Miles for Migraine virtual walk and race dates 2017

miles for migraine swag

In June, I did a virtual challenge to raise money for Miles for Migraine.  “Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun walk/run events, typically 2 mile walk and 5k and 10k race to raise money for migraine research. We also host youth camps for kids and teens impacted by migraine or other headache disorders.”

I made the goal of raising $300 for the 3 years I’ve been blogging and I’m happy to announce we met that goal and exceeded it!  Thank you to those who donated!  Migraine is terribly underfunded and every dollar goes a long way towards fellowship programs for training new doctors as well as research. THANK YOU! THANK YOU!

For those of you that missed the fundraiser and would like participate yourself, I have a few more opportunities for you.

miles shoes

Philadelphia                October 7, 2017

Washington, DC             October 15, 2017

Virtual Race                       Anytime!

 

Keep moving!  I have more race dates coming for Runnin’ for Research in which I participated last year.  I hope you are motivated to take one step at a time and each day get a bit stronger.  As a chronic migraineur, I feel like one day I step forward, the next I’m knocked back down .  The most important thing is that I take that step forward again…..

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Last day of Wego endorsements-please vote now!!


I’m so honored to be nominated for Wego Health awards!!!!!!!!I have been nominated for best in show for blog, Instagram and facebook and twitter.

“WEGO Health is a mission-driven company dedicated to transforming health care by harnessing the experience, skills and insights of patient leaders. The WEGO Health Awards were created to embody the mission of WEGO Health: to empower Patient Leaders. We connect with countless patient advocates, influencers, and experts who are helping others and transforming healthcare–often without recognition. The WEGO Health Awards offers a way to introduce new Patient Leaders to the online community, and to allow network members the opportunity to recognize and say “thank you” to the leaders they look up to.” Check them out at Wego Health

Now I need your help.

Please go to: https://awards.wegohealth.com/nominees/4071
Simply go to the link and click the orange thumbs up to endorse My Migraine Life. Use the pull down menu to endorse each award I am nominated for.

If you would like, you can tweet and support on facebook once you’ve done so to encourage other to do the same.

If you are reading this, chances are you have been touched by My Migraine Life in some way. Please vote to show your support and give thanks for my advocacy work helping others.
THANK YOU!

Truth in Advertising and product claims to treat, cure or prevent

Recently, a popular website named “Goop” became under fire for deceptive marking with disease treatment claims.  It is a blog that focuses on fashion, beauty and wellness.  Some of their products claim to treat, cure or prevent a host of diseases.  It seems that Goop is taking advantage of those looking for answers.  A nonprofit, Truth in Advertising requested it to be taken down.  In response to the official complaint, a spokesperson for Goop told E! news that they would “make those improvements that we believe are reasonable and necessary in the interests of our community of users.”

I was especially interested in this topic being I give product reviews.  My goal is not to sell or make money off of my reviews and recommendations (although I do have affiliates).  The products I post in SHOP things that I love are products that I use to treat myself.  I recommend them hoping they may help you also.  I am not a doctor and what works for me may or may not help you….but I hope it does!

With full disclosure, I have received products that I have not reviewed or recommended.  My rule is, if I don’t like it, I don’t write about it.  I have had offers for paid opportunities that I have rejected due to false claims.  I like to help weed out the “snake in the grass” products that are looking to make money and find the products that are the “real deal” in natural healing.

Red flags I see with products:

  • Claims that it will “cure”

o   There is no current cure and advertisers play off the emotions of people desperate for answers and help.

  • It works for everyone

o   Nothing will work the same for everyone.  The body is unique and will respond in such a way.

What does “reasonable and necessary [changes] in the interests of our community of users” mean?

Is it list price, retail price, price margin, cost of good, claims documented or product reviews?  What are the interests of community of users? Retail price, effectiveness of products, type of product?  It is all quite subjective. Products should be measured only on yourself.  If it doesn’t help YOU then stop using it.  Stop wasting your hope, your money, give your body a break and try something new.

Why do I try so many things?

Nothing works the same every time.  Body’s change and so do the reactions to products.  I typically like to recommend products that are not taken internally because of the complexities of how the body reacts.  Vitamins and pills get tricky but I enjoy encouraging juices and healthy foods to nourish.  I love trying new products and feel I can never have enough “self care” items regardless of my ailments.   While I try new products I encourage you to try the products and see how you feel.

 

#MondayMotivation Less doing and more being

less doing more being

Today’s #MondayMotivation is a reminder to drop the “to do list” and focus on “being.”  I find this really, REALLY hard to do!!!!  I’m a mom, wife, teacher and migraine sufferer.  Where do I have time to just be?  With my migraines, I find I always have a list in my head to get done ahead of time preparing for a migraine.  I also have a list of things that accumulate while I have a migraine and am unable to do it. The list goes on…..

This week is the week before school.  My children are growing up so fast and my migraines make me miss so much! This week I’m going to focus on extending good night kisses, cuddling my babies longer, dancing more, being kinder to myself, letting go, being proud and getting lost in the moment.  I’m going to let go of the to do list while I have a migraine and not feel pressured to check off that list while I’m playing legos on the floor.

This seems nearly impossible, but I’m going to try! MUCH easier said than done……..

Please Excuse the advertisement at the end.  I do not endorse this product and have not tried it. Originally posted on https://www.facebook.com/SanctuarySpaHQ/?hc_ref=ARSUxEeI7tunSfT59ScNhKmrKl8DRKlmMzQ5dSkN7JuUesXNuMJ2HKkYXzKnv8WEjn4&fref=nf

Spreading Migraine Awareness through Children

My Migraine Life

Please watch this Utube video.

I am so proud of this girl for spreading awareness for Migraines and absolutely heartbroken that she needs to.  You see, I am that little girl.  A different time, a different generation, different pills but the pain is the same.  I had my first migraine attack when I was 5 and I am that 10% that suffered before age 12.  I remain feeling alone while millions of us suffer and so many take care of us.  I have fought the stigma all of my life feeling misunderstood and missing out on more events than I care to recall.  I wake up every day in pain and go to bed in pain.  I can’t remember a time that this wasn’t so.  When Lindsay held up the card that said “some will outgrow it”  I did a silent prayer that she would be one who did so…

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Straight Outta Spoons and Chronic Illness

straight out of spoonsThis weekend was my birthday!  What an amazing time it was!  My best friend sent me this tank and it’s a perfect way to describe me after the celebration.

After traveling, staying out late and having (gasp!) a few celebration drinks I was Straight Outta Spoons!  I just wish I could go through an event without being totally depleted.

With this said, I’ll use my spoons on family, fun and celebrations any day!  It’s the days that I use up my spoons for doing mundane things that gets me really frustrated.

Not familiar with the Spoon Theory?

Here’s how it applies to my life and explanation on how it may applied to yours.

Thank you for all the presents, texts, calls and social media messages.  I’m so lucky to have you all in my life and looking forward to another year filled with joy and discovery.

Last year’s birthday and migraine motivation

IMG_7571

This week is my birthday! As I looked back at where I was last year, I was struggling but happy. I’m about the same but can say I’ve seen growth. I strengthened my time management this year and really focused on doing things that make me happier and healthier.

I started a new job that inspires me to feel better, gives me a new sense of purpose and the people there make me smile and laugh.  Being a teacher and changing lives is very motivating and the families I work with are incredible!

My Migraine Life has done a lot of great things and I’m very proud of my blog being so unique and well received. I had never read a blog when I began this journey and I’m proud that I created this community and am helping so many in my own way.

Please endorse My Migraine Life for Wego Health Awards. It’s a nice thank you for all my hard work!  Just go to the link and scroll to the thumbs up!

Endorse

I still have a lot of “bad days” and feel better knowing that on my less painful days I’m helping and teaching so many.  I’m using my good days for the good and that is the best I can do.  On those bad days…..I’ll “just keep swimming!”

Last year’s birthday post!