Lessons and life with Migraine and Disney

IMG_4146

With seeing the new Beauty and the Beast and planning a trip to Disney World this year, I have been reminded of a lot of lessons learned through Disney.

Today I reminisced to the very beginning of my blogging adventures.  I wrote a post about Aladdin that was short and sweet but meaningful to many Disney movies and life lessons.

This week I will repost my Disney World, the good, the bad and the migraine series.  Please follow me on:

facebook

twitter

instagram

These posts will not be directly sent to my email list due to reposting, so follow along….

For today, a flashback to my thoughts on Aladdin and a Whole New World

Comment on the lessons you’ve learned through Disney movies

FullSizeRender (16)

Axon Optics Migraine Glasses, natural relief

*This post contains affiliate links.  This means if you buy and click from this post I will be compensated by the  affiliate.  This in no way alters my opinion and I only recommend things I use.  I use these often!  I was given a pair to review and have used them often since.

Natural Relief

Before I had children I was a special education teacher.  The years after college; I was teaching, coaching, tutoring, and getting my Master’s degree.  That was all? ha.  At this point my migraines became chronic and pretty much elevated to a new level.  Stress, lack of sleep, noise levels and inconsistent diet triggered me daily.

Along with these were the lights!  I taught in very harsh florescent lighting during the day, coached in a bright gym and sat in front of a computer doing homework or lesson plans.  My eyes were so stressed that I sat in the dark during my free period and had the monitor brightness turned as low as possible.  I didn’t have a smart board at that time but if I had worked with one, I know I would have been pained every time I used it.

This was all before I was given a pair of Axon Optics to review.

I wish so desperately that at that time I had Axon Optics migraine glasses.  They have FL-41 lenses that block  blue-green light which was developed to reduce sensitivity to fluorescent lighting.  They sell a range of products that can fit many eyewear needs.  I found working with the Axon Optics staff easy and simple.  I appreciate this greatly!

I now use them to blog (I’m wearing them now!) and when my photophobia is heightened (which is everywhere!).  I use them everyday.  I wear them making lunches and dinner, doing homework, reading books, doing computer work, going into stores, starting my day (anywhere) and more.  If you see me, I’m wearing them!

Use code:Axontweet

Check them out….. Shop our best-selling migraine relief glasses and sungasses.

 

 

What’s your diagnosis and where does that lead you with Migraine?

migraine label

Millions of people are diagnosed with migraine and every case is different.  So what’s your diagnosis?  What’s my diagnosis?  What does it mean to be diagnosed and how does that help?  Here’s my non-medical opinion.

I have my Master’s degree in special education.  It has been really helpful in understanding how the brain works, fails and where diagnosis and treatment can lead.  I think an example that I can best use to describe the migraine spectrum is comparing Autism to Migraine.  

If you have ever met someone diagnosed with Autism, you understand that that person is an individual and like no one else (and aren’t we all?).  Although, these individuals possess some similar factors that place them onto the Autism spectrum.  Does every person with Autism look the same, act the same, react the same, learn the same way, and have the same health and reactions to treatment?  The answer is an obvious no.  Where one person may seem to have some slight social issues and not much more, another individual may need 100% care for various extreme behaviors.  You may have a full conversation with one person and another may be completely nonverbal and ambivalent to personal interactions.  While one person may see improvement with dietary and behavioral therapy others may require heavy medications and need full time care with little improvement.  Everyone is different!

I have seen my neurologist for many years and I decided to ask her what my diagnosis was recently.  I knew the answer was a Chronic Migraine sufferer with neck and shoulder issues caused from migraines which is called Torticollis.  At the beginning, it was important to be diagnosed with something.  It gave me great relief that I, indeed, was sick and not making it up issues as I was led to believe by so many.  With my diagnosis I felt vindicated and believed since I was diagnosed, I would be cured.  Years and years later, I know better.  My diagnosis is no longer as important as my journey.   I have been through so many medications, therapies, and procedures that I’m not as concerned about my diagnosis versus my treatment now.

So why ask about my diagnosis?  Like I said, at the beginning it was huge!  It provided me a starting point and that is what seems to be the best place to start.  Just like people diagnosed with Autism, it’s only the beginning and an idea of where to begin with therapies, tests, treatments and more.  It puts me into a category that I need to find where I fit.  I no longer go into my neurologist to look for a cure.  I don’t think she is going to hand me a script for a pill that will make my disease go away.  I was stuck in this mindset for years! 

I now know it takes work!  Just like in teaching,  I know I can help  at school but work needs to be done at home.  They can’t come to me to solve their shortcomings like I can’t expect my doctor to help me without putting in the work myself.  My diagnosis has become the place I started and the road that I have travelled. 

I helped with the process of diagnosing students and I had parents fight putting a label on their child.  All of us have labels. My diagnosis doesn’t define me.   I think it’s what you do with knowledge of your label and what you do with it.  You have a choice to ignore it, to get more opinions, follow your path, and problem solve along the way.  Once I realized I wasn’t going to be cured and that I needed to fight with a well-rounded approach of many therapies and life style changes, I was empowered.  My label is just part of who I am.  I am a mom, a wife, a daughter, a sister, an aunt, a friend, a teacher, a blogger, a dog and chocolate lover, a travel enthusiast, a Chronic Migraine sufferer and so much more.

What’s your diagnosis? 

How do you feel it defines your journey? 

Weather Swings and Migraine

I wish weather swings were as fun as real swings.  The way my kids laugh going up and down, back and forth looks fun.  Instead, the temperature goes up and down making my head sway back and forth.  

Weather is a huge trigger for me!   Living in Cleveland is not ideal for this!  From what I’ve read, it happens most places though, so I’m not going to blame it fully on location.

This week we had a 30 degree shift in two days!  There goes my head.  The barometric pressure squeezes me like a vice.  I have a barometer in my kitchen but I don’t need it because I am triggered before it registers.  My allergies kick up and my head gets so much pressure in it I feel like my eyes are popping out. 

The wind, hail and lightning against my windows gave me generalized pain EVERYWHERE.  The migraine, my joints, my stomach, the fatigue all revolved around the weather.  I’m so much better when it just stays the same.

So how do I stop the weather?  I haven’t been able to figure that one out.  I have no ideas on how to even prepare for the swings when I know it is coming.  I don’t like to take meds to prevent them because I would be doing that several times a day with the amount of triggers I have and the pain state I live.  

So how do I help myself during the swings?  I drink lots of water, keep my rescue meds close by, eat anti inflammatory foods, stay on my sleep schedule, try to take stress in stride and continue to do what I can to brace the not so fun swing I’m about to ride.

Where do you live?  

Do do these weather swings trigger you too? 

How do you deal with weather swings and shifts?

I know I’m not alone! 

Thankfuls to remember and add to


Thank you to everyone who participated in sharing your thankfuls during the month of November.  Here are a few that I hope to look back on during the year to be remind of how much there is to be grateful for!  Please feel free to comment and add on to our list.

“I want to thank you for opening up about your journey.  To find you and to know you can function as a mother, human being and to love life even after 25 years has been so encouraging.  I have not found this before.  But when I have read your blog I feel there is hope as a mother, a nurse and wife.  Thank you in many ways!”

“I’m so happy you made this post!  I think you have the most amazing positive attitude by always seeking out the good things in life despite the pain!  I am exceedingly thankful for the love of my son and two little bunnies who cuddle with me when I need to be touched.  I am thankful that I am able to live near the ocean and travel there to feel the healing power of nature when I need it most.  And I’m thankful for the empowering influence of woman like you on the internet!”

“I am thankful I found your blog!  I think you may be my migraine twin.  As I read your posts, it is like I wrote them.  I am a year older than you but have not had a baby yet, mostly because I am terrified of migraines during pregnancy.  It is encouraging to hear your stories.  Thanks for posting!”

“Thank you for sharing this!   I can relate 100%.   I am thankful for my pain and who I have become because of it.”

“I opened up two gifts this morning, my eyes.  I’m grateful for that.”

“I’m thankful to be alive.  A dear friend is in her final days….each moment spent with her is a reminder of how precious life is, even when living with pain.”

“I am thankful I have great friends that are here to celebrate with me even though we only see each other a few times a year.”

“I am thankful for a full day here and there without a migraine.  I cherish those and makes me more grateful for a pain free day.”

“The roof over my head.  My family and friends that I’m able to advocate for myself and others.”

“I am thankful that I still have my mom alive at 91.  And I am very thankful for my grandchildren.”

“I am thankful for a peaceful room and my medication when I have migraines”

“Bless you for your kind caring heart!”

I am thankful for:

“Loving partner, family friends, warm bed, and migraine awareness spread.”

“My fiancé, my family, good doctors (there are so few).”

“Food!”

“Your blog posts that make me cry”

“Waking up and eating”

“Food, husband, kids, best friend.”

 

“Sow gratitude. Reap. Joy”

What are you thankful 

for?

 

 

 

Zecuity for Migraine treatment

IMG_5603.JPG

Recently I shared my experience taking Zecuity, a new medication, with New Life Outlook.

It’s an informative experience that you can learn from.

Check it out and tell me your thoughts.

IMG_5604

Zecuity via My Migraine Life

Migraine Awareness Band GIVEAWAY

IMG_7135 (1)

As the last week of June continues, so do the GIVEAWAYS!  To end the month, I encourage you to continue advocating throughout the year.  But how do you advocate?  How do you show support for migraine awareness and continue to help?  It’s not as hard as you think.

I simply wear purple.  Purple is the color of migraine awareness.  I like to wear purple in hopes that someone will comment on it and I can explain how purple represents migraine awareness.

Another way I show support is by wearing migraine gear.  I have t-shirts from events that I have supported and donated to.  I’m a walking advertisement for the cause when I simply wear my tshirt.

I also wear a  migraine awareness band from The Migraine Cause

What if you don’t have gear?  Here comes the giveaway!!!!!

I have partnered with themigrainecause to giveaway 3 bracelet bands

The migraine cause was created almost a year ago. The mission has always been to raise migraine awareness and to help find a cure through bracelets since 15% of sales are donated to the National Headache Foundation. The main goal is to expand the online shop with many more items that help support migraineur’s and spread awareness. She started the migraine cause because she realized how many people suffer from migraines and how many people don’t realize how debilitating it is to have them. The creator has had migraines for 5 years and her life hasn’t been the same ever since. She knows a lot of her triggers now and avoids them as much as she can but still finds it hard to manage. The one thing that has really helped with her migraines is eating cleaner and healthier. What you put in your body is very important because it will cause your body to react in a positive or negative way. Barbara really hopes to accomplish her mission and goals for the millions of people that are suffering. “ www.themigrainecause.ecwid.com

themigrainecuase band

I have been  given 3 migraine awareness bands to giveaway!

To Enter:

  1. Visit and Like My Migraine Life on Facebook (liking is not mandatory for entry but recommended)
  2. This promotion is in no way sponsored, endorsed or administered by, or associated with Facebook.  By entering, entrants agree to a complete release of Facebook
  3. Leave a comment on How you try to spread awareness?  And who you advocate for?

Additional entries

  1. Follow @mymigrainelife on twitter
  2. Tweet about the giveaway

Follow also on Instagram

ENTER HERE!!!!
a Rafflecopter giveaway

U.S. residents only.  Starts today and ends 7/6/2016

Good Luck!!!!! Please share with anyone who may want to wear a migraine awareness band and continue to spread the word of how serious living with Migraine is.