Why I’ve joined up with Miles for Migraine and Increased My Advocacy

I recently got a flashback of one of  my first posts ever.  It was super exciting to see how far I’ve come and how I’m meeting my goals from  4 years ago.  This post explains how I want to help children and be part of a charity that raises funds for migraine and lowers stigma.

I’m proud to say I’ve found it and I AM saying “Wow, look how far we’ve come.”  If you see me post about Miles for Migraine it’s because I feel strongly that it is making a financial and community difference.

After the 2 races we  participated in, Team My Migraine Life raised $2,192.91.

I was asked to give my patient perspective at both races.  I also donated 9 inches of my hair between this time!  We  raised funds, raised awareness and lowered stigma for migraine.  My children were at both events to hear me speak and are not only learning about their mom at each event but how it affects so many others!  We will be the ones to make change and we will be the ones to pave the way for a less painful stigmatized future.  I’m so proud!

Check out a post I wrote in the first week ever of blogging…..

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Patient Perspective on My Migraine Life

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I was asked to tell my patient perspective  on having migraine at the Miles for Migraine inaugural walk/run in Cleveland.  In the speech, I named my support system “My Migraine Lifers.” I feel honored to be a voice for all of us who live our Migraine Lives and all of those who fight by our sides.

Thank you Katie.  And thank you Miles for Migraine for putting on this event.  It feels so good to be among such migraine fighters.  Migraines are typically fought in the dark and in the quiet. Today we are stepping out and putting a face on what we often fight behind closed doors and I’m so excited to be here.

I think it’s amazing how all of our stories are so different, yet we have some things in common:

I’ve thrown up 3 times on my way to work with a migraine and had my boss tell me he “had a headache too.”

I know I’m not the only one who fights this stigma.

I’ve lost friendships and missed events both big and small.

I know I’m not the only one who hopes for better understanding.

I’ve spent endless money on medications, products, therapies and anything that promised the smallest amount of relief.

I know I’m not the only one looking for lifestyle changes and better treatment options.

I’ve been judged and by no one more than myself.  The guilt, sadness, anxiety, “what ifs” add up for us all.

But This is why we are here today. To break down the stigma, to help others and to say thank you to all those who support us.

I’ve had Migraines since I was 5.  I don’t have many stages of my life that I don’t recall how they affected me.  Both of my grandmothers and my mom suffered from Migraine.  We had an idea of what it may be but had no idea of the difficult journey that lay ahead.

After years of searching for why I felt so awful, Dr. Reed was the first doctor to make me feel like I wasn’t crazy.  She didn’t promise a cure, because there isn’t one.  But she promised to help and join my fight and her whole office did.

After all of these years, I have learned to be thankful every day.  I have gained gratitude and there is nothing I am more grateful for than “My Migraine Lifers.”

I write a blog named “My Migraine Life.”  I tell my stories, share information and bring together a community of My Migraine Lifers.  With more than 36 Million people suffering from Migraine, everyone knows someone in their life who suffers.

My life feels like it is dictated by my migraines but I live a happy, blessed life because of all of these people.

It’s the group I have gathered over all of these years and the ones who suffer and fight right beside me.  It’s my babies, my husband, my parents, my sister and nieces, my friends, my coworkers, my doctors and the migraine community.  They are here with me today and if you look around they are here with you.

My advocacy hasn’t decreased my migraines or made them better.  I would love to tell you something different.  But what it has done, is brought a clearer picture of how if effects my life, how it affects others and how we can work together to be happier and healthier.

We all struggle, we all need understanding, and we all need support.

Thank you all for being here today on this really cold morning.

It’s not just about me or my fellow migraine warriors.

It’s about ALL of us.

I appreciate you all for taking steps in YOUR Migraine Life and supporting Miles for Migraine.

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With Dr. Reed, a neurologist who fought by my side for many years.  She was instrumental in getting Miles for Migraine to Cleveland and was asked to speak as a doctor’s perspective.

 

Miles for Migraine Walk in Cleveland 2018

There is less than a week left before Miles for Migraine comes to Cleveland.  This fundraiser is an amazing opportunity to bring awareness to Migraine and headache disorders along with raising funds to help improve the lives of those who sufferer and their families.

Interested in donating?  Go here

miles for migraine swag

Available to walk April 21, 2018?  Join us at South Mastick Park at 9:00am. Register here

THANK YOU

Headache Hat and raising money for Migraine and Headache Disorders

 

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Holding hands with my support animal and icing with Headache Hat.  2 of my favorite ways to battle Migraine.

 

This year I am participating in the Miles for Migraine walk.  I have done it virtually in the past and will physically be there this year in Cleveland and Cincinnati!  While not everyone can participate by being at the race, anyone can donate virtually.

Please consider helping me raising money for  improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine.

Donate Now

I’d like to give a SPECIAL THANKS to my favorite Migraine product and friend The Headache Hat.

With all of the products I have reviewed and used, the Headache Hat is by far the best!!!  I am not an affiliate of this product yet tell everyone about it!  My recommendation is purely for my love of this ice cube head band.  I have several in my freezer, both standard and halo.  I use one every night and often change it out in the middle of the night requiring more.  I am not sure how I ever lived without the Headache Hat!  I used to pile on bags of wet ice or lay on stiff ice packs leaving me immobile and uncomfortable.  I now can ice and move around my house if needed.

The Headache Hat is so special because:

  1. The individual ice cubes give an exact pressure point pressure and freeze. It is  individualized for each differing Migraine and headache pain.
  2. It is dry and stays in place.  No more waking up soaking wet and laying completely still without movement.  I can sleep with it and often make breakfast or lunches while moving around the kitchen.  I also wear in in the car!
  3. It comes in standard and Halo sizes.  The Halo size is loved by children for fevers, bumped heads and more.
  4. It’s not just for Migraine sufferers.  I recommend every house having one (or many like me!)
  5. The creator of the Headache Hat is concerned about making a difference and helping those of us suffering.  She is also a headache and Migraine sufferer.  She works really hard, while having a family of her own, and is changing the world for sufferers one hat at a time.
    • She has recently been seen on Kelly & Ben winning the Good Housekeeping seal contest and HSN selling out!

Not only does she sell an amazing product, advocate and help so many, but she has been so generous in donating to MY MIGRAINE LIFE team for Miles for Migraine.

Thank you HEADACACHE HAT!!!  You have changed my life and will continue to change the lives of so many more.  Your generosity is more than appreciated!  Your hard work and product  is felt deeply in my heart and daily on my head!

Want to make a difference?  Please donate

Able to walk or run in Cleveland April 21, 2018?  Please join my team

 

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This is the face of Migraine.  No make up, puffy face, pained.  While my children both had the flu and I had a Migraine, this is the way we watched our Disney movies that day.

 

 

 

Miles for Migraine Race in Cleveland 2018

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On Sunday, April 21st, 2018 I am lacing up my sneakers and participating in the first annual Miles for Migraine Walk/Run Cleveland, OH. This event benefits a cause that effects so many and has a mission that is particularly close to my heart and my family.

Miles for Migraine is a non-profit organization whose mission is to improve the lives of people impacted by migraine, and their families through social awareness, community and supporting research efforts for a cure. Migraine is not “just a headache”. Migraine is the second leading cause of “Years lived with Disability”.  In the United States, more than 37 million people have migraine. Everyone either knows someone who has migraine or struggles with migraine themselves.

This year I’m so excited to announce that Miles for Migraine is coming to Cleveland!  In the past, I have raised money and participated virtually.  Here’s how we did last year.  This year my goal is $400 in honor of beginning my 4th year writing My Migraine Life (In June) and taking steps toward a better Migraine Life for myself and millions of others. This is Cleveland’s  inaugural race!  I’m so excited to be there in person and walk my miles along side so many migraine supporters.

Please consider joining the My Migraine Life team or donating and participating virtually.  Getting to my goal will bring us all closer to an improved Migraine Life.

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Sprinly, plant-based meal delivery

 

 

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there is an affiliate code in this post. see disclaimer

 

This week I got another delivery from Sprinly, my favorite vegan fresh delivery meals.  If you live in the Cleveland area, I highly recommend them! Although Sprinly rewards me for my recommendation, I only write about products and services that I truly love and use!

I fully admit that I am not vegan.  Nor do I particularly love vegetables.  But Sprinly (use code REF7LVIUO2MLV for $20 off!!!) is some kind of wonderful and somehow gets me to love both!  I order them when I need a break from cooking, when I’m feeling like I need a reset in my diet and when I’m craving them.  I end up craving them because their meals are so delicious.  I feel so full from their meals and often can’t finish them in one siting.  I’m always so surprised by how satisfied I am after each meal but I guess that’s what clean proper nutrition tastes like.

What an inspiration to try!!!!!

To read more about Sprinly, here’s my review

If you are already a Sprinly customer (possibly by my recommendation;)) please vote for them for “Best of Cleveland 2017.”  Nominations are in and Sprinly has been nominated for “best local startup.”  Please go to the link, fill in the information and vote for Sprinly to receive this much deserved title.

If you live in the Cleveland area or know someone who does, please let them know about this amazing company.  It’s a great feeling knowing I’m eating good food, made my good people, trying to spread good vibes, all delivered to my door. YUM!

Thinking about trying?  Use code REF7LVIUO2MLV for $20 off!!!

 

Sprinly vegan food delivery review and coupon code!

 

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This post contains an affiliate link and code. see disclaimer

 

If you read my Holiday gift guide, you may remember me mentioning Sprinly as a source for healthy food.   I thought I’d share my experience with Sprinly and how they are helping Clevelanders and surrounding communities “live and maintain a healthier, happier lifestyle.  [They] have nutritionists that work together to provide you with delicious, honestly nutritious meals in the most convenient way.”

Sprinly is a plant-based food delivery service that provides fully prepared organic vegan meals. I have purchased food delivery services before and found them to be good but still some work on my part.  With other meal deliveries, I still had to do the work chopping and cleaning and getting my dishes dirty.  What I like about Sprinly is, it’s already done!  Lunch is grab and go, dinner is ready and there is no clean up.  The menu is customizable and the meal plans are flexible to meet different needs.  You can pause at any time and resume when ready.

Sprinly “aim[s] to inspire others to live healthier and eat more vegetables, and partner with mission driven non-profits who share similar values.” They “are building a team where everyone is working towards a common goal to create something greater for the health of our country.”

The meals I ate were delicious, a big portion, in a reusable bag and beautiful looking. I love the vast colors and knowing I’m “eating the rainbow” while getting such quality food into my diet.

Sprinly delivers within 30 miles of Cleveland including Akron

If you don’t live in the area, do some research on local places to order food around you. I think it’s a nice option for those weeks where you need some extra help (and spoons).  Quality food will make for a more quality feeling body which is what I need.  I crave junk food during my migraines and eat horrible before and after an attack.  Having Sprinly in my refrigerator ready to grab was a great way to eat when I otherwise wouldn’t have made a healthy choice.  Eating good feels good!

Thank you Sprinly for you great food, amazing attitude towards health and inspiration to be part of a community that wants to help….one meal at a time.

Thinking about trying Sprinly?  Use code REF7LVIUO2MLV for $20 off!!!

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