Why I’ve joined up with Miles for Migraine and Increased My Advocacy

I recently got a flashback of one of  my first posts ever.  It was super exciting to see how far I’ve come and how I’m meeting my goals from  4 years ago.  This post explains how I want to help children and be part of a charity that raises funds for migraine and lowers stigma.

I’m proud to say I’ve found it and I AM saying “Wow, look how far we’ve come.”  If you see me post about Miles for Migraine it’s because I feel strongly that it is making a financial and community difference.

After the 2 races we  participated in, Team My Migraine Life raised $2,192.91.

I was asked to give my patient perspective at both races.  I also donated 9 inches of my hair between this time!  We  raised funds, raised awareness and lowered stigma for migraine.  My children were at both events to hear me speak and are not only learning about their mom at each event but how it affects so many others!  We will be the ones to make change and we will be the ones to pave the way for a less painful stigmatized future.  I’m so proud!

Check out a post I wrote in the first week ever of blogging…..

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Miles for Migraine Cincinnati Results 2018 race/walk

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This weekend, I was part of Miles for Migraine race in Cincinnati.  It was a beautiful and warm day filled with love, support and a group of people fighting stigma and raising money for Migraine and headache disorders.

 

 

The race raised $3,550

Team My Migraine Life raised $567.37.  Thank you to all those who donated.

We were the top team!!! I’m so proud of us 🙂

The day began with fighting a 3 day migraine that I had traveled with but had huge inspiration to make it to the event.  When I got there, I was surrounded with some migraine advocate powerhouses.
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Michelle Tracy, Migraine Warrior, represented the INVisible project with her smiling face and sharing her inspiring personal stories. She also spoke to the group about being a patient advocate and how we can all be one ourselves.

Not only is Michelle an amazing and strong advocate but she was brave enough to sing the National Anthem to begin our race.  She has a strong voice as a patient and as a singer!

Katie Golden, GoldenGraine, brought sparkle to all of our days.  She is the senior contributing writer to the INVisble Project and a fierce advocate.  I can’t possibly list all of the things she is doing for the migraine and pain community but check her out and follow along.  She was kind enough to run the race with my daughter and then touch up her sparkles…..because there is no such thing as too much glitter!

IMG_3555 I once again gave my patient perspective.  I was shaky and read my speech because I could not guarantee that I could string my words together and make sense.  I felt so proud that I stood up to the pain and was able to put a face on what migraine disease really looks like.

We also heard from Dr. Andrew Hershey, the chair and director of the division of neurology at Cincinnati Children’s. He is a professor of pediatrics and neurology.

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After that, we walked.  At the Miles for Migraine events you are welcome to run and be a fierce competitor, walk and enjoy your team or stay at the tents to mingle or relax.  It’s all about building community, moving how you can and raising funds so we all can live a healthier life.

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The best part of the day was being with the ones that I love.  Spending a morning for a good cause with good people is always a great way start to the day.  I woke up in pain, shaky, sick and not sure if I could make it.  Thanks to effective medication, endorphins and a bit of luck, I was able to enjoy the day.  I walked with some of our best friends, my husband and our mini me’s.  It was a day that we  plan on turning into a tradition.

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Wondering about the Brain Hat? The Brain Hat Society is for people with migraine, their caregivers, friends and family while recognizing  their heroic efforts.  If you raise $50 you can be a member.  Purple is for migraine sufferers and pink is for the caregivers and loved ones.

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Thank you to all that supported and continue to fight.  We are fighting not just for ourselves but for future generations.

IMG_3582Also, a BIG thank you to the sponsors and these hard working ladies!  Shirley Kessel is the Miles for Migraine president while Katie MacDonald oversees operations.  They work tirelessly on bringing these events to more cities and raising funds to benefit so many.

Check to see if Miles for Migraine is coming to your city and how you can participate virtually!

 

 

 

 

 

Is it OK to Get a Medal When You Don’t Win but Feel Like a Winner?

Another year, another Miles for Migraine walk completed.  Last year I participated virtually and received a medal for my participation.  This year, I was at the race and again received a medal.  I wasn’t a winner in either race (although I was the top fundraiser and team My Migraine Life was also so I consider that a win!!!).

It begs the question, are participation trophies ok?  Here is my answer 

What do you think?

Miles for Migraine Race in Cleveland 2018

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On Sunday, April 21st, 2018 I am lacing up my sneakers and participating in the first annual Miles for Migraine Walk/Run Cleveland, OH. This event benefits a cause that effects so many and has a mission that is particularly close to my heart and my family.

Miles for Migraine is a non-profit organization whose mission is to improve the lives of people impacted by migraine, and their families through social awareness, community and supporting research efforts for a cure. Migraine is not “just a headache”. Migraine is the second leading cause of “Years lived with Disability”.  In the United States, more than 37 million people have migraine. Everyone either knows someone who has migraine or struggles with migraine themselves.

This year I’m so excited to announce that Miles for Migraine is coming to Cleveland!  In the past, I have raised money and participated virtually.  Here’s how we did last year.  This year my goal is $400 in honor of beginning my 4th year writing My Migraine Life (In June) and taking steps toward a better Migraine Life for myself and millions of others. This is Cleveland’s  inaugural race!  I’m so excited to be there in person and walk my miles along side so many migraine supporters.

Please consider joining the My Migraine Life team or donating and participating virtually.  Getting to my goal will bring us all closer to an improved Migraine Life.

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Miles for Migraine virtual walk and race dates 2017

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In June, I did a virtual challenge to raise money for Miles for Migraine.  “Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun walk/run events, typically 2 mile walk and 5k and 10k race to raise money for migraine research. We also host youth camps for kids and teens impacted by migraine or other headache disorders.”

I made the goal of raising $300 for the 3 years I’ve been blogging and I’m happy to announce we met that goal and exceeded it!  Thank you to those who donated!  Migraine is terribly underfunded and every dollar goes a long way towards fellowship programs for training new doctors as well as research. THANK YOU! THANK YOU!

For those of you that missed the fundraiser and would like participate yourself, I have a few more opportunities for you.

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Philadelphia                October 7, 2017

Washington, DC             October 15, 2017

Virtual Race                       Anytime!

 

Keep moving!  I have more race dates coming for Runnin’ for Research in which I participated last year.  I hope you are motivated to take one step at a time and each day get a bit stronger.  As a chronic migraineur, I feel like one day I step forward, the next I’m knocked back down .  The most important thing is that I take that step forward again…..