This week I was notified that my copay for an already expensive medication was raised. I was supposed to receive the treatment and was not properly notified of the change so my much needed appointment was postponed for 2 weeks. I spent the day on the phone with my specialty pharmacy. I was sobbing as I gave her my credit card information. The woman on the phone’s voice actually started shaking too because she felt so bad that I required a medication that has such an obviously outrageous cost. The price of ONE medication is more than I make in a YEAR! I basically work 3 full time jobs. I’m a full time mom, a teacher and a blogger/freelance writer. All of these take long strenuous hours and get paid very little for the time and passion I put behind them.
My last conversation with my neurologist was her saying “If you don’t take more medication you aren’t going to get better.” I wanted to say to her, “If I took all the medication you want me on, my Migraine may go away but the side effects would make me a different person and I’d need to sell my house to afford the 5 other meds I require.”
The costs of medications are insane and the question remains for not only me, but everyone: WHY IS IT NOT AFFORDABLE TO EVERYONE?
Missing my appointment caused me to cry all day! The crying spiraled into a migraine cycle that I now am existing in and quite possibly can suffer with for the next 2 weeks. With a neurological disease, everyone is so different. Medication should be affordable to all with options to receive treatment that works for each individual. I can’t tell you the amount of money that I’ve spent on meds I’ve filled and ended up throwing away.
When there is no cure, how are any of us supposed to figure out how to feel better if we can’t afford it? We can’t work enough hours to pay for it and the lack of proper medication makes us miss work or be unable to work because of it. The result of missing my appointment has and will continue to make me miss days, if not weeks, of my life suffering A LOT. I’m talking about a level of pain that I hope many people will never understand. This requires me to take more medication (which in reality doesn’t fix it), which also costs a lot, struggling through side effects and other issues.
HOW CAN WE GET BETTER IF WE CAN’T OBTAIN OR AFFORD PROPER TREATEMENT FOR EACH INDIVIDUAL PERSON?
Yet again, I spent all my free time this week on the phone! Check out how this isn’t the first time….I spend my free time talking to insurance, pharmacies and doctor’s offices