Throwback Thursday to Indians World Series 

I’m so excited for game #1 of the playoffs tonight! Here is my experience from last year.  ⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️⚾️✨Sports can teach so many lessons and provide memories that last a lifetime! ✨


https://mymigrainelife.wordpress.com/2016/11/05/thankful-thursday-indians-vs-cubs-world-series-2016/

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Migraine and Headache Awareness Month 2017

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Migraine and Headache Awareness month begins today!  I will fully admit that I may be a bit behind on posting due to a cycle of migraine that just will not go away!  I will be participating and challenging myself each day to do some kind of advocacy for migraine and headache awareness.

Day one is simple:

I’m asking you to share this post and invite others to follow:

My Migraine Life

Facebook

Twitter

Instagram

 I think you will be shocked to see who suffers from migraine and headache disorders.  I can’t tell you how many people I have run into that say, “I don’t suffer like you, but I do get headaches or migraines in my own way……”  We all suffer differently but can learn so much from each other.  By others following they can learn from my experiences and I can learn from theirs.  Supporters (parents, friends, co workers, bosses, neighbors) will learn how to help a loved one and understand the depths of migraine and headache disorders. 

Knowledge is power and following will give you added power to fight!

This month My Migraine Life will be giving you opportunities to:

·         WIN a giveaway

·         Fundraise for migraine and headache disorders

·         Learn new information

·         Find and receive ways of support

·         Make some social media “noise”

Some events allow you to spend your money on fundraisers or products that help sufferers.  Some events don’t require money and only ask for your participation.  Some events are to teach you while others are to support you.  There is a variety of ways to make Migraine and Headache Awareness Month a success.

 

So first things first…….follow and share on all social media to get as many involved as possible.  Together we can make a difference! 

Thank you!!!!!

 

 

 

Disney World. My migraine

 

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This picture is intentionally blurry.  I may have been smiling but this is a small sample of the blur I was looking through that day.

 

There is no way I expected to make it three days without getting a migraine.  My day at Magic Kingdom had been perfect and low pain which meant for sure I was getting one the next day.  Sure enough, I woke up sick.  I immediately took my rescue meds, drank water and rolled around my bed in pain and anger.  I was really angry and not willing to miss the day that I had planned for my family. 

So when it was time to go, I loaded myself out of bed and got on the boat to Disney Springs.  With the experience I have, I had prepared our bag and stroller the night before and all my husband needed to do was get them dressed and lead us all to the dock.  At Disney Springs we got breakfast.  I sat outside of the busy crowded, loud, disorienting restaurant to save a table and hang my head in pain.  Everything around me was in slow motion and my body clenched.  I was barely able to stomach a sandwich and caffeine to hopefully speed up my meds. 

We next proceeded to the boutique in which my beautiful daughter would be turned into Cinderella.  As I approached, I  instantly felt fear of this magical place.  Picture a room filled with lights from every direction with air packed with hairspray, sounds of women talking in pitches I can only imagine a dog could hear and parent’s pushing you to get out of the way of their photo op.  Basically a Migraine’s hell.   I can still smell it just writing about it. 

As my son and husband were leaving to go to the Lego store,  my husband asked me if I was going to make it.  Let me tell you about the motivation of a stay at home mom watching her daughter turn into a princess.  My daughter had told me the day before that she wished on her “wishing star” that she could turn  into a princess.  I may not get money for what I do but watching my sweet girl’s wish come true is my salary. 

As I was very aware of the seats around me and garbage cans (I tend to throw up with my migraines) I decided to stay and immerse myself in the experience.  Let me tell you, if I had been one bit of a higher pain level I would have had to tap out.  Don’t think I’m telling you I can do anything if I’m motivated enough, but this was an exceptional occasion.  I should have been in bed and am not sure how I did it, to tell you the truth. 

Anyways, I decided to ask our “fairy Godmother” about some special occasions she has seen there.  She began to tell a story about an engagement but the story that moved me was this…...

A little girl Skyped with her father while he was deployed in Afghanistan so he could see her transformation.  I listened with tears in my eyes.  Tears of pain, tears of heartache for so many and tears of gratitude. 

I stood there with a smile on my face yet close to passing out and I thought of how thankful I was.  Yes, I was pained in every inch of my body yet I was thankful.  I was thankful to that dad, his daughter, her mother, and to everyone who sacrifices for our country.  I was thankful that I knew my husband and baby boy were safe next door.  I was so thankful to all of the men and women who put their lives on the line so I could stand there and watch my child’s wish come true.  It was a very profound moment to remind myself that my pain may have been all consuming but I’m not the only one suffering.  I think it’s a moment I will never forget!!!

So with this all said, let me say THANK YOU to all of the men and women in our armed forces.  Not only thank you to you, but thank you to your family and friends who also sacrifice while you protect us.  Thank you to generations past, present and future.  The job you do is something that is not acknowledged enough.  You allow the American dream and little girl’s wishes to come true.  Thank You!

Tranquility Salt Cave for allergies and stress relief

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I have had a ton of response about my Himalayan Salt lamp post.  The main question being, “Did it help your migraines?”  The simple answer is no.  With long term benefits, possibly yes?!

After I found that it wasn’t giving me particular relief, I placed it in my son’s room.  My son suffers from seasonal allergies, coughs, congestion, sinus infections and ear infections.    Within 2 nights I noticed that he was coughing less.  I was shocked!!!  My husband (who tends to medicate over natural therapies) saw a difference also.  I leave it on in his room next to his bed and feel that the purifying salt is helping him breathe better and have less congestion throughout the night! YEA!

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After this, I had renewed faith in my Himalayan salt lamp.  After reading the benefits, I realized that it doesn’t help with inflammation which is most likely what is triggering my migraines.  What it does help with is

  • Asthma
  • Seasonal allergies
  • Coughs and chest congestion
  • Exzema and dermatitis
  • Improves lung functioning
  • Sleep disorders
  • Cystic Fibrosis
  • Stress and anxiety
  • Depression

 

With this knowledge, I found Tranquility Salt Cave of Columbus, Ohio.  I had a trip planned to visit a friend in Columbus and I always get sick when I travel.  My friend was traveling from Denver and under stress with a new baby, preschooler, her job and running on little sleep.  I knew I would be suffering from allergies, was experiencing stress and anxiety from my last migraine attack and was ready to try it.

“Tranquility Salt Cave is not your average spa. With the powerful use of salt from the Himalayas, only 45 minutes are needed to feel cleansed, inside and out. With pure salt lining the walls, ceiling, and floor, you’ll experience an effortless and pain-free total-body cleanse.”

Our experience was quite relaxing.  The owners are extremely nice and have a daughter who suffers from migraines also.  They were happy and eager to help me with my issues and hopeful that I would feel benefits from their beautiful facility.

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The salt cave is a beautiful place.  You enter through a grand wooden door walking onto warm salt at your feet.  The ceiling is twinkling with lights in a cave like surrounding. 

“The salt cave is lined with Himalayan rock salt boulders, and literally tons of granulated salt rest on the floor of the cave.  The Himalayan rock salt is millions of years old and it contains over 84 trace minerals which are readily absorbed by the human body. As pure salt is diffused into the salt cave, the healing begins.  Negative ions are released into the air, helping to promote calmness and toxins begin to be removed from the air which you breathe. The salt is anti-bacterial and begins to clear clogged mucous and debris from the lungs.  Skin conditions may even improve after repeated salt sessions.” 

Salt Cave

You find a chair with a blanket, turn off your phone and relax for 45 minutes with meditative music.

My friend and I both found it easy to relax yet difficult with the person snoring next to us.  Next time I think I’ll book the room with more friends and less strangers.  With that being said, it obviously was relaxing.  My friend had been up with a preschooler and baby all night and enjoyed the quiet time.  I used my time to relax from the stressful snowy drive and breathe in the salt to help my allergies from the change of climate.

Overall, it was a time for us to relax, recover and just breathe.  It was a great way to treat ourselves to a spa experience while reaping the benefit of Halotherapy. 

Thank you Tranquility Salt Cave for showing us a spa day can be so much more!

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*I was not paid or given my services for free.  I am writing this review with my own opinions in hopes of shedding light on the benefits of Halotherapy.  Please see a doctor for any guidance in your medical needs and be advised that my experiences are my own.

Axon Optics Migraine Glasses, natural relief

*This post contains affiliate links.  This means if you buy and click from this post I will be compensated by the  affiliate.  This in no way alters my opinion and I only recommend things I use.  I use these often!  I was given a pair to review and have used them often since.

Natural Relief

Before I had children I was a special education teacher.  The years after college; I was teaching, coaching, tutoring, and getting my Master’s degree.  That was all? ha.  At this point my migraines became chronic and pretty much elevated to a new level.  Stress, lack of sleep, noise levels and inconsistent diet triggered me daily.

Along with these were the lights!  I taught in very harsh florescent lighting during the day, coached in a bright gym and sat in front of a computer doing homework or lesson plans.  My eyes were so stressed that I sat in the dark during my free period and had the monitor brightness turned as low as possible.  I didn’t have a smart board at that time but if I had worked with one, I know I would have been pained every time I used it.

This was all before I was given a pair of Axon Optics to review.

I wish so desperately that at that time I had Axon Optics migraine glasses.  They have FL-41 lenses that block  blue-green light which was developed to reduce sensitivity to fluorescent lighting.  They sell a range of products that can fit many eyewear needs.  I found working with the Axon Optics staff easy and simple.  I appreciate this greatly!

I now use them to blog (I’m wearing them now!) and when my photophobia is heightened (which is everywhere!).  I use them everyday.  I wear them making lunches and dinner, doing homework, reading books, doing computer work, going into stores, starting my day (anywhere) and more.  If you see me, I’m wearing them!

Use code:Axontweet

Check them out….. Shop our best-selling migraine relief glasses and sungasses.

 

 

What’s your diagnosis and where does that lead you with Migraine?

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Millions of people are diagnosed with migraine and every case is different.  So what’s your diagnosis?  What’s my diagnosis?  What does it mean to be diagnosed and how does that help?  Here’s my non-medical opinion.

I have my Master’s degree in special education.  It has been really helpful in understanding how the brain works, fails and where diagnosis and treatment can lead.  I think an example that I can best use to describe the migraine spectrum is comparing Autism to Migraine.  

If you have ever met someone diagnosed with Autism, you understand that that person is an individual and like no one else (and aren’t we all?).  Although, these individuals possess some similar factors that place them onto the Autism spectrum.  Does every person with Autism look the same, act the same, react the same, learn the same way, and have the same health and reactions to treatment?  The answer is an obvious no.  Where one person may seem to have some slight social issues and not much more, another individual may need 100% care for various extreme behaviors.  You may have a full conversation with one person and another may be completely nonverbal and ambivalent to personal interactions.  While one person may see improvement with dietary and behavioral therapy others may require heavy medications and need full time care with little improvement.  Everyone is different!

I have seen my neurologist for many years and I decided to ask her what my diagnosis was recently.  I knew the answer was a Chronic Migraine sufferer with neck and shoulder issues caused from migraines which is called Torticollis.  At the beginning, it was important to be diagnosed with something.  It gave me great relief that I, indeed, was sick and not making it up issues as I was led to believe by so many.  With my diagnosis I felt vindicated and believed since I was diagnosed, I would be cured.  Years and years later, I know better.  My diagnosis is no longer as important as my journey.   I have been through so many medications, therapies, and procedures that I’m not as concerned about my diagnosis versus my treatment now.

So why ask about my diagnosis?  Like I said, at the beginning it was huge!  It provided me a starting point and that is what seems to be the best place to start.  Just like people diagnosed with Autism, it’s only the beginning and an idea of where to begin with therapies, tests, treatments and more.  It puts me into a category that I need to find where I fit.  I no longer go into my neurologist to look for a cure.  I don’t think she is going to hand me a script for a pill that will make my disease go away.  I was stuck in this mindset for years! 

I now know it takes work!  Just like in teaching,  I know I can help  at school but work needs to be done at home.  They can’t come to me to solve their shortcomings like I can’t expect my doctor to help me without putting in the work myself.  My diagnosis has become the place I started and the road that I have travelled. 

I helped with the process of diagnosing students and I had parents fight putting a label on their child.  All of us have labels. My diagnosis doesn’t define me.   I think it’s what you do with knowledge of your label and what you do with it.  You have a choice to ignore it, to get more opinions, follow your path, and problem solve along the way.  Once I realized I wasn’t going to be cured and that I needed to fight with a well-rounded approach of many therapies and life style changes, I was empowered.  My label is just part of who I am.  I am a mom, a wife, a daughter, a sister, an aunt, a friend, a teacher, a blogger, a dog and chocolate lover, a travel enthusiast, a Chronic Migraine sufferer and so much more.

What’s your diagnosis? 

How do you feel it defines your journey? 

Thankfuls to remember and add to


Thank you to everyone who participated in sharing your thankfuls during the month of November.  Here are a few that I hope to look back on during the year to be remind of how much there is to be grateful for!  Please feel free to comment and add on to our list.

“I want to thank you for opening up about your journey.  To find you and to know you can function as a mother, human being and to love life even after 25 years has been so encouraging.  I have not found this before.  But when I have read your blog I feel there is hope as a mother, a nurse and wife.  Thank you in many ways!”

“I’m so happy you made this post!  I think you have the most amazing positive attitude by always seeking out the good things in life despite the pain!  I am exceedingly thankful for the love of my son and two little bunnies who cuddle with me when I need to be touched.  I am thankful that I am able to live near the ocean and travel there to feel the healing power of nature when I need it most.  And I’m thankful for the empowering influence of woman like you on the internet!”

“I am thankful I found your blog!  I think you may be my migraine twin.  As I read your posts, it is like I wrote them.  I am a year older than you but have not had a baby yet, mostly because I am terrified of migraines during pregnancy.  It is encouraging to hear your stories.  Thanks for posting!”

“Thank you for sharing this!   I can relate 100%.   I am thankful for my pain and who I have become because of it.”

“I opened up two gifts this morning, my eyes.  I’m grateful for that.”

“I’m thankful to be alive.  A dear friend is in her final days….each moment spent with her is a reminder of how precious life is, even when living with pain.”

“I am thankful I have great friends that are here to celebrate with me even though we only see each other a few times a year.”

“I am thankful for a full day here and there without a migraine.  I cherish those and makes me more grateful for a pain free day.”

“The roof over my head.  My family and friends that I’m able to advocate for myself and others.”

“I am thankful that I still have my mom alive at 91.  And I am very thankful for my grandchildren.”

“I am thankful for a peaceful room and my medication when I have migraines”

“Bless you for your kind caring heart!”

I am thankful for:

“Loving partner, family friends, warm bed, and migraine awareness spread.”

“My fiancé, my family, good doctors (there are so few).”

“Food!”

“Your blog posts that make me cry”

“Waking up and eating”

“Food, husband, kids, best friend.”

 

“Sow gratitude. Reap. Joy”

What are you thankful 

for?