow up the week I returned home.  I was able to make it until day 4 before my migraine spiked.  Typically, I get a migraine on day 2 so this was good for me.

I had a suitcase and carryon filled with natural products that I use.  I didn’t take a picture but check out my reviews and it will give you a good idea of some things in my purse.

I had a few days of migraine but only my evenings were consumed with pain.  I was able to stop a level 7/8 from going to a 10 and was able to enjoy the next day at a reasonable level.  These are all victories for me!!

As for returning home….

I have now had a migraine for 12 days straight with no relief.  My pain fluctuates between a 4 and 7 most days but mostly is a constant never ending full body fatigue and heightened stimulus sensitivity with brain pains. My cravings have been out of control and I’ve been packing on weight that makes me even more uncomfortable. 

It’s hard to describe to a non-sufferer, but I’ll just say it’s tough mentally as much as physically when I am in a cycle that isn’t being broken at all. It’s just this wet blanket over me that I really only feel in my down time.  I’m a busy teacher and mom and have been able to do these well but the second I need to do anything other than childcare, I just don’t have it in me. 

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Priorities of my spoons is the best way I can describe it.  I had to cancel plans this week, was like a rag doll this weekend and generally just felt crappy since I’ve been home.

Traveling comes at a huge cost for me but one I’m willing to pay.  When I live with a migraine daily, traveling and spiking it seems bad but I’d rather get a few days of glory than a week missed in my hole.

Here’s some good examples on how I feel this week: 

 

Oh the joys of traveling

One step forward two steps back

When everything stops working

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How do you get through traveling, before or after?