Starting school, making friends and my hopes for my children’s future

As the school year begins, I have been thinking about my childhood a lot.  I actually have a friend who I have had since I was 5 and a neighbor that became family when I was in 4th grade.  Since then, I have gathered a great group that have made me who I am today.  My “oldest” friends are the ones who know a little piece of me that no one else knows does. They have been there since the beginning.

As the school year begins I think about how my children are starting their “beginning.”  When they go to school they hopefully will find forever friends like I did.  All too soon they will be listening to those friends more than they listen to me and that is terrifying.  Other influences will guide them through school, sports, nights out, big dances, academics and everywhere in between.

These are the people that they will laugh, cry, and grow with.  They will think that the world has ended with a break up and think that missing a party will ruin their lives forever.  They will lie to me, hide things from me, and grow in a blink of an eye.  I just pray that we have raised them well and that their choices in friends have had the same.

They are growing up in a world that is filled with so many more challenges than I ever had to face.  I think we are the first generation to say, it was easier when we grew up.  Social media didn’t run our lives.  Our bullies said it to our faces.  As cruel as it was, it wasn’t the massive amounts of people who can hide behind a screen to say words that crush someone’s soul.

Our football players fought with their fists.  Now they fight with guns.  I wasn’t fearful for my safety.  Columbine shook our lives with the unheard of massacre of many.  Now it’s a part of life that you can’t fly, go to school, the movies, work or a playground without being on high alert.

We didn’t sit at home searching the internet.  We were out riding our bikes and playing endless hours of baseball.  My neighbors watched me and an army of adults were in contact with my parents.  I was held accountable for my actions by everyone.

If I got in trouble at school, I would be sure to hear about it when I came home.  Being a teacher, my student’s parents would blame me for their child’s actions.  They had  little follow through with accountability thus raising an entitled generation with little remorse.

I trusted the teachers and coaches that I spent countless hours with to strengthen and make me a better person.  Are teachers even allowed to do that anymore, or do they just hand them standardized tests?

The only person taking pictures of me was taken by my mom to be put into a family album, not spread on the internet for the world to see.  I grew up with privacy and felt safe.  I have happy, happy memories of my adolescence but remember it not being easy.

My children’s lives will not just be uneasy, it will hands down to hard.  And as a mom I’m so worried about it all.  Right now their tiny hands fit in mine when we cross the street and I pick their play dates.

Some day they will be embarrassed of me and go places that I’m not sure exactly what that they are  doing.  At that point I will rely on the way that we have raised them and their  forever friends that they have chosen.

My babies will always be my babies and they will be thrown into a grown up world well before they will be ready.   As my daughter stands before me in her princess dress I can practically see it as a homecoming dress. I can only hope she wants a beautiful ball gown that makes her glow from the inside out instead of a skimpy dress that she feels appropriate in this overly sexualized world.

As my son runs around in his super hero shirt, I pray he will be safe and this world won’t need saving.  He thinks he can fly and has super strength.   He already has made everyone’s lives better that knows him.  I just hope his ambition and spirit never fades.

I see their innocent smiles and I just want to freeze these moments in time so I never have to see them cry.  I just want to hold them and keep them with me forever.  But I know I can’t do this.  I want and need them to find those forever friends to be something that I can’t.

I need my daughter to understand that although boys are great, every girl needs really good friends.  Men try their best to figure us out, but friends don’t need to.  They just get it!

Their friends will get them through things that really matter when they really matter.  I want them to accumulate all of the wonderful memories that I had and continue to have with my friends that I love so much.

I don’t feel old enough to say that I have friendships almost 30 years but I do.  I’m not sad about my age.  I am proud that I have achieved so much and created so many important relationships during this time.  I’m so happy that I am secure, confident, loved and stable in so many ways.

I no longer have people in my life that are unimportant and as a girl it takes a long time to be happy with yourself and I am.    Life can be so hard yet so wonderful.  I can just pray that my children find people to get through the hard parts of life that I can’t be there for and make the wonderful memories all that sweeter.

May they grow to be happy and healthy.  May they find forever friends who guide them to make good choices and as they guide others.  May they laugh and value people for who they are inside.  May they teach others while they learn so many lessons.   And please God, may they be safe!  As they leave my nest of safety I trust you will watch over them and that the good people of this world will do the same.

World Migraine Solidarity Day

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Time to launch the first annual World Migraine Solidarity Day campaign!

The Association of Migraine Disorders (AMD) have initiated the Shades for Migraine campaign and website.  This campaign is intended to be an annual event.   

“So….on Wednesday, June 21, let the world know about it!  Let the millions of sufferers know that you care… that you know they aren’t faking an illness… that you know much more needs to be done to find a cure and give them relief… that you want to help give migraine disease the prominence it deserves.” https://www.shadesformigraine.org/

Participating is simple…

Post a photo of yourself (and friends/co-workers) wearing your Shades for Migraine on social media using the hashtag #ShadesForMigraine.”

1.   Post a photo of yourself wearing sunglasses

2.   Hashtag the photo with #shadesformigraine

3.   Challenge at least 2 other people to do the same

4.   Don’t forget to wear your shades ALL DAY long on June 21st, the longest day of the year.

5.   Tag @mymigrainelife so I can support and see those shades!

 

They just need to be visible…hanging around your neck, hanging from your shirt or propped on your head are options if you can’t wear them on your face the entire day. Wear them indoors and in places where people usually don’t wear sunglasses.  Be silly. Wear goofy ones if you dare. Let them make a statement…  Start a conversation…

 

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ChronicAlly Box for Migraine Awareness Month

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Here’s your opportunity to treat yourself to a box made just for migraine sufferers!

I am an affiliate of ChronicAlly Box which means if you purchase a box I will receive a small compensation for my recommendation.  Thank you!  I am pleased to tell you about this fabulous box made just for Migraine Awareness Month!

 

What is ChronicAlly Box?

“The FIRST ever Chronic Illness Woman & Girl’s Health & Beauty Subscription Box. We’re so glad that you’re here! Have a look around and pick out your favorite subscription! If you’re here buying a gift for a chronically chic loved one, be sure to check out our Gift Bar! Sign up for our mailing list to receive an email including a code to get 10% off for life!”

Purchase Here

“To celebrate & keep the Migraine Awareness going, ChronicAlly Box will be curating a LIMITED EDITION Migraine Awareness Box for July’s Delivery! We will be taking Migraine Box orders now until June 20th!”

“Purchase off of The Gift Bar, or if you already have a subscription, email us at info@chronicallybox.com, and specify that you want your July CAB to be this LIMITED EDITION Migraine ChronicAlly Box!”

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I reviewed a box for ChronicAlly and really loved it!!!  I’ve now purchased a Migraine Awareness Box and can’t wait to receive it in July.

 

Mile for Migraine charity walk/run 2017

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This year, I started a virtual team for Miles for Migraine. “Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun run events, typically 5k and 10k races to raise money for migraine research, and also hosts youth camps for kids and teens impacted by migraine or other headache disorders.”

I love this race because we all can participate virtually.  My goal is to raise $300 in honor of my blog being 3 years old this summer!

Please go to my pledge page and make a donation if you are able.  All or part of your donation may be tax deductible as a charitable contribution.

The fundraiser will go through the month of June in honor of Migraine Awareness Month.  If you’d like to see me reach a goal, please specify and I will do my best to honor it.  If you’d like to make a miles goal, please take a picture of yourself making those miles for My Migraine Life and I will happily post it and give encouragement as always.

The great part is, no race day, no big commitment, just motivation.  If you don’t have the money to donate, please participate by walking a mile or moving one day and tag me in your success.

I want to thank any of you in advance for your donation and participation.  The smallest amount makes the biggest difference. THANK YOU!

Donate

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*Once you’ve donated and/or made a commitment to walk a mile, don’t forget you have a chance for something FREE!!!!  Enter my giveaway for a Migraine Awareness Band that ends 6/10/2017  Enter NOW!!!

 

Migraine Awareness Band Giveaway!!!

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This week I will be doing a *giveaway* of 2 Migraine Awareness bands.  The official color of Migraine and Headache Awareness Month is purple.  These bands are a perfect complement to anything you are wearing and promote conversation and ways to spread awareness.

The contest runs 6/2/2017 (12am) through 6/10/2017 (12am)

You MUST:

Comment on this post and

Like My Migraine Life facebook page

(please do this through rafflecopter link below)

Additional entries:

Follow twitter page

Tweet about the giveaway

Follow on Instagram

*Please share*

 

 Enter Here: Rafflecopter giveaway

themigrainecuase band

No purchase necessary.  US residents only.  This promotion is in no way sponsored, endorsed or administered by, or associated with Facebook, twitter or instagram. You understand that you are providing your information to the owner of My migraine Life and her social media and not to them.

Axon Optics Migraine Glasses, natural relief

*This post contains affiliate links.  This means if you buy and click from this post I will be compensated by the  affiliate.  This in no way alters my opinion and I only recommend things I use.  I use these often!  I was given a pair to review and have used them often since.

Natural Relief

Before I had children I was a special education teacher.  The years after college; I was teaching, coaching, tutoring, and getting my Master’s degree.  That was all? ha.  At this point my migraines became chronic and pretty much elevated to a new level.  Stress, lack of sleep, noise levels and inconsistent diet triggered me daily.

Along with these were the lights!  I taught in very harsh florescent lighting during the day, coached in a bright gym and sat in front of a computer doing homework or lesson plans.  My eyes were so stressed that I sat in the dark during my free period and had the monitor brightness turned as low as possible.  I didn’t have a smart board at that time but if I had worked with one, I know I would have been pained every time I used it.

This was all before I was given a pair of Axon Optics to review.

I wish so desperately that at that time I had Axon Optics migraine glasses.  They have FL-41 lenses that block  blue-green light which was developed to reduce sensitivity to fluorescent lighting.  They sell a range of products that can fit many eyewear needs.  I found working with the Axon Optics staff easy and simple.  I appreciate this greatly!

I now use them to blog (I’m wearing them now!) and when my photophobia is heightened (which is everywhere!).  I use them everyday.  I wear them making lunches and dinner, doing homework, reading books, doing computer work, going into stores, starting my day (anywhere) and more.  If you see me, I’m wearing them!

Use code:Axontweet

Check them out….. Shop our best-selling migraine relief glasses and sungasses.

 

 

Botox, Topomax and preventatives for Migraine and their side effects

Recently I was asked why I don’t take preventative medicine for my chronic migraines. What a loaded question! I actually do, I get Botox but the effectiveness is hit or miss and I get different side effects from the injections each time. I never know how I’m going to feel the days after, the effectiveness of the areas, and the time before it kicks in and wears off. This is the same as all preventatives with me.

Weighing the side effects and effectiveness is really what I have battled with for years. So  I took my medication vacation before I had children and  haven’t gone back to any (daily preventative) pills. Before this “vacation” and a ton of reflection, I didn’t understand the side effects that I was getting from the variety of medications that I tried. I have a hypersensitive body and brain which probably seems obvious. But growing up I didn’t understand the risks and damage that these meds were doing to me while I was under the impression that they would help.

I have taken dozens of different preventatives over the years….none of which are specifically made for migraine sufferers. They have been anti seizure, blood pressure, depression, and more. None of which I am diagnosed with. But in an attempt to curb these daily headaches and migraines I have tried it. I always trusted my doctor would steer me in the right direction but what I have learned is to trust yourself!

I was on Topomax for the longest amount of time and from what I remember was the most effective for the greatest amount of time for me. I say, from what I remember because memory loss, fuzziness and concentration issues are just a few of the many side effects I had from Topomax. I started out on a low dosage and slowly increased to keep up with my growing migraines.

Topomax didn’t make me loose weight like many have reported but it gave me all the side effects mentally. I was tired, confused, loosing words, moody, dizzy, lost hair, had altered tastes in foods and more. The crazy thing is, I didn’t understand that these were side effects of the medication until years after I was off it.

I remember reporting some of my issues to my doctor but thought it was just associated with migraine pain and everything else that comes with it. The hindsight made me realize that I wasn’t crazy. The drugs I was given to help me were hurting me! It’s beyond frustrating to think I was taking these meds and they were making me worse.

I can’t tell you how many times I’ve gotten prescriptions and read the side effects and been both horrified and terrified. But most of the time I read it once I’ve bought it and it’s too late. I don’t have the money to be throwing away something that holds hope for me. The risks now just don’t outweigh the benefit to me.   I have never felt great on anything, so why continue to take anything? Nothing has been approved for my diagnosis so why am I a human guinea pig in the mean time?

This is not to say that I don’t think they work and no one should take them. Everyone is so different which is why the battle is real for all of us. None of us are the same and don’t get the results or side effects the same. I don’t necessarily regret taking these meds that didn’t work for me. I regret not being more informed!!!!!!! I regret feeling like I was crazy, a hypochondriac, and a waste of time and money searching for relief. I regret not listening to my body and understanding the side effects of my medications.

Side effects made my condition worse, gave me other issues to deal with and have caused a lot of problems throughout my journey. I didn’t understand that my growing and changing body would require changing meds and it wasn’t a fail. I now see it as another move in my game of chess.   I can now check those things off my list and say “I tried it and no thank you right now.”

Does that mean I’ll never go back on them? Of course not. I will do whatever I can to feel better. Some days are more desperate than others but most of the time I try to be realistic and think both short and long term. I used to think my doctor was going to give me something to leave with that would cure me and make me feel normal. I didn’t understand that it’s a journey and there are no cures. It’s a combination and balance in my life that I need to look for. I think if I was going to give some advice it would be, “Understand what you are taking, both preventative and rescue. Understand how they work together and dosages. Read and understand the side effects and risks of any medication that you use. Be careful, be safe, and hopefully be well!”

Do you take a preventative medication for migraine?  What side effects have you had?