Make a difference for Migraine

Today is the official Chronic Migraine Awareness Day.  All month I have been supporting Migraine and Headache Awareness to advocate.  Even though today’s the day and June’s the month, the reality is it’s an everyday, every month type of suffering.  Please continue to read, share, and pass along My Migraine Life’s information and stories to raise awareness all year long.

FullSizeRender

 

This picture is a perfect example of how I fight each day.  I was writing in my office wearing my migraine relief and photophobia glasses.  Why do I wear indoor glasses while the lights are off?  Sky lights!  I love the sun but it doesn’t always love me so I protect my eyes with Axon Optics.  I am an affiliate of Axon Optics which means if you buy them I will receive compensation for my referral.

Axon Optics has generously  offered 15%off your purchase today and tomorrow.

Use code mymigrainelife and purchase here

Another bit of support that I’m wearing is my “Migraine warrior, it’s more than a headache” tank.  It is in the official Migraine color, purple, and is sold by a fellow Migraine blogger Migraine Warrior

Not pictured are my walking shoes.  Please remember to donate to Miles for Migraine.  Skip the Starbucks today and give $10.  It will make a bigger difference in this world…

Do something that makes a difference for all of us who suffer today.  You may not suffer, but someone you know does.  We all need your help!

Donate, buy and wear something that makes a change.

You can’t ask for change without being a part of it.

Axon Optics and Shades for Migraine

FullSizeRenderJune 21st is World Migraine Solidarity Day! It’s a great social media campaign that is meant to raise awareness for Migraine and what better way to express it than in SUNGLASSES?!

With that said, let’s talk about my favorite indoor and outdoor glasses!!!!!  I am an affiliate of Axon Optics because I truly wear their glasses and love to spread the word of how they help.  If you order their glasses I will receive a small compensation for my recommendation.  Thank you!

“Axon Optics has utilized the latest research exploring the pain pathway associated with migraine and photophobia to develop the SpectraShield FL-41 migraine glasses lens. These lenses may help to reduce exposure to certain types of artificial light, particularly blue light and green light, which may exacerbate light sensitivity in those who suffer from migraines.   Both indoor migraine glasses and outdoor migraine sunglasses are an option.” Axon Optics

 

img_2323-2

Wearing my indoor glasses on a partly cloudy dinner date on the patio

 

Personally, I use the indoor glasses almost everyday.  I have both the indoor and outdoor and love them both.  I recommend going to the website and looking what may be best for you.

The reason I love the indoor glasses is the tint.  I am a teacher and mom so I spend a lot of time in fluorescent lights.  I teach in them, go grocery shopping in them and make dinner in my own home with them.  On cloudy days, I wear my indoor glasses outdoors because the glare still hurts my eyes yet regular sunglasses are too dark to wear.  I can not recommend enough Axon Optics Migraine Glasses!!!!

Check me out on: Instagram, facebook, and twitter

I’ll be wearing my Axon Optics for the Shades for Migraine campaign and more.  Remember to participate in the Shades for Migraine campaign and tag me in your sunglasses #shadesformigraine

If you’d like to purchase a pair of Axon Optics, they are generously offering My Migraine Life readers a discount for Migraine Awareness Month!  They are a company that truly cares about migraine sufferers and not just selling a product.  Their customer service is amazing, their return policy is comforting and the founders are people invested in helping!

Use code mymigrainelife to receive 15% off your order

You have nothing to loose but light sensitivity pain!

Disney World. The bad

IMG_4147

Every good side has a bad side. I was happily surprised that I saw little bad while I visited Disney World.  The bad thing that I did see was ungrateful people.

My experience with meditation didn’t go well but something I find easy and beneficial to do every day is to show gratitude.  It comes easily being I have a disease that keeps me in a cold dark room and even the littlest bit of relief allows me to be grateful.

I also was a special education teacher for children with severe needs.   I can tell you that when you’ve worked with a child that is severely Autistic or is multiply handicapped you see the world in a different way.

So here’s the bad about Disney World….ungrateful adults.  I have always been able to work with difficult children because of the reminder that they don’t know any better.  I don’t give adults that benefit of the doubt.

As I was standing waiting for my family after a bathroom break (I told you we were hydrating!) I saw a most ungrateful man. He literally stopped in front of me and screamed at his daughter (or could have been his granddaughter, I couldn’t tell) about her band aid falling off her hand.

First of all, band aids fall off a moving hand.  Secondly, shame on him for yelling and embarrassing his daughter about such an insignificant thing.  As she hung her head I could feel the anger rise in me.

I texted my best friend and told her I considered tripping the man (hopefully scrapping his hand) and handing his daughter an extra band aid to put in her pocket.  I don’t go anywhere without band aids.  Kids fall and when they fall they need a band aid.  Even when there isn’t blood, sometimes a band aid just makes them feel better.

You know what doesn’t make them feel better, getting yelled at in a group of people.  How ungrateful!  He was worried about this tiny detail of his day and I am sitting there thinking of the Make a Wish family that had just walked by me.  I bet that family wasn’t worried about a band aid.  I bet their worries were real and powerful and that they would give anything to have their biggest problem be a band aid.  That family was smiling and laughing and  not worrying about such a small thing because they know BIG problems.  I wish that family could talk to that man and tell him about real anger.  Not anger at their child but anger at what they were suffering from.

Another time I saw the bad side of Disney was when we were on a ride. At one point the ride stopped and they made a statement about the ride stopping and that it would start again in a moment.  I heard a woman behind me groan and start loudly complaining about how she couldn’t believe it was ruining her ride.

It’s a funny thing about perspective.  My first thought wasn’t to complain it was to hope.  I sat there hoping that the boy I saw in a wheel chair with a feeding tube was being carefully wheeled onto the ride.  While this woman was complaining I was hoping that this sweet child would be able to experience the beauty and wonder of the ride that I was getting to enjoy.   While this woman was complaining with her working legs and loud mouth I would be interested to hear what that dad I saw pushing him would think.  I’m glad he couldn’t hear her and hope they got to enjoy!

Are these people bad people, of course not. I only heard and saw a small moment of their day.  No one is perfect and I ‘m sure they were dealing with their own issues.  Everyone has problems and everyone expresses them differently.  But from my perspective the bad thing about Disney is the ungrateful people.

I can’t go anywhere without negative people surrounding me and some days it bothers me more than others.  On a day that I felt OK and was literally looking to the sky being grateful for everything this world had provided me.  Then, I heard such nonsense of “band aid gate” and “let’s pause for a moment and complain.”

Let’s all show gratitude!

Part 3 of Disney World is coming.  You know it had to come…..the MIGRAINE!  This one has a great lesson.

Axon Optics Migraine Glasses, natural relief

*This post contains affiliate links.  This means if you buy and click from this post I will be compensated by the  affiliate.  This in no way alters my opinion and I only recommend things I use.  I use these often!  I was given a pair to review and have used them often since.

Natural Relief

Before I had children I was a special education teacher.  The years after college; I was teaching, coaching, tutoring, and getting my Master’s degree.  That was all? ha.  At this point my migraines became chronic and pretty much elevated to a new level.  Stress, lack of sleep, noise levels and inconsistent diet triggered me daily.

Along with these were the lights!  I taught in very harsh florescent lighting during the day, coached in a bright gym and sat in front of a computer doing homework or lesson plans.  My eyes were so stressed that I sat in the dark during my free period and had the monitor brightness turned as low as possible.  I didn’t have a smart board at that time but if I had worked with one, I know I would have been pained every time I used it.

This was all before I was given a pair of Axon Optics to review.

I wish so desperately that at that time I had Axon Optics migraine glasses.  They have FL-41 lenses that block  blue-green light which was developed to reduce sensitivity to fluorescent lighting.  They sell a range of products that can fit many eyewear needs.  I found working with the Axon Optics staff easy and simple.  I appreciate this greatly!

I now use them to blog (I’m wearing them now!) and when my photophobia is heightened (which is everywhere!).  I use them everyday.  I wear them making lunches and dinner, doing homework, reading books, doing computer work, going into stores, starting my day (anywhere) and more.  If you see me, I’m wearing them!

Use code:Axontweet

Check them out….. Shop our best-selling migraine relief glasses and sungasses.

 

 

Migraine World Summit

IMG_6132

The Migraine World Summit April 15-20, 2016 Register for FREE

* Some of the links in this post are “affiliate links.”  This means if you purchase the item from clicking here, I will receive an affiliate commission.  This in no way alters my opinions or reason why I am referring you to them.  I use everything I recommend.

Recently I was contacted by the host of the Migraine World Summit.  It sounds like a great opportunity to get questions answered, a chance to learn about migraines and a way to participate in the migraine community from the comfort of your home.  Many of us have trouble traveling, can’t sit in fluorescent conference rooms or have the funds to participate.  If this is your case, the good news is….it’s FREE and from HOME!

 The Migraine World Summit runs from April 15-20, 2016

Anyone may attend for free, just register here: https://www.migraineworldsummit.com/

Dr. Rigaux, the CEO and inventor of Cefaly (the only FDA-device approved for the preventative treatment of migraines) as well as 30+ other doctors will be speaking. The doctor of Axon Optics will also be a doctor participating. If you don’t know who Axon Optics is, they are migraine glasses to help with  photophobia ! Shop migraine relief eyewear at Axon Optics.  *
I love them!   There will also be experts from Harvard Medical School, the Mayo Clinic, Stanford Medical, the Cleveland Clinic and the International Headache Society. It will feature interviews with Migraine Research Foundation experts, a group that I love and encourage you to support.

Here is a link to the medical professionals who are speaking: http://www.migraineworldsummit.com/speakers

Here is the press release sent to me:

 World’s First Migraine Summit Set to Relieve Pain Experienced by Millions

 Over 30 doctors, professors and specialists have gathered from world leading institutions to help answer some of the most difficult questions for patients in desperate need of relief.

Migraines are more common than diabetes, epilepsy and asthma combined. [i] There are 956,000 thousand migraine attacks every day in the USA[ii] with around 37 million affected.

Carl Cincinnato, host of the Migraine World Summit, sees how migraine can cripple an individual over time:

“Migraines can be devastating to someone’s quality of life. It can affect not only their physical well being, but their relationships, family life and in severe cases their ability to keep a job and have a career.

There is still a stigma associated with migraine. Many people feel guilty or ashamed to admit they have a migraine. Migraines can also lead to depression and anxiety as many struggle with the isolation, lack of progress and lose hope.

Research shows a direct link between the frequency of migraine and a person’s quality of life.”

Migraines were recently found to be the 6th highest cause of disability worldwide in terms of years lost to disability [iii] A severe migraine can be as disabling as quadriplegia or active psychosis.[iv]

Despite the prevalence of migraine, it remains under diagnosed and under treated with less than 50% of patients consulting a physician.[v]

For those who do seek help, finding the right doctor can be difficult.

Just 4 hours are committed to headaches disorders in undergraduate medical training worldwide.[vi]

The US is one of the few places where there are subspecialty certifications for headache medicine, yet there is only one headache specialist for every 85,000 patients.[vii] This shortage is consistent worldwide.

The Migraine World Summit provides unprecedented access to dozens of experts for those suffering from this debilitating disorder.

Dr Pierre Rigaux, CEO of Cefaly Technology and inventor of the innovative Cefaly®, the only FDA-device approved for the preventative treatment of migraines, is one of the speakers at the event.

Specialists require referrals, patients may incur significant costs and there can be waiting lists when treating migraines.  The Migraine World Summit is a great opportunity to jump the line and get into the room with doctors to hear the latest best practice and approaches being used from some of the best in migraine.

[i] Headache Disorders – not respected, not resourced. All-Party Parliamentary Group on Primary Headache Disorders. 2010.  Migraine Trust

[ii] Steiner TJ et al. The prevalence and disability burden of adult migraine in England and their relationships to age, gender and ethnicity. Cephalalgia. 2003;23(7):519-527.

[iii] Steiner, Timothy J., et al. “Headache disorders are third cause of disability worldwide.” The journal of headache and pain 16.1 (2015): 1-3.

[iv] Blumenfeld, A. M., et al. “Disability, HRQoL and resource use among chronic and episodic migraineurs: results from the International Burden of Migraine Study (IBMS).” Cephalalgia 31.3 (2011): 301-315.

[v] Pavone E et al. Patterns of triptans use: a study based on the records of a community pharmaceutical department. Cephalalgia. 2007;27(9):1000-4.

[vi] World Health Organization. Atlas of headache disorders and resources in the world 2011.

[vii] Mauser, Emily D., and Noah L. Rosen. “So many migraines, so few subspecialists: Analysis of the geographic location of United Council for Neurologic Subspecialties (UCNS) certified headache subspecialists compared to United States headache demographics.” Headache: The Journal of Head and Face Pain 54.8 (2014): 134

 

 

Why are doctor’s offices so bright? Migraine glasses help

“You aren’t nuts, Migraines hurt” with my Axon Optics glasses

This post contains an affiliate link.  This means that if you buy from clicking from here I will receive affiliate compensation.  This in no way alters my opinion and I only recommend items I use.  I use these often!!!!!

Today I went to see my neurologist per usual.  I was prepared and wore my Axon Optics glasses.  As I sat there and reached for a magazine I saw a coconut painted with the saying, “You aren’t nuts, Migraines hurt.”  Well isn’t that the truth.  This was actually one of the first things I saw when I went to my neurologist over 10 years ago.  It was a place I knew I wanted to be.  They are right, I’m not nuts….I’m hurting.  Anyways, so when I went into the room, I felt so much better that I wasn’t being beaten down by the lights because of my glasses.  Now if only they would unplug the clock.  The ticking is like a small nail being hammered into my skull with each second.  I have never understood why a neurologists office, of all places, would have such triggers surrounding it.  I have seen a request not to wear perfume while visiting the office which is a nice consideration.  But what about the lights?  Why do they need to be so bright?  I can understand a surgical center or a place that needs additional light to diagnose, but I have an invisible disease….no lights needed.  They have actually turned off the lights at appointments for me when I’m in heightened pain.  So why are they needed?  Uh, some things remain a mystery.  Until then, I’m wearing my Axon Optics glasses and next time ear plugs!

"Natural