Migraine Awareness ChronicAlly box to relieve, relax and enjoy!

This month I got my Limited Edition Migraine Awareness ChronicAlly box.*  During the month of June, Migraine Awareness month, the box was offered to support Migraine Research Foundation.  I had treated myself to a 3 month subscription for June, July, and August.  My birthday is in August so “Happy Birthday to me!”  It’s been fun to receive a package made for comfort, support and with love.

migraine chronically.jpgThe box had something to use in a variety ways for My Migraine Life.

It included:

A sleep mask to block out the light.

An organic essential oil and electrolyte spray for pain and migraine relief

Headache and migraine relief roller for pressure points

Shower fizzie with lavender, eucalyptus and peppermint

Meditation unscented soy candle

I love it!  I’ll use the products to sleep, take a bath & shower, on the go and at home.  They are great “allies” for my headache and migraine needs! Check out all ChronicAlly has to offer here*

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Don’t forget to endorse My Migraine Life for Wego Awards.  Please scroll down to the thumbs up and endorse for Best in Show: blog, Instagram, Facebook, and twitter.  Tweet and share on Facebook to let others know.  I appreciate you taking the time to say “Thank you!” and “Keep up the good work!”  It means a lot to be recognized for my hard work for the Migraine and Chronic Illness community.

 

*This post contains an affiliate link

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Migraine World Summit

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The Migraine World Summit April 15-20, 2016 Register for FREE

* Some of the links in this post are “affiliate links.”  This means if you purchase the item from clicking here, I will receive an affiliate commission.  This in no way alters my opinions or reason why I am referring you to them.  I use everything I recommend.

Recently I was contacted by the host of the Migraine World Summit.  It sounds like a great opportunity to get questions answered, a chance to learn about migraines and a way to participate in the migraine community from the comfort of your home.  Many of us have trouble traveling, can’t sit in fluorescent conference rooms or have the funds to participate.  If this is your case, the good news is….it’s FREE and from HOME!

 The Migraine World Summit runs from April 15-20, 2016

Anyone may attend for free, just register here: https://www.migraineworldsummit.com/

Dr. Rigaux, the CEO and inventor of Cefaly (the only FDA-device approved for the preventative treatment of migraines) as well as 30+ other doctors will be speaking. The doctor of Axon Optics will also be a doctor participating. If you don’t know who Axon Optics is, they are migraine glasses to help with  photophobia ! Shop migraine relief eyewear at Axon Optics.  *
I love them!   There will also be experts from Harvard Medical School, the Mayo Clinic, Stanford Medical, the Cleveland Clinic and the International Headache Society. It will feature interviews with Migraine Research Foundation experts, a group that I love and encourage you to support.

Here is a link to the medical professionals who are speaking: http://www.migraineworldsummit.com/speakers

Here is the press release sent to me:

 World’s First Migraine Summit Set to Relieve Pain Experienced by Millions

 Over 30 doctors, professors and specialists have gathered from world leading institutions to help answer some of the most difficult questions for patients in desperate need of relief.

Migraines are more common than diabetes, epilepsy and asthma combined. [i] There are 956,000 thousand migraine attacks every day in the USA[ii] with around 37 million affected.

Carl Cincinnato, host of the Migraine World Summit, sees how migraine can cripple an individual over time:

“Migraines can be devastating to someone’s quality of life. It can affect not only their physical well being, but their relationships, family life and in severe cases their ability to keep a job and have a career.

There is still a stigma associated with migraine. Many people feel guilty or ashamed to admit they have a migraine. Migraines can also lead to depression and anxiety as many struggle with the isolation, lack of progress and lose hope.

Research shows a direct link between the frequency of migraine and a person’s quality of life.”

Migraines were recently found to be the 6th highest cause of disability worldwide in terms of years lost to disability [iii] A severe migraine can be as disabling as quadriplegia or active psychosis.[iv]

Despite the prevalence of migraine, it remains under diagnosed and under treated with less than 50% of patients consulting a physician.[v]

For those who do seek help, finding the right doctor can be difficult.

Just 4 hours are committed to headaches disorders in undergraduate medical training worldwide.[vi]

The US is one of the few places where there are subspecialty certifications for headache medicine, yet there is only one headache specialist for every 85,000 patients.[vii] This shortage is consistent worldwide.

The Migraine World Summit provides unprecedented access to dozens of experts for those suffering from this debilitating disorder.

Dr Pierre Rigaux, CEO of Cefaly Technology and inventor of the innovative Cefaly®, the only FDA-device approved for the preventative treatment of migraines, is one of the speakers at the event.

Specialists require referrals, patients may incur significant costs and there can be waiting lists when treating migraines.  The Migraine World Summit is a great opportunity to jump the line and get into the room with doctors to hear the latest best practice and approaches being used from some of the best in migraine.

[i] Headache Disorders – not respected, not resourced. All-Party Parliamentary Group on Primary Headache Disorders. 2010.  Migraine Trust

[ii] Steiner TJ et al. The prevalence and disability burden of adult migraine in England and their relationships to age, gender and ethnicity. Cephalalgia. 2003;23(7):519-527.

[iii] Steiner, Timothy J., et al. “Headache disorders are third cause of disability worldwide.” The journal of headache and pain 16.1 (2015): 1-3.

[iv] Blumenfeld, A. M., et al. “Disability, HRQoL and resource use among chronic and episodic migraineurs: results from the International Burden of Migraine Study (IBMS).” Cephalalgia 31.3 (2011): 301-315.

[v] Pavone E et al. Patterns of triptans use: a study based on the records of a community pharmaceutical department. Cephalalgia. 2007;27(9):1000-4.

[vi] World Health Organization. Atlas of headache disorders and resources in the world 2011.

[vii] Mauser, Emily D., and Noah L. Rosen. “So many migraines, so few subspecialists: Analysis of the geographic location of United Council for Neurologic Subspecialties (UCNS) certified headache subspecialists compared to United States headache demographics.” Headache: The Journal of Head and Face Pain 54.8 (2014): 134

 

 

Migraine Research Foundation fundraiser, “Haturday for Heads”

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Recently I was contacted by a woman named Katherine (Katie) Janquart. She lives in Boise, Idaho and is a fellow migraine sufferer. She was first diagnosed with migraines in her teens and has had chronic migraines for the past 15 years. She decided early on in her migraine journey that she wanted to be an advocate for people like me.

Last year she formed a group called Migraine IDAHO and launched a page on Facebook. Her vision for Migraine IDAHO is to offer support, awareness and information on migraines. She also believes that one of the biggest ways she can help people with migraines is to help fund research. Last year Migraine IDAHO did an event on the second Saturday in April called “Haturday for Heads.” She had a local restaurant donate part of their sales for the day, a silent auction and a crazy hat contest. All the proceeds went to the Migraine Research Foundation and they worked with the Chronic Migraine Awareness organization.   I love this idea and the Migraine Research Foundation.  Last year I ran my own Jamberry fundraiser for MRF and feel that research is crucial in helping migraine sufferers.  I am happy to support “Haturday for Head” and hopefully you will participate too. 

This year she will still have a get together at the local restaurant where part of the food purchased will be donated. She wants to blow last year out of the water and make “Haturday for Heads” an event that people will remember and look forward to in following years. If you are in the area, please stop by to support.

Since the event is named “Haturday for Heads” a hat with a special design specific to this event will be available for purchase. On the day of the event anyone who has a hat, can post pics in their hat no matter where they are in the world and be a part of the event.

We believe that this event can raise awareness. We both are dreamers and reaching for the stars hoping to unite migraine sufferers all across the word so that their voices can be heard. I am happy to support Katie and her efforts to raise money for Migraine Research Foundation. Please share this and participate in whatever way you can.   If you are unable to participate please share it and spread the word.

Thank You!

Manicures for Migraines

image3image1A friend and fellow migraine sufferer and I are throwing a Jamberry Nail Wrap party to raise money for Migraine Awareness.  100% of commission from the sales of Migraine Awareness wraps sold and 50% of the rest of the sales for the party will go to Migraine Research Foundation.  “The Migraine Research Foundation raises money to fund innovative migraine research to discover the causes, improve the treatments, and find a cure.   All operating costs are covered, so 100% of every donation goes to fund research.”  I personally will receive no money for the sales of the wraps.  My goal is to raise money and awareness.

To order any time go to: http://theresamillerjams93.jamberrynails.net/ and click shop

Theses wraps are $25 each.  If you would like to order one (or more) comment in the party and Theresa will give you ordering instructions.  Join the party and support Migraine Research Foundation and raise awareness with these pretty nails.  Feel free to pass along the information to anyone you feel may be interested in raising money for migraine awareness month.

So let’s party:  https://www.facebook.com/groups/1458699294442687/. If you do order, I’d love pictures of your beautiful nails and how you are raising awareness!