World Migraine Solidarity Day

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Time to launch the first annual World Migraine Solidarity Day campaign!

The Association of Migraine Disorders (AMD) have initiated the Shades for Migraine campaign and website.  This campaign is intended to be an annual event.   

“So….on Wednesday, June 21, let the world know about it!  Let the millions of sufferers know that you care… that you know they aren’t faking an illness… that you know much more needs to be done to find a cure and give them relief… that you want to help give migraine disease the prominence it deserves.” https://www.shadesformigraine.org/

Participating is simple…

Post a photo of yourself (and friends/co-workers) wearing your Shades for Migraine on social media using the hashtag #ShadesForMigraine.”

1.   Post a photo of yourself wearing sunglasses

2.   Hashtag the photo with #shadesformigraine

3.   Challenge at least 2 other people to do the same

4.   Don’t forget to wear your shades ALL DAY long on June 21st, the longest day of the year.

5.   Tag @mymigrainelife so I can support and see those shades!

 

They just need to be visible…hanging around your neck, hanging from your shirt or propped on your head are options if you can’t wear them on your face the entire day. Wear them indoors and in places where people usually don’t wear sunglasses.  Be silly. Wear goofy ones if you dare. Let them make a statement…  Start a conversation…

 

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ChronicAlly Box for Migraine Awareness Month

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Here’s your opportunity to treat yourself to a box made just for migraine sufferers!

I am an affiliate of ChronicAlly Box which means if you purchase a box I will receive a small compensation for my recommendation.  Thank you!  I am pleased to tell you about this fabulous box made just for Migraine Awareness Month!

 

What is ChronicAlly Box?

“The FIRST ever Chronic Illness Woman & Girl’s Health & Beauty Subscription Box. We’re so glad that you’re here! Have a look around and pick out your favorite subscription! If you’re here buying a gift for a chronically chic loved one, be sure to check out our Gift Bar! Sign up for our mailing list to receive an email including a code to get 10% off for life!”

Purchase Here

“To celebrate & keep the Migraine Awareness going, ChronicAlly Box will be curating a LIMITED EDITION Migraine Awareness Box for July’s Delivery! We will be taking Migraine Box orders now until June 20th!”

“Purchase off of The Gift Bar, or if you already have a subscription, email us at info@chronicallybox.com, and specify that you want your July CAB to be this LIMITED EDITION Migraine ChronicAlly Box!”

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I reviewed a box for ChronicAlly and really loved it!!!  I’ve now purchased a Migraine Awareness Box and can’t wait to receive it in July.

 

Mile for Migraine charity walk/run 2017

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This year, I started a virtual team for Miles for Migraine. “Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun run events, typically 5k and 10k races to raise money for migraine research, and also hosts youth camps for kids and teens impacted by migraine or other headache disorders.”

I love this race because we all can participate virtually.  I have asked for virtual participation through “Runnin for Research”  to help raise money for American Headache Migraine Association in the past but this year I’m actually asking for donations and participation for Miles for Migraine for the first time!

My goal is to raise $300 in honor of my blog being 3 years old this summer!

Please go to my pledge page and make a donation if you are able.  All or part of your donation may be tax deductible as a charitable contribution.

The fundraiser will go through the month of June in honor of Migraine Awareness Month.  If you’d like to see me reach a goal, please specify and I will do my best to honor it.  If you’d like to make a miles goal, please take a picture of yourself making those miles for My Migraine Life and I will happily post it and give encouragement as always.

The great part is, no race day, no big commitment, just motivation.  If you don’t have the money to donate, please participate by walking a mile or moving one day and tag me in your success.

I want to thank any of you in advance for your donation and participation.  The smallest amount makes the biggest difference. THANK YOU!

Donate

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*Once you’ve donated and/or made a commitment to walk a mile, don’t forget you have a chance for something FREE!!!!  Enter my giveaway for a Migraine Awareness Band that ends 6/10/2017  Enter NOW!!!

 

Migraine Awareness Band Giveaway!!!

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This week I will be doing a *giveaway* of 2 Migraine Awareness bands.  The official color of Migraine and Headache Awareness Month is purple.  These bands are a perfect complement to anything you are wearing and promote conversation and ways to spread awareness.

The contest runs 6/2/2017 (12am) through 6/10/2017 (12am)

You MUST:

Comment on this post and

Like My Migraine Life facebook page

(please do this through rafflecopter link below)

Additional entries:

Follow twitter page

Tweet about the giveaway

Follow on Instagram

*Please share*

 

 Enter Here: Rafflecopter giveaway

themigrainecuase band

No purchase necessary.  US residents only.  This promotion is in no way sponsored, endorsed or administered by, or associated with Facebook, twitter or instagram. You understand that you are providing your information to the owner of My migraine Life and her social media and not to them.

Axon Optics Migraine Glasses, natural relief

*This post contains affiliate links.  This means if you buy and click from this post I will be compensated by the  affiliate.  This in no way alters my opinion and I only recommend things I use.  I use these often!  I was given a pair to review and have used them often since.

Natural Relief

Before I had children I was a special education teacher.  The years after college; I was teaching, coaching, tutoring, and getting my Master’s degree.  That was all? ha.  At this point my migraines became chronic and pretty much elevated to a new level.  Stress, lack of sleep, noise levels and inconsistent diet triggered me daily.

Along with these were the lights!  I taught in very harsh florescent lighting during the day, coached in a bright gym and sat in front of a computer doing homework or lesson plans.  My eyes were so stressed that I sat in the dark during my free period and had the monitor brightness turned as low as possible.  I didn’t have a smart board at that time but if I had worked with one, I know I would have been pained every time I used it.

This was all before I was given a pair of Axon Optics to review.

I wish so desperately that at that time I had Axon Optics migraine glasses.  They have FL-41 lenses that block  blue-green light which was developed to reduce sensitivity to fluorescent lighting.  They sell a range of products that can fit many eyewear needs.  I found working with the Axon Optics staff easy and simple.  I appreciate this greatly!

I now use them to blog (I’m wearing them now!) and when my photophobia is heightened (which is everywhere!).  I use them everyday.  I wear them making lunches and dinner, doing homework, reading books, doing computer work, going into stores, starting my day (anywhere) and more.  If you see me, I’m wearing them!

Use code:Axontweet

Check them out….. Shop our best-selling migraine relief glasses and sungasses.

 

 

Botox, Topomax and preventatives for Migraine and their side effects

Recently I was asked why I don’t take preventative medicine for my chronic migraines. What a loaded question! I actually do, I get Botox but the effectiveness is hit or miss and I get different side effects from the injections each time. I never know how I’m going to feel the days after, the effectiveness of the areas, and the time before it kicks in and wears off. This is the same as all preventatives with me.

Weighing the side effects and effectiveness is really what I have battled with for years. So  I took my medication vacation before I had children and  haven’t gone back to any (daily preventative) pills. Before this “vacation” and a ton of reflection, I didn’t understand the side effects that I was getting from the variety of medications that I tried. I have a hypersensitive body and brain which probably seems obvious. But growing up I didn’t understand the risks and damage that these meds were doing to me while I was under the impression that they would help.

I have taken dozens of different preventatives over the years….none of which are specifically made for migraine sufferers. They have been anti seizure, blood pressure, depression, and more. None of which I am diagnosed with. But in an attempt to curb these daily headaches and migraines I have tried it. I always trusted my doctor would steer me in the right direction but what I have learned is to trust yourself!

I was on Topomax for the longest amount of time and from what I remember was the most effective for the greatest amount of time for me. I say, from what I remember because memory loss, fuzziness and concentration issues are just a few of the many side effects I had from Topomax. I started out on a low dosage and slowly increased to keep up with my growing migraines.

Topomax didn’t make me loose weight like many have reported but it gave me all the side effects mentally. I was tired, confused, loosing words, moody, dizzy, lost hair, had altered tastes in foods and more. The crazy thing is, I didn’t understand that these were side effects of the medication until years after I was off it.

I remember reporting some of my issues to my doctor but thought it was just associated with migraine pain and everything else that comes with it. The hindsight made me realize that I wasn’t crazy. The drugs I was given to help me were hurting me! It’s beyond frustrating to think I was taking these meds and they were making me worse.

I can’t tell you how many times I’ve gotten prescriptions and read the side effects and been both horrified and terrified. But most of the time I read it once I’ve bought it and it’s too late. I don’t have the money to be throwing away something that holds hope for me. The risks now just don’t outweigh the benefit to me.   I have never felt great on anything, so why continue to take anything? Nothing has been approved for my diagnosis so why am I a human guinea pig in the mean time?

This is not to say that I don’t think they work and no one should take them. Everyone is so different which is why the battle is real for all of us. None of us are the same and don’t get the results or side effects the same. I don’t necessarily regret taking these meds that didn’t work for me. I regret not being more informed!!!!!!! I regret feeling like I was crazy, a hypochondriac, and a waste of time and money searching for relief. I regret not listening to my body and understanding the side effects of my medications.

Side effects made my condition worse, gave me other issues to deal with and have caused a lot of problems throughout my journey. I didn’t understand that my growing and changing body would require changing meds and it wasn’t a fail. I now see it as another move in my game of chess.   I can now check those things off my list and say “I tried it and no thank you right now.”

Does that mean I’ll never go back on them? Of course not. I will do whatever I can to feel better. Some days are more desperate than others but most of the time I try to be realistic and think both short and long term. I used to think my doctor was going to give me something to leave with that would cure me and make me feel normal. I didn’t understand that it’s a journey and there are no cures. It’s a combination and balance in my life that I need to look for. I think if I was going to give some advice it would be, “Understand what you are taking, both preventative and rescue. Understand how they work together and dosages. Read and understand the side effects and risks of any medication that you use. Be careful, be safe, and hopefully be well!”

Do you take a preventative medication for migraine?  What side effects have you had?

Why it’s important to be connected to a self care movement and be a self care advocate

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I was approached by SelfCareMovement to share why it’s important to be connected to a self care movement and be a self care advocate.

First, what is the self-care movement?
“The mission is to transform perspectives about chronic illness and the way we manage it, to celebrate the greatness in ordinary accomplishments that patients face every day.”
“When people think of chronic disease, they typically think about the medical aspects of managing and coping with it. The less palpable aspects of everyday life with a chronic illness are often left unspoken about.” (see spoon theory)
Secondly, why is it important to be part of this movement and advocate?
That answer is a bit more complicated and ongoing.  I guess the simple answer is, if I don’t take care and love myself, my health will dramatically fail.  And if mama’s not well, the family can’t be its best.  So I take care of myself for myself.  I also do it for my kids, my family, my friends and my coworkers.  But the bottom line is, self care is for me to be able to enjoy those people, be with those people and be there for them at my best.
This is why I think it is important to advocate for self care.  As a mom, wife, and all those other roles I play, I have put myself last.  Putting myself last ends up triggering me and making me sick.  So I have learned that by taking care of myself takes care of them.  I advocate to be an example and reminder to those who don’t put themselves at the top of the list.
I post pictures on Instagram that I hope inspire healthy living, mind, body and soul.
I tweet and retweet migraine and chronic illness information to spread awareness and knowledge
I blog about My Migraine Life to show my readers that life is full of suffering and growth which can turn into something beautiful.  I try to be positive in the dark times and lift those up who need it.  We all go through a rollercoaster in life and being a positive light as a migraine sufferer and mom hopefully brings hope and inspiration.  I find great inspiration from comments, shares, likes and support I get from sharing my stories.  Knowing that I’m helping is very rewarding!
“Self-care is about experiencing greatness in the ordinary and simple day-to-day activities that help people feel better despite the challenges of illness.”
— Grace Soyao, Founder & CEO, Self Care Catalysts
Some examples of what I do to feel better despite migraines are:
  • Working out.  Walking, hiking, yoga, elliptical, stretching
  • Drinking lots of water.
  • Eating well.
  • Quality sleep routine
  • Acting like a kid again.  Playing, listening to music, singing,  games, sports, art, reading, and being creative
  • Pampering myself. I love massages, Espom salt baths, saunas and mani/pedis
  • Snuggles.  Touch is a powerful thing.  Tiny arms can give big  love and furry friends can be therapy.
  • Strong relationships.  Weather it’s date night, girls night out, family dinner, coffee talk or a quick chat at the water cooler.  Having positive people that lift you up important for self care
  • Vacation. Long, short, near, or far.  Feeling like I have gotten away changes my mentality
How do you connect to the Self Care Movement?  How do you advocate for yourself with self care?  Your ideas may inspire someone to take better care of themselves
For more information on Self Care Movement go to:
Website
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Twitter
Instagram