Disney World. The Good, the Bad, and the Migraine

Disney World

Disney World!!!!!!

 

I went to Disney World for 3 days and I could probably write a book on it.  Instead I’m going to focus on three things. The good, the bad, and my migraine.  So let’s begin with the good……

Where to begin. Disney World is called the happiest place on earth for a reason.  If you’ve been following me from the beginning, you know this is not the first time I have written about a Disney princess (A Whole New World?) I have loved all things Disney since I was a child and have been so happy to see my children fall in love all the same.  We spent an entire day at Magic Kingdom.  I had planned and saved like most families do and was eager to see how my dreams would come true for my family.

My personal favorite thing was to ride the rides.  I used to love rides but now enter them with a bit more trepidation.  I fear flashing lights, jerking motions and all those other triggers that come along with my migraines.  I also feared the weather, my diet, the stress, dehydration, and exhaustion.

But Tinker Bell sprinkled her fairy dust on me that day and I lived in a fairytale land.  I did however, prepare.  I had water bottles for all of us that I filled at every water fountain I saw.  I didn’t care about how many bathroom breaks we were going to stop at, we all were staying hydrated.  I also brought portable fans for my family that tends to sweat and me who tends to overhead.  I had snacks galore that were healthy and filling enough to stop us from stopping at every food stand we saw.  I had hats and sunglasses for everyone while we waited in the sun.

I didn’t stress at all because we were on vacation, we were together, and somehow I was feeling OK.  OK for me means super duper terrific on a day like our day at Magic Kingdom.  One of my highlights was watching my children meet the characters and waving to them at the parades. IMG_4327IMG_4332

Is there anything sweeter than a tiny hand waving at floats singing to music?  I found myself waving at everyone also, it was contagious. IMG_2246IMG_2186

I actually got to feel like a normal person that day.  I spun around in tea cups laughing and only feeling dizzy.  Feeling dizzy from your kids joyfully spinning you verses feeling dizzy from standing up on an average day is very different.

I felt shaky from my daughter “steering” a car on a track slamming from side to side and laughing from the depths of my gut.  This shaky is wonderful compared to shaking from pain masked by medication yet not masking muscle contractions.

At the end of the day I felt truly tired.  Not exhausted from fighting a migraine, tired from a long glorious day.  I was able to sing with Ariel in her grotto, the way I love to sing (Feeling better makes me sing)IMG_4360

I flew like I could fly

I flew like I had wings.  I took selfies without thinking how my smile was a mask for how I really felt.

The laughs, the joy, the magic was all from a low pain day.  From the opening song that made me feel butterflies in my stomach to the last firework that gleamed in my eye, I was feeling low pain.  Whatever it was; the adrenaline, the preventatives drugs, the preventative living, or  the intoxicating bubble of love and joy, I call it magic!

I could go on and on and on about how our day at Magic Kingdom was one of the happiest I can remember in a very long time (and I consider myself to live a happy life) but I will stop at saying it was perfect. For those of you who can’t relate to a perfect day, I thought it was impossible for myself.  But just like every perfect day comes reality.  Stay tuned for the bad and migraine party of my trip.

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Christmas and holiday migraine gifts

Every year I get migraine related gifts.  Why?  Because I need them!  The cool thing is, I learn and find new products that work each year.  The wonderful thing about doing product reviews is that I have the opportunity to find some products that really work for me.  I’ve answered a few of my own questions since last year and have updated my list in ALL CAPS in the gift list from last year.

*Some links may contain affiliate links

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Last year I received:

“Heated neck wrap

Headphones

Essential oil-  I still have not found a brand and type of oil that I’m in love with so I use a variety in my search. (I LOVE ORGANIC AROMAS! LOVE LOVE!

Yoga pants- I know it’s a running joke about wearing workout clothes out but I’m busy and if I’m dressed to move, I do.   Working out helps my migraines and sometimes escalates them so it’s a balance. (I SPORT MY PRETTY IN NINA B ROZE DISCOUNT CODE INCLUDED FOR A DISCOUNT!)

Love, hope, migraine tshirt

Infusion water bottle” (SEE ORIGINIAL POST)

 

This year I received more migraine related gifts

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Massage and heat neck massager.  I will be returning this…not a good fit for me

Heated boot socks.  I live in a snowy location and can never seem to get my hands or feet warm.  These will be well used!

“I got rid of my headache” tshirt.  Sometimes taking off my head seems like the only option

Car diffuser.  I get sick when traveling so my best friend sent me a diffuser to use with my favorite Organic Aromas oils.

I also gave and received 3photo-jpegOm products that I love!

What did you give or get that you love to treat your migraine or headache pain?

 

Migraine is a neurological disease

Migraine is a neurological disease caused by genetics and a hypersensitive brain.

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Photo by Karen Eh, content by Teri Robert

This is an especially important fact for me.  My mom and grandmothers both suffered from Migraines.  I remember my grandpa being very sensitive to me suffering after he saw my grandma suffer on the couch with a wet cloth for so many years.

I  am a mom that worries daily about the fact and  possibility of passing it on to my sweet babies.  It was one of the first thoughts I had when I found out I was having a girl and knowing her chances would be higher.  I observe her constantly for signs of Migraine.  I make sure my children eat well, have a constant sleep schedules, show them stress relief techniques and more.  I try my best to teach them the importance of health but am fully aware that I can not change their genetics that I passed on.

The hypersensitive brain is something that makes me feel sane.  For many many years I felt crazy for the ailments I have.  I always thought it was an abundance of different things, the idea that I wasn’t truly sick or that everyone else felt that bad and it was normal.  Once I learned about the scope of migraine and that it is my brain being hypersensitive, I was able to understand myself.

When I get asked why all the treatments I have tried don’t work, the answer is clear…..I can’t change my genetic makeup.  I can try to control it, prevent it, treat it, and live with it.  I won’t be cured.  This is a fact that many need to understand.  I suffer and many generations suffer.  It’s genetics and a hypersensitive brain.

I am hypersensitive to light, sound, touch, smell, heat, cold, weather, stress, hormones,  and more.  I get triggered by things people would never notice.  Once I’m triggered my brain becomes more sensitive.  Once I have had a migraine, I am at a higher risk for another one since my sensitivity is heightened.  This often throws me into a cycle because of medication rebound and my hypersensitivity not calming down.  It is very complex and difficult to deal with.

The brain is a very tricky thing.  A migraine brain seems impossible!

Disney World. The bad

I think it’s easy to take your health for granted. Remember that your health and the health of your children is precious! Don’t sweat the small stuff and enjoy life the best you can. You never know when things will change!

My Migraine Life

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Every good side has a bad side. I was happily surprised that I saw little bad while I visited Disney World.  The bad thing that I did see was ungrateful people.  My experience with meditation didn’t go well but something I find easy and beneficial to do every day is to show gratitude.  It comes easily being I have a disease that keeps me in a cold dark room and even the littlest bit of relief allows me to be grateful.  I also was a special education teacher for children with severe needs.   I can tell you that when you’ve worked with a child that is severely Autistic or is multiply handicapped you see the world in a different way.  So here’s the bad about Disney World….ungrateful adults.  I have always been able to work with difficult children because of the reminder that they don’t know any better.  I don’t give…

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Disney World. The Good, the Bad, and the Migraine

For those of you on spring break this week, here is a three part migraine story from Disney World. Remember to enjoy your time as much as possible!

My Migraine Life

Disney World                     Disney World!!!!!!

 

I went to Disney World for 3 days and I could probably write a book on it.  Instead I’m going to focus on three things. The good, the bad, and my migraine.  So let’s begin with the good……

Where to begin. Disney is called the happiest place on earth for a reason.  If you’ve been following me from the beginning, you know this is not the first time I have written about a Disney princess (A Whole New World?) I have loved all things Disney since I was a child and have been so happy to see my children fall in love all the same.  We spent an entire day at Magic Kingdom.  I had planned and saved like most families do and was eager to see how my dreams would come true for my family.  My personal favorite thing was to ride the rides.  I…

View original post 529 more words

Migraine gifts

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This year for Christmas, I got a migraine!  Well, actually I got 4 days of insane nausea (including throwing up) plus tons of pain EVERYWHERE!  This did not come as a surprise to me.  I had traveled the weekend prior to different climates and came home to stress with my family that completely threw me over the edge.  So I spent my Christmas Eve, Christmas, both before and after the way I spend most holidays (smiling on the outside and really battling inside).

So today is the first day I’ve been well enough to look through my gifts and reflect.  I got some great gifts that I thought I’d share.  None of these I am sponsored by and have tried to refrain from showing brands.   Here’s what I got for My Migraine Life:

  1. Heated neck wrap-  I use both heat and ice for different reasons.   I already have this neck wrap but got another one because I use it so often.  My old one has broken down over time and once I find  things I love, I tend to buy them again.  I love the weight on my shoulders and neck.  I even lay it on my face and head for sinus pressure.
  2. Headphones-  My husband bought these for me and I am excited to use them!  I don’t like ear buds.  I have a small head and the buds hurt my ears.  So I got some headphones that will reduce noise, are super comfy, and will help me while I fly.  I’m so sensitive to noise and know I will use them a ton.  If you notice, my headphones and water bottle are purple which is the Migraine Awareness color.
  3. Essential oil-  I still have not found a brand and type of oil that I’m in love with so I use a variety in my search.  The kind I received is in a roller that I will keep in my purse.  It has a pleasant smell that I can use to distract me from heavily saturated smelly places and on my pressure points to help me relax.  I currently have one and use it often when I’m out and feel my migraine raising.
  4. Yoga pants- I try to move and stretch my body as much as possible.  As a stay at home mom and woman who fits in a workout where she can, I live in workout pants.  I know it’s a running joke about wearing workout clothes out but I’m busy and if I’m dressed to move, I do.   Working out helps my migraines and sometimes escalates them so it’s a balance.
  5. Love, hope, migraine tshirt- I have been trying to support migraine awareness by wearing clothing that talk about migraines.  I have supported foundations and received tshirts and I have received ones like this that have the word migraine on it.  I like to wear these clothes in hopes that someone will ask me about migraine awareness or feel comfortable to talk to me about their situation.  Just wearing a tshirt  brings awareness.
  6. Infusion water bottle-  I try to drink as much water as possible to stay hydrated.  I get sick of water!  I got an amazing infusion water bottle with recipes to flavor my water naturally.  When I buy flavored water I see ingredients that I don’t know and what I don’t know about ingredients usually triggers me.  I’m excited to be putting real natural flavors into my water!  I know my kids will love it too!

While I was sick at Thanksgiving and at Christmas I know I’ll live to fight another day.  I’m lucky my family is thoughtful enough to give me some tools to fight more.

What did you get for Christmas that may help?

 

Ice vs Heat when treating a migraine 

This weekend I celebrated Christmas with my in laws. My husband gave me a heated neck wrap. As I look back at what I wrote last year, I see that not much has changed. I still use both (check out my “things I love page to see my favorite ice). What do you prefer? Heat or ice?

My Migraine Life

Icing and heating are common practices in treating Migraine but what method is best?  Well, like everything else, we are all different and I use both at different times for different reasons.  When I was pregnant there was not a time in my first trimester that I was not doing one or the other.  I wasn’t able to take medication so this gave me relief or at least piece of mind that I was doing something.  When push comes to shove, ice is really the best for me when a migraine is escalating or I’m hit with it.  When I am at a 10, I don’t just put on ice eyes, I make a complete ice helmet to freeze my brain from screaming.  I use two massive ice packs that my husband received from knee surgery, which covers my entire head.  I then lay on a large pack to freeze…

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