Miles for Migraine Race in Cleveland 2018

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On Sunday, April 21st, 2018 I am lacing up my sneakers and participating in the first annual Miles for Migraine Walk/Run Cleveland, OH. This event benefits a cause that effects so many and has a mission that is particularly close to my heart and my family.

Miles for Migraine is a non-profit organization whose mission is to improve the lives of people impacted by migraine, and their families through social awareness, community and supporting research efforts for a cure. Migraine is not “just a headache”. Migraine is the second leading cause of “Years lived with Disability”.  In the United States, more than 37 million people have migraine. Everyone either knows someone who has migraine or struggles with migraine themselves.

This year I’m so excited to announce that Miles for Migraine is coming to Cleveland!  In the past, I have raised money and participated virtually.  Here’s how we did last year.  This year my goal is $400 in honor of beginning my 4th year writing My Migraine Life (In June) and taking steps toward a better Migraine Life for myself and millions of others. This is Cleveland’s  inaugural race!  I’m so excited to be there in person and walk my miles along side so many migraine supporters.

Please consider joining the My Migraine Life team or donating and participating virtually.  Getting to my goal will bring us all closer to an improved Migraine Life.

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Wego Health Award for My Migraine Life

I’m so honored to be nominated for Wego Health awards!!!!!!!!

I have been nominated for best in show for blog, Instagram and facebook and twitter.

“WEGO Health is a mission-driven company dedicated to transforming health care by harnessing the experience, skills and insights of patient leaders.  The WEGO Health Awards were created to embody the mission of WEGO Health: to empower Patient Leaders. We connect with countless patient advocates, influencers, and experts who are helping others and transforming healthcare–often without recognition.  The WEGO Health Awards offers a way to introduce new Patient Leaders to the online community, and to allow network members the opportunity to recognize and say “thank you” to the leaders they look up to.”  Check them out at Wego Health

Now I need your help.

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Please go to: https://awards.wegohealth.com/nominees/4071

Simply go to the link and click the orange thumbs up to endorse My Migraine Life.  Use the pull down menu to endorse each award I am nominated for.

If you would like, you can tweet and support on facebook once you’ve done so to encourage other to do the same.

If you are reading this, chances are you have been touched by My Migraine Life in some way.  Please vote to show your support and give thanks for my advocacy work helping others.

THANK YOU!

 

World Migraine Solidarity Day

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Time to launch the first annual World Migraine Solidarity Day campaign!

The Association of Migraine Disorders (AMD) have initiated the Shades for Migraine campaign and website.  This campaign is intended to be an annual event.   

“So….on Wednesday, June 21, let the world know about it!  Let the millions of sufferers know that you care… that you know they aren’t faking an illness… that you know much more needs to be done to find a cure and give them relief… that you want to help give migraine disease the prominence it deserves.” https://www.shadesformigraine.org/

Participating is simple…

Post a photo of yourself (and friends/co-workers) wearing your Shades for Migraine on social media using the hashtag #ShadesForMigraine.”

1.   Post a photo of yourself wearing sunglasses

2.   Hashtag the photo with #shadesformigraine

3.   Challenge at least 2 other people to do the same

4.   Don’t forget to wear your shades ALL DAY long on June 21st, the longest day of the year.

5.   Tag @mymigrainelife so I can support and see those shades!

 

They just need to be visible…hanging around your neck, hanging from your shirt or propped on your head are options if you can’t wear them on your face the entire day. Wear them indoors and in places where people usually don’t wear sunglasses.  Be silly. Wear goofy ones if you dare. Let them make a statement…  Start a conversation…

 

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Spreading Migraine Awareness through Children

Please watch this Utube video.

I am so proud of this girl for spreading awareness for Migraines and absolutely heartbroken that she needs to.  You see, I am that little girl.  A different time, a different generation, different pills but the pain is the same.  I had my first migraine attack when I was 5 and I am that 10% that suffered before age 12.  I remain feeling alone while millions of us suffer and so many take care of us.  I have fought the stigma all of my life feeling misunderstood and missing out on more events than I care to recall.  I wake up every day in pain and go to bed in pain.  I can’t remember a time that this wasn’t so.  When Lindsay held up the card that said “some will outgrow it”  I did a silent prayer that she would be one who did so with my eyes shutting to hold back tears. (Crying triggers a migraine and I’m coming off a 5 day binge of pain so I refrained from letting my emotions rush out of me like they wanted.)  I could barely do so when she held up the card that said “many will not.”  I wanted to cry for myself, for the millions like me and for the possibility that if I have passed these monsters onto my children.  Please like her video and share it.  My favorite part of the video is when she holds up her name and gives the most beautiful and innocent smile.   She is in life altering pain and her spirit shines through.  Too many children are in pain and continue to be  for life.

 

Oh yea, and if the background noise bothers you, like it did me, put it on mute.  Her words still speak as loudly!