Lessons and life with Migraine and Disney

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With seeing the new Beauty and the Beast and planning a trip to Disney World this year, I have been reminded of a lot of lessons learned through Disney.

Today I reminisced to the very beginning of my blogging adventures.  I wrote a post about Aladdin that was short and sweet but meaningful to many Disney movies and life lessons.

This week I will repost my Disney World, the good, the bad and the migraine series.  Please follow me on:

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These posts will not be directly sent to my email list due to reposting, so follow along….

For today, a flashback to my thoughts on Aladdin and a Whole New World

Comment on the lessons you’ve learned through Disney movies

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American Migraine Foundation, “Move against Migraine” initiative

American Migraine Foundation Launches Move Against Migraine Initiative

One of my favorite foundations, American Migraine Foundation, is starting a new initiative.

About The American Migraine Foundation

The American Migraine Foundation (AMF) is a non-profit organization dedicated to the advancement of research and awareness surrounding migraine, a disabling disease that impacts 36 million men, women and children in the United States. The AMF was founded in 2010 to provide access to information and resources for individuals living with migraine, as well as their loved ones. Working alongside the American Headache Society, the AMF’s mission is to mobilize a community for patient support and advocacy, as well as drive and support innovative research that will lead to improvement in the lives of individuals living with migraine and other disabling diseases that cause severe head pain.

AMF launched the Move Against Migraine initiative to help educate individuals about migraine, as well as resources, such as information on treatment and experts. 

Check out the full press release here

  • Move Against Migraine integrates advertising, public relations and social and digital media, as well as radio and television public service announcement.
  • Through the initiative the AMF intends to change the conversation around migraine and mobilize a large community to advocate for themselves and others to increase funding for research.
  • The initiative aims to help individuals:
  • Learn more about migraine and the treatment options via AMF online research and education library – visit https://americanmigrainefoundation.org/
  • Find help by visiting our website to connect with migraine experts (there is a Find a Doctor tool), learn from content developed by renowned migraine experts, or searching for a clinical trial investigating new treatment options
  • Get connected by joining our Move Against Migraine community on Facebook, and use your voice on social media to join together with others living with migraine and other diseases that cause severe head pain.
  • The Facebook group, Move Against Migraine, connects leading migraine and headache specialists with those living with migraine and other diseases that cause severe head pain. The platform features regular Facebook Live events with migraine experts, information and research updates.

Sprinly, plant-based meal delivery

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This week I got another delivery from Sprinly, my favorite vegan fresh delivery meals.  If you live in the Cleveland area, I highly recommend them! Although Sprinly rewards me for my recommendation, I only write about products and services that I truly love and use!

I fully admit that I am not vegan.  Nor do I particularly love vegetables.  But Sprinly is some kind of wonderful and somehow gets me to love both!  I order them when I need a break from cooking, when I’m feeling like I need a reset in my diet and when I’m craving them.  I end up craving them because their meals are so delicious.  I feel so full from their meals and often can’t finish them in one siting.  I’m always so surprised by how satisfied I am after each meal but I guess that’s what clean proper nutrition tastes like.

What an inspiration to try!!!!!

To read more about Sprinly, here’s my review

If you are already a Sprinly customer (possibly by my recommendation;)) please vote for them for “Best of Cleveland 2017.”  Nominations are in and Sprinly has been nominated for “best local startup.”  Please go to the link, fill in the information and vote for Sprinly to receive this much deserved title.

If you live in the Cleveland area or know someone who does, please let them know about this amazing company.  It’s a great feeling knowing I’m eating good food, made my good people, trying to spread good vibes, all delivered to my door. YUM!

 

Tranquility Salt Cave for allergies and stress relief

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I have had a ton of response about my Himalayan Salt lamp post.  The main question being, “Did it help your migraines?”  The simple answer is no.  With long term benefits, possibly yes?!

After I found that it wasn’t giving me particular relief, I placed it in my son’s room.  My son suffers from seasonal allergies, coughs, congestion, sinus infections and ear infections.    Within 2 nights I noticed that he was coughing less.  I was shocked!!!  My husband (who tends to medicate over natural therapies) saw a difference also.  I leave it on in his room next to his bed and feel that the purifying salt is helping him breathe better and have less congestion throughout the night! YEA!

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After this, I had renewed faith in my Himalayan salt lamp.  After reading the benefits, I realized that it doesn’t help with inflammation which is most likely what is triggering my migraines.  What it does help with is

  • Asthma
  • Seasonal allergies
  • Coughs and chest congestion
  • Exzema and dermatitis
  • Improves lung functioning
  • Sleep disorders
  • Cystic Fibrosis
  • Stress and anxiety
  • Depression

 

With this knowledge, I found Tranquility Salt Cave of Columbus, Ohio.  I had a trip planned to visit a friend in Columbus and I always get sick when I travel.  My friend was traveling from Denver and under stress with a new baby, preschooler, her job and running on little sleep.  I knew I would be suffering from allergies, was experiencing stress and anxiety from my last migraine attack and was ready to try it.

“Tranquility Salt Cave is not your average spa. With the powerful use of salt from the Himalayas, only 45 minutes are needed to feel cleansed, inside and out. With pure salt lining the walls, ceiling, and floor, you’ll experience an effortless and pain-free total-body cleanse.”

Our experience was quite relaxing.  The owners are extremely nice and have a daughter who suffers from migraines also.  They were happy and eager to help me with my issues and hopeful that I would feel benefits from their beautiful facility.

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The salt cave is a beautiful place.  You enter through a grand wooden door walking onto warm salt at your feet.  The ceiling is twinkling with lights in a cave like surrounding. 

“The salt cave is lined with Himalayan rock salt boulders, and literally tons of granulated salt rest on the floor of the cave.  The Himalayan rock salt is millions of years old and it contains over 84 trace minerals which are readily absorbed by the human body. As pure salt is diffused into the salt cave, the healing begins.  Negative ions are released into the air, helping to promote calmness and toxins begin to be removed from the air which you breathe. The salt is anti-bacterial and begins to clear clogged mucous and debris from the lungs.  Skin conditions may even improve after repeated salt sessions.” 

Salt Cave

You find a chair with a blanket, turn off your phone and relax for 45 minutes with meditative music.

My friend and I both found it easy to relax yet difficult with the person snoring next to us.  Next time I think I’ll book the room with more friends and less strangers.  With that being said, it obviously was relaxing.  My friend had been up with a preschooler and baby all night and enjoyed the quiet time.  I used my time to relax from the stressful snowy drive and breathe in the salt to help my allergies from the change of climate.

Overall, it was a time for us to relax, recover and just breathe.  It was a great way to treat ourselves to a spa experience while reaping the benefit of Halotherapy. 

Thank you Tranquility Salt Cave for showing us a spa day can be so much more!

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*I was not paid or given my services for free.  I am writing this review with my own opinions in hopes of shedding light on the benefits of Halotherapy.  Please see a doctor for any guidance in your medical needs and be advised that my experiences are my own.

National puppy day 

It’s #nationalpuppyday

 2 weeks ago my dog spent 10 hours in bed with me while I was violently sick with a migraine. She heard my kids snacking and playing down stairs & my husband in and out. She never moved. She never leaves my side when I’m sick. That’s love!!!!🐾🐶❤ 

Here’s one of my favorite posts about my dog!

https://mymigrainelife.wordpress.com/2014/06/26/my-dog-my-nurse-my-love/

Axon Optics Migraine Glasses, natural relief

*This post contains affiliate links.  This means if you buy and click from this post I will be compensated by the  affiliate.  This in no way alters my opinion and I only recommend things I use.  I use these often!  I was given a pair to review and have used them often since.

Natural Relief

Before I had children I was a special education teacher.  The years after college; I was teaching, coaching, tutoring, and getting my Master’s degree.  That was all? ha.  At this point my migraines became chronic and pretty much elevated to a new level.  Stress, lack of sleep, noise levels and inconsistent diet triggered me daily.

Along with these were the lights!  I taught in very harsh florescent lighting during the day, coached in a bright gym and sat in front of a computer doing homework or lesson plans.  My eyes were so stressed that I sat in the dark during my free period and had the monitor brightness turned as low as possible.  I didn’t have a smart board at that time but if I had worked with one, I know I would have been pained every time I used it.

This was all before I was given a pair of Axon Optics to review.

I wish so desperately that at that time I had Axon Optics migraine glasses.  They have FL-41 lenses that block  blue-green light which was developed to reduce sensitivity to fluorescent lighting.  They sell a range of products that can fit many eyewear needs.  I found working with the Axon Optics staff easy and simple.  I appreciate this greatly!

I now use them to blog (I’m wearing them now!) and when my photophobia is heightened (which is everywhere!).  I use them everyday.  I wear them making lunches and dinner, doing homework, reading books, doing computer work, going into stores, starting my day (anywhere) and more.  If you see me, I’m wearing them!

Use code:Axontweet

Check them out….. Shop our best-selling migraine relief glasses and sungasses.

 

 

What’s your diagnosis and where does that lead you with Migraine?

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Millions of people are diagnosed with migraine and every case is different.  So what’s your diagnosis?  What’s my diagnosis?  What does it mean to be diagnosed and how does that help?  Here’s my non-medical opinion.

I have my Master’s degree in special education.  It has been really helpful in understanding how the brain works, fails and where diagnosis and treatment can lead.  I think an example that I can best use to describe the migraine spectrum is comparing Autism to Migraine.  

If you have ever met someone diagnosed with Autism, you understand that that person is an individual and like no one else (and aren’t we all?).  Although, these individuals possess some similar factors that place them onto the Autism spectrum.  Does every person with Autism look the same, act the same, react the same, learn the same way, and have the same health and reactions to treatment?  The answer is an obvious no.  Where one person may seem to have some slight social issues and not much more, another individual may need 100% care for various extreme behaviors.  You may have a full conversation with one person and another may be completely nonverbal and ambivalent to personal interactions.  While one person may see improvement with dietary and behavioral therapy others may require heavy medications and need full time care with little improvement.  Everyone is different!

I have seen my neurologist for many years and I decided to ask her what my diagnosis was recently.  I knew the answer was a Chronic Migraine sufferer with neck and shoulder issues caused from migraines which is called Torticollis.  At the beginning, it was important to be diagnosed with something.  It gave me great relief that I, indeed, was sick and not making it up issues as I was led to believe by so many.  With my diagnosis I felt vindicated and believed since I was diagnosed, I would be cured.  Years and years later, I know better.  My diagnosis is no longer as important as my journey.   I have been through so many medications, therapies, and procedures that I’m not as concerned about my diagnosis versus my treatment now.

So why ask about my diagnosis?  Like I said, at the beginning it was huge!  It provided me a starting point and that is what seems to be the best place to start.  Just like people diagnosed with Autism, it’s only the beginning and an idea of where to begin with therapies, tests, treatments and more.  It puts me into a category that I need to find where I fit.  I no longer go into my neurologist to look for a cure.  I don’t think she is going to hand me a script for a pill that will make my disease go away.  I was stuck in this mindset for years! 

I now know it takes work!  Just like in teaching,  I know I can help  at school but work needs to be done at home.  They can’t come to me to solve their shortcomings like I can’t expect my doctor to help me without putting in the work myself.  My diagnosis has become the place I started and the road that I have travelled. 

I helped with the process of diagnosing students and I had parents fight putting a label on their child.  All of us have labels. My diagnosis doesn’t define me.   I think it’s what you do with knowledge of your label and what you do with it.  You have a choice to ignore it, to get more opinions, follow your path, and problem solve along the way.  Once I realized I wasn’t going to be cured and that I needed to fight with a well-rounded approach of many therapies and life style changes, I was empowered.  My label is just part of who I am.  I am a mom, a wife, a daughter, a sister, an aunt, a friend, a teacher, a blogger, a dog and chocolate lover, a travel enthusiast, a Chronic Migraine sufferer and so much more.

What’s your diagnosis? 

How do you feel it defines your journey?